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New Member

Date Joined Jul 2009
Total Posts : 3
   Posted 7/31/2009 11:46 PM (GMT -7)   
Hey everybody,

I just joined this forum because I wanted to get some feedback from all of you about what the early stages of your fibro were like? I haven't been diagnosed with anything, but have been researching FM for several months now and feel like it is a fairly good fit for the issues I've been having for the past few years.

I wake up every morning so achy it hurts to breathe and feeling like I haven't slept at all. Most of the time I just have to go back to sleep because waking up hurts so bad. I've been through a lot of depression/anxiety/panic attacks and the more stressed out I get (which is pretty extreme, I'm a double major at a really demanding college) the worse I feel. Many of the other symptoms that I've read about have been a problem as well, but its the fatigue that has me terrified about going back to school in a few weeks. I brought up the possibility of fibro to my family doctor, but she told me I'm just stressed and depressed and referred me to a psychiatrist.

My question is about the pain aspect of fibro. Apart from waking up, or after exercising, I don't really get random pain on a regular basis. However, I've only just turned 20, and I've read that FM tends to develop more often in your 20's and 30's. Is the pain something that starts off like I have described and gets worse over time? Or should I be experiencing the kind of flares you all describe from the beginning if I do actually have fibro?

I really appreciate any help on this. I'm not giving up with what my family doctor told me, but I feel like I practically have to diagnose myself for a doctor to listen to me. I need to get this figured out or I'm terrified I won't make it through school; I'm so tired of people saying I'm just unmotivated.

Veteran Member

Date Joined Mar 2009
Total Posts : 900
   Posted 8/1/2009 1:03 AM (GMT -7)   
WakeForestJunior, You do have alot on your plate at only 20 years of age. Take heart in knowing you are trying to find out what is going on with you. I suggest 1st you look at Fibro 101 there are many links there you can look at. 2nd you need to find a doctor that will work with you on your medical issues. 3rd you need a good sleeping pill so you feel a little more awake in three weeks than not.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 8/1/2009 5:22 AM (GMT -7)   
Hi WFJ and welcome. There are so many variables to fibro and how it starts and how it progresses, it's not suppose to be progressive but you couldn't prove it by me. Mine started in my late 40s with stress and anxiety then fatigue came along and after it got to be a problem we started testing to find what was causing that and "everything else it could be" (which is in the fibro 101 thread, first on first page) but it took a full blown flare of feeling like I had been beaten with a baseball bat to get a dx from my doc. Some have had pain all their lives. For some it has been a traumatic event in their lives like a car wreck that starts fibro. Some can't put their finger on any reason it starts. You are not too young to have fibro we have some younger than you on the forum.
I suggest you print out a copy of fibro symptoms from the fibro 101 thread and mark each one you have and keep a journal on your pain and fatigue. Find a doc that believes in fibro 100%, it doesn't matter if he is your PC doc or a rheumy as long as he/she understands and treats fibro. My GP dxd me but when I was looking for a new rheumy I talked to the nurses of the docs to make sure they believed in and treated fibro before I decided on one. Remember you are hiring them. Take all your info with you and go over everything with the doc. They do have to rule out all the other things it could be to get a dx.
Good luck and we are here for you.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Forum Moderator

Date Joined Apr 2005
Total Posts : 17526
   Posted 8/1/2009 6:01 AM (GMT -7)   
Hi, WFJ, and welcome!  I'm so glad you found us and joined in.  Fibromyalgia doesn't have any set pattern.  If you start reading these posts you will see people are so different in their fibromyalgia pain and also with what they take for fibromyalgia.  So, we really don't have that answer for you.
My pain started while watching television.  It started in my toes and worked it's way up my body until it hit my elbows and hands.  When it did, it was like I hit my "funny bone" and I had electrical-type pains shooting down both arms that never subsided for over two weeks.  I barely could stand it.  I haven't heard anyone else having this.  Some develop fibro after an illness, or a stressful part in their lives, or an accident....See what I mean?  I think this is why the doctors are having such a bad time figuring this out and also why some doctors think it's all in our heads. 
I see Hara and Marlee directed you to the Fibro 101 thread.  You will learn a lot there.  It is important that you speak to a doctor about what is happening, too.  We are not doctors here so we are guessing just like you are.  A good board certified Internist or a Rheumatologist could help you.  Make sure they treat patients with fibromyalgia, though.  Some doctors still don't think this exists!
Please let us know what you find out.  Also, don't hesitate to ask questions.  We are here to help you.  I'm glad you are here and I hope to hear more from you soon.

Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Mar 2009
Total Posts : 1158
   Posted 8/1/2009 7:46 AM (GMT -7)   
Welcome WFJ to healingwell forums.
I usually lurk in the kidney and chronic pain forums but I stumbled across the thread.
I found these forums 5 months ago to help deal with my medical issues and stumbled onto what is ailing my husband.  Fibro was the only thing that came close to what he has been going through for 19 years.  When he came back from Desert Storm.
Every morning he wakes up in pain.  The Pain travels.  One week to a month it could be his fingers then it will target his back then move to his hips or elbows.  Every morning like clock work his ankles lock up.  We had to move into a one story house for he feel down the stairs one morning.   Hes only 39 and states all the time he feels 90.
His mind is foggy and he forgets things.  It goes so far that he forgets that he forgot.
Sherrine is correct, Fibro attacks everyone differently.
You made the statement about Dx'ing yourself.  Thats what my husband did.  After I intensly researched it he went to the doctor and told her thats what we believe.  She went over all the symptoms ran a bunch of tests ruled out a many conditions then agreed it was Fibro.  It worked for us but then maybe we were lucky with this one.
I hope you can find some answers and please keep us all updated on your health.
Kidney Diseases and Disorders
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........ I think I have it all

New Member

Date Joined Aug 2009
Total Posts : 7
   Posted 8/1/2009 5:04 PM (GMT -7)   
Hey there,
It most definitely sounds like you could have fibro. In my opinion you need to go and get a second opinion. If I had a nickel for everytime a dr told me I was "depressed or unmotivated" I would be very rich. There are still many doctors out there that do not believe in fibro, it can be and is a very frustrating process getting diagnosed and dealing with fibro. I wake up everyday exactly how you described and it took me nearly a year to start getting flares and regular pain. I am 19 years old so I completely understand if you are scared or confused. But please try to get a second opinion and find someone who believes so that maybe you can get your pain under control and begin your life again. Its not the end of the world even if it feels like it, you are not alone. Good luck and I am here if you need to ask any questions!

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