It's been forever since I posted on here! So much has happened/been going on that I just didn't have a chance.
First of all I was tested for Lupus, and they said the blood work was negative. I still feel like I have Lupus though! Every symptom I have matches up with Lupus perfectly, and now I have pleurisy (sp?) too. It is soooo painful. I had decided to cut down on my percocets, as I felt, and still feel that I may be getting addicted to them, but with the addition of this pleurisy, it's nearly impossible..I can barely move. I was wondering if anyone new about Lupus, like for instance if the bloodwork they do is the only, end all be all indicator of Lupus? I am more than willing to accept having fibo, but I need to rule out other stuff first, if for nothing more than my own peace of mind.
Secondly, and most horribly my Mother passed away a week and a half ago. She was only 50, she had a stroke. It has been devastating. I had to watch them take the breathing tube out of her mouth, and even though I know it was what she wanted, I felt like I was watching her be murdered. I haven't been able to sleep because of this, and it has really affected my pain and overall health. I am supposed to be put on Lyrica soon, but there is a problem. As I am sure many of you know, it is really expensive. I have to go through the manufacturer to get it for free. That's great and everything, but due to my Mom's passing, I have not even had time to fill out the paper work to get the process started....so, I am going to run out of my amitripteleyne (sp) before I get the Lyrica. I was wondering if perhaps I could ask my DR. for a higher dose of the amitrip. until I get the Lyrica. The dosage I am on now hasn't done a thing for me. Do any of you take the amitrip., and if so what are your dosages, if you don't mind sharing? I am on 25 mgs. a day right now. The DR. had tried me on Celexa and then prozac ( i think, i have the fog a bit now), and both of those were so horrible I had to be taken off of them. I felt like my insides were shaking, and it scared me to death. So pretty much I can't take any SSRI drugs, as far as I know. DOes anyone here have any suggestions for me to talk to my DR about until i can get this Lyrica? I think they told me it will take around a month for the Lyrica to be mailed to me.
Anyhow, sorry this is so long, I just really wanted some advice and any suggestions you all may have. I am so dog tired and every bone and muscle in my body feels like it is on lockdown :(
Mother to two wonderful boys and wife to the best husband ever.
~Fibro, Diabetes, PCOS~
** "Don't tell me to suck it up, do I look like a vacuum cleaner?"