I'm New to the Forum

I am brand new here tonight; I just found this site in a Google search looking for information and HELP with my Fibro. I've spent much of the evening crying and being really depressed because my PCP flat out refused to give me anything for pain. Her nurse called and told me the doctor was refusing because "Fibromyalgia does not respond to painkillers" - even though she's given me Norco for it before!!! She said for me to just wait for my pain clinic appointment she referred me to - September 3rd, the soonest they could get me in! And doctors aren't supposed to let their patients suffer? I really feel she either thinks I have "imaginitis" or I'm wanting the drugs for the "high" - but take away the pain and I'll gladly give up the pain meds!!!

A little about me: I've had migraine headaches all my life, literally. In 2004 I was diagnosed with Trigeminal Neuralgia and ended up having a glycerol injection to deaden the trigeminal nerve; thankfully it was successful and hasn't given me any issues since. I have had other neuralgias and limb and extremity pain and numbness, mainly on the right side, and almost all starting in my head and neck and radiating down into my fingers, even some of my toes on my right foot are numb and have been for some time; I wonder if I'll ever get feeling back in them?

about a year or so after the TN injection, I began having similar problems but on the other side of my face/head, which is very uncommon, along with the other neuralgias and I began to suspect Fibromyalgia but no one would listen to me! Finally, in January 2008, I went to my PCP and told him I was tired of being bounced back and forth from my neurologist to my neurosurgeon, being poked, prodded and tested, and after all I'd read and researched, I really felt I could have Fibromyalgia. He said it was highly possible and referred me to a rheumatologist who confirmed that I did indeed have Fibro.

Treatment started; I had been put on Lyrica by the neuros but I had terrible side effects with no benefit no that was out. Initially it was just Darvocet and Flexeril; that rheumatologist in Illinois and the first one I had here in Texas didn't believe in narcotics for treating Fibro and it first, just those two drugs worked fine; once in Texas, I was even downgraded to Ultracet. That didn't last long and soon the Darvocet wasn't enough anymore either but there was nothing more that doctor would do. I did find a rheumatologist who would prescribe Vicodin or Norco but she has been out of her office most of the summer so I went back to my PCP here. She gave me Norco at first, then gave me another Rx with a refill but since that ran its course she refuses to help me anymore at all. Nice, huh?

So now I'm sitting in limbo, trying to figure out what the heck to do? To add to the frustration, I am just south of Houston, near some of the world's best medical doctors and facilities and can't seem to find the right one or combination to help me! I know everyone's Fibro is different but I am running out of options and long ago ran out of money! I need to keep my job but it's harder and harder to make it through a long day, especially today when I had no medication. I'm just sick and tired of being sick and tired. If anyone has any helpful tips to offer, especially anyone in my area with any recommendations for doctors or treatment facilities, please let me know, post it in a follow up, I appreciate anything anyone has to offer that could help!

I'm 36, I've been married almost 14 years, I have two boys, 13 and nearly 11, I have two girl dogs, 9 and almost 4. I work part time at a bank and the days seem to get harder and harder, even the ones I don't work; it seems when I have a good day I end up paying for it the next day or soon after. Lately the pain just isn't being controlled and I'm really discouraged. I'd never do anything to harm myself, my boys mean too much to me to ever do that, but I'm at the end of my rope!

From what I've read here so far, I'm glad I found this site; I don't feel like I have an imaginary illness anymore, so thank you all.

I added a subject line for you so you will get more responses.

Post Edited By Moderator (Sherrine) : 7/28/2009 10:10:27 AM (GMT-6)

I use malic acid/magnesium supplements to help with pain and fatigue.  They don't help everyone but many have had good results with its.  Many with fibro are deficient in these nutrients.  There is a link all about these on the Fibro 101 thread that Marlee directed you to. 

Also, many fibromites have a vitamin D deficiency.  I live in Florida and am in the sun a lot but I still have a deficiency.  I am presently taking 3,500 IU of D3 a day.  A simple blood test will tell if this is a problem.  Vitamin D deficiencies can cause pain and fatigue, too.  Perhaps if these few things would help you, you would be far more comfortable and not need as many medications.

I'm so glad you found us and joined in.  We have a great group of members here that love to help one another.  Don't hesitate to ask questions because we are here to help you.  I glad you are here and I hope to hear more from you soon.

Sherrine

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Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis

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God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Hang in there and continue to work. I am actually worse on the days that I do not work. Keeping your mind and body lightly active has helped me tremendously.

Look into the Malic / Magnesium supplement. It is an inexpensive way to help with the pain management.

Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 

Fibro since 2005