I had neuropsych testing done about
a year ago and maybe the guys I went to were hacks but I didn't find it to be helpful at all. Also, my insurance did not cover it. Pretty much all they told me was what I already knew: I had dysthymia, which is a type of depression; mild dysnomia, which means mixing up words or not being able to think of the right word; and trouble with working memory.
This was really more depressing than relieving to hear because they also told me that I had above-average intelligence and understanding, there was just something along the way that was mixing up the signals and they didn't know what or how to fix it. And also, they said that my problem areas were at normal levels, they just expected higher scores for someone of my intelligence, which was kind of insulting to hear although I know it wasn't meant that way. The only thing I truly bombed on was reflexes, when they timed how many times i could tap my finger in sixty seconds and a couple other things. But I have wrist problems so they ignored those results. They also dismissed indications that I was "overly impulsive" because my mom and I said I wasn't. I feel like they shouldn't just take my word for it, though.
It annoyed me that they didn't actually quantify anything when they presented their results to me, they used terms like "average," "below average," "above average," and "poor." I know they HAD numbers but they wouldn't tell me what they were and I never got a physical copy of the results, though they were sent to my doctor. I think the guys I went to were just not that good. They definitely made me physically uncomfortable as a young woman, because I felt like both times I went into the office they were checking me out. At least the testing was done by some female psychologist that works there.
And to comment on Sherrine's statement that Fibro doesn't affect your IQ: that's true, but it does change how much of it you can use. It's very frustrating to understand something really well and be unable to express yourself, especially when you get the tests and they tell you you're really smart you just sound
stupid. I realize this a pessimistic thing for me to say, but that whole optimism thing has eluded me for pretty much my whole life. I'm trying, I really am, and I appreciate that you remind us that our lives are not over.
I've gotten a CAT scan and multiple MRIs over the years to monitor a cyst in my brain, and more recently an EEG and VER, as well as an ambulatory EEG which brought me to hysterics but apparently showed nothing wrong aside from a strange "blip" pattern that they usually associate with epilepsy but only when the blips are much closer together. I don't have a lot of faith in neurologists anymore, especially because I had to go halfway across the country to find a doctor that would actually tell me what having an arachnoid cyst meant and how often it needs to be monitored.
On the other hand, since I go to a neurologist I found out that my fog didn't magically get worse and then better, I actually had post-concussive syndrome for about
a year. Which is nice because now I know not to expect it to happen again unless I whack my head on another tree and insist upon not needing to go to the hospital since it's not bleeding. For the record, don't ever take head injuries lightly like I did. That was a really stupid decision.
Diagnosed with fibromyalgia February 2008, dysthymia January 2009.
Vitamin D supplements, and Provigil and Temazepam when I need them.
Anti-depressants have been a bust but the rheumy wants to put me on Savella.
Post Edited (libertykitty) : 8/9/2009 4:00:43 AM (GMT-6)