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Regular Member

Date Joined Oct 2008
Total Posts : 377
   Posted 8/2/2009 12:13 PM (GMT -7)   
Someone recently suggested that I could be suffering from RSD. I never was foggy before. I did seem to feel sicker and more pain after my last surgery. Except that the pain never came from my abdomen. It seemed to start in my elbow...then down to my hand. Hell...either's like a life sentence. I don't normally feel depression I can't handle but the past's so hard. My usual anxiety or whatever level I've lived at like its amped up (although to be fair, I'm about a month from homelessness with credit in the 550's, so housing is a huge problem, my meds cost a lot, insurance got changed...and either the Lyrica is causing D or the Crohns is) to levels that I just can't handle.

I'm tired. I didn't work Saturday. It was a 9 hour day...which is money in the bank...but I felt sick and couldn't stop fighting nausea and the pain in my feet. Anyone else get intense sorta...stepped on a nail pains when you put pressure on the bottoms of your feet? I'm always headachy which is sort of from all the sleeping but I give up. Is this a life sentence of WHAT?! LOL. If we could pass this disease to people who cause pain in sentence...they can't move from their beds.

I know...morbid. That's me. I'm avoiding my mother. Not taking her calls really. I can't stand to talk to her. I don't want anything to do with her. I may end up living WITH her because we don't have much choice left. My poor sweet beloved husband is tired. I sort of miss sex...but I think he's going to be too careful and ruin it all when we do again. 'Course...the past few months...when we're gonna, I take pain meds ahead of time. Yeowch. Sounds awful. Gosh...I feel awful...truly. Get up and stretch? HOW? It hurts to walk back and forth from the bathroom.

Post Edited By Moderator (Admin) : 8/3/2009 8:41:06 AM (GMT-6)

Regular Member

Date Joined Oct 2008
Total Posts : 377
   Posted 8/2/2009 1:17 PM (GMT -7)   
I was curious if anyone had. someone just mentioned it to my husband and he mentioned it ot me. It shows up after maybe its a thought.
27/f/CD. 4 CD related surgeries: 2 resections, 2 JP drains, 3 NG tubes, many absesses (including the one my most recent surgery scraped off my ovary) and fistulas.
Have lost in these surgeries: appendix, 8 in. intestine, R fallopian tube, gallbladder, 10 in. intestine
Allergies and Asthma my whole life
Depression after surgeries and illness of 2003.
Crohns Dx'd: February 2008.
Fibromyalgia Dx'd: July 21, 2009
Prenatal Vitamin
Allergy meds

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 8/2/2009 3:48 PM (GMT -7)   
I'm highly suspected of having RSD, but not officially diagnosed yet. Am going to hospital shortly for more tests so I can get a diagnosis and get physio put in place.

Sorry you're in so much pain.

Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's

Regular Member

Date Joined Jun 2009
Total Posts : 23
   Posted 8/2/2009 4:56 PM (GMT -7)   
Hi Joie.  It sounds to me like you could really benefit from an extended relief pain medication.  Not just a Vicodan here and there, but 'round the clock medicine.  I was on Percoset for the back/foot/body pain and I was riding the pain rollercoaster all day long and it DRAINED me, physically and mentally.  Now that I am on Oxycontin, I have continuous pain control and I feel so much better.  When we are in pain for extended periods of time, it alters your brain's ability to cope with life.  You need some relief. Period. Nobody can think straight or function when they hurt all the time.
Have you ever tried amitriptyline? It is an older tricyclic antidepressant used for fibro and it really works for me.  Also, a good SSRI is a great way to combat the depression and anxiety of fibro.  Have you found a good pain doctor (I can't remember if you were going to see one or had already done so)? It doesn't have to be a "pain specialist" either....a good PCP can manage your meds just as well.  Sometimes a primary care doc can actually be BETTER than a pain doctor because pain specialsts tend to view you as a drug seeker until you prove it to them otherwise.  That has been my experience, anyway.  They don't know jack about fibro pain, either, or they don't think that it deserves their attention.  They can sit on it and spin... mad
Keep your head up!  You can find some relief, unfortunately some of us have to work at it harder than we should have to.
Jenny B
Age 36
DX w/ fibro June 2009
DDD & annular tear at L5/S1
endometriosis since age 18, have had 5 surgeries to date
Current meds:
OxyContin 30 mgs 3 X day
Dilautid 2 mgs 1-2 X day for breakthrough pain
Elavil 25 mgs
Zoloft 75 mgs
Lunesta 2 mgs
Klonopin .75 mgs
Protonix 40 mgs
Flexeril PRN
Phenergen PRN
I am living in the body of an 80 year old......

Regular Member

Date Joined Jun 2008
Total Posts : 289
   Posted 8/2/2009 7:36 PM (GMT -7)   
Sorry to hear you are having such a rough time...

i get the pain on the bottom of my feet all the time.. its terrible when i can hardly get out of bed.. i hate the side effects the lyrica gives me.. and i have no desire to have sex what so ever.. my poor bf tries to be understanding but i know it frustrating for him. especially on the days when i am repulsed by touch i am hoping that i can get something back to "normal" soon so that we can be intimate again.. but i doubt that will be happening soon...

I hope things get better for you soon..
Diagnosed - fibromyalgia 2001
Meds amitryptilene 30mg/day
Lyrica 75mg/day

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