Hi again everyone

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Regular Member

Date Joined May 2009
Total Posts : 58
   Posted 7/31/2009 3:55 PM (GMT -7)   
Hello everyone,
It's been forever since I posted on here! So much has happened/been going on that I just didn't have a chance.
First of all I was tested for Lupus, and they said the blood work was negative. I still feel like I have Lupus though! Every symptom I have matches up with Lupus perfectly, and now I have pleurisy (sp?) too. It is soooo painful. I had decided to cut down on my percocets, as I felt, and still feel that I may be getting addicted to them, but with the addition of this pleurisy, it's nearly impossible..I can barely move. I was wondering if anyone new about Lupus, like for instance if the bloodwork they do is the only, end all be all indicator of Lupus? I am more than willing to accept having fibo, but I need to rule out other stuff first, if for nothing more than my own peace of mind.
Secondly, and most horribly my Mother passed away a week and a half ago. She was only 50, she had a stroke. It has been devastating. I had to watch them take the breathing tube out of her mouth, and even though I know it was what she wanted, I felt like I was watching her be murdered. I haven't been able to sleep because of this, and it has really affected my pain and overall health. I am supposed to be put on Lyrica soon, but there is a problem. As I am sure many of you know, it is really expensive. I have to go through the manufacturer to get it for free. That's great and everything, but due to my Mom's passing, I have not even had time to fill out the paper work to get the process started....so, I am going to run out of my amitripteleyne (sp) before I get the Lyrica. I was wondering if perhaps I could ask my DR. for a higher dose of the amitrip. until I get the Lyrica. The dosage I am on now hasn't done a thing for me. Do any of you take the amitrip., and if so what are your dosages, if you don't mind sharing? I am on 25 mgs. a day right now. The DR. had tried me on Celexa and then prozac ( i think, i have the fog a bit now), and both of those were so horrible I had to be taken off of them. I felt like my insides were shaking, and it scared me to death. So pretty much I can't take any SSRI drugs, as far as I know. DOes anyone here have any suggestions for me to talk to my DR about until i can get this Lyrica? I think they told me it will take around a month for the Lyrica to be mailed to me.
Anyhow, sorry this is so long, I just really wanted some advice and any suggestions you all may have. I am so dog tired and every bone and muscle in my body feels like it is on lockdown :(
Mother to two wonderful boys and wife to the best husband ever.

~Fibro, Diabetes, PCOS~

** "Don't tell me to suck it up, do I look like a vacuum cleaner?"

Veteran Member

Date Joined Feb 2009
Total Posts : 844
   Posted 7/31/2009 6:27 PM (GMT -7)   
Hi Mrs. T.  I just wanted to tell you that I am so sorry about your mother.  I lost my mother 6 years ago after a long illness and even though I prayed for her to gently pass away I was devastated when it happened.  Even wound up in the ER,  thinking I was having a heart attack.  I'm sorry I can't help you with meds questions but I'm sure someone else will be along soon to help you.
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
On the eighth day God created Golden Retrievers.

Regular Member

Date Joined May 2009
Total Posts : 194
   Posted 8/1/2009 2:08 PM (GMT -7)   
I'm sorry about your Mom, Mrs. T. I lost my mom several months ago. She had been battling cancer and had a stroke in the nursing home. She lost the ability to swallow and refused a feeding tube. Similar to what you describe, I know it was what she wanted but not giving her nourishment still felt like she was being slowly murdered. For several months I beat myself up thinking I should have done more to "save" her. But I finally realized that ultimately only God controls when our time is up and there was nothing I could do to change things.

My mom was 82. Gosh, your's was so young. It must have been so hard to make that decision. I hope you have been able to find peace in knowing it was her choice, and God's will.

Once the dust settles please find some time to take care of yourself. It can take some time for a fibromite body to get over a hugely stressful event like that. (Is "hugely" a word???)

{{{gentle hugs}}}

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