Long list of Fibromyalgia Symptoms

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FibroNana
Regular Member


Date Joined Sep 2010
Total Posts : 194
   Posted 8/24/2011 6:54 PM (GMT -7)   
Hey there Chutz,
 
I was just about to post something and ask about #59...read through the list and there it was at the bottom...speaking of bottom..My left foot, the bottom of my foot, where my heal is and toward my arch has been like a burning feeling..very simiular to what I feel in my left buttock for the past 3 years...well, I've noticed in the past few days it is getting worse..I don't know if I should contact my rhuemy or just see if it passes..I'm on 1800mg of gabapentin and wondering if I need to up that..
 
anyone else struggling with the foot pain??? shocked
 
this is a new one for me..
 
Jerrie/FibroNana
Fibromyalgia,meralgia paresthetica,degenerative disc disease,rheumatiod arthritis,depression,asthma
Trazadone,neurotin,predisone,percocet,Xanax
One day for women/50+, estroven, magnesium/Malic acid, fish oil, probiotics

Medically confused
New Member


Date Joined Aug 2011
Total Posts : 4
   Posted 8/24/2011 10:31 PM (GMT -7)   
Hi I am new here. I read list of fibromyalgia symptoms and most relate to me.  Rheumy said have lupus even though ana only 1:40 and anti DNA came back as indeterminate 5.  I was put on Gabapentin and plaquenil.  I recently went for second opinion at ny dr (I moved to Fl 5 hrs ago). All my med problems started here the ny dr took tests again and a lot more to see if have lupus which he doesn't feel I have only ana came back this time 1:80 but still on low side of high. No other tests came back positive or abnormal except creatine kinease which came back low ny rheumy SaiD have fibromyalgia not lupus and would not have put me on the drugs I am on which really aren't helping anyway so still on them for now went to neurologist yesterday and wants to up me on gabapentin since not helping and am on such low dose I have an appt next month with new rheumy in Fl that ny rheumy recommended so was going to wait it out a month So not sure what to do but dont sleep like now  . I'm miserable.

Medically confused
New Member


Date Joined Aug 2011
Total Posts : 4
   Posted 8/24/2011 10:35 PM (GMT -7)   
@fibronana
Yes I have had foot pain for over a yr now been to podiatrist was told plantar facitis had to wear a walking boot and different shoes with orthotics had 3 cortisone shots pain eased little came back. I get throbbing still shoes help little never walk barefoot. But think also fibromyalgia because it occurred for no reason no warning no injury.

FibroNana
Regular Member


Date Joined Sep 2010
Total Posts : 194
   Posted 8/25/2011 7:04 AM (GMT -7)   
@ Medically confused,

Have you checked out Fibro101? They have put together some fantastic information. Did you say never walk barefoot?? Oh my!! I am always barefoot and didn't realize until I went for emg testing that I apparently have extremely high arches..the doctor giving my test kept going on and on about my high arches..I just never really had issues and never paid much mind to it...well I am now..I'm noticing this morning the pain seems to be extending to the entire bottom of my foot..I may have to go see a podiatrist but I'm not going to take any shots..I've had those in so many places on my ole body and I'm not going to do that anymore. It just doesn't seem to help and if it does relieve the pain it is very short lived..

I wanted to tell you that I was on Cymbalta for a while and had to change to Trazadone because the Cymbalta was just to expensive. The Trazadone was like 4.00 and the best part about this old school antidepressent?? it helps you sleep!!!! seriously...I have no hangover feeling..I do take a bayer asperin at night with it, to help heart preventive things and because the trazadone can leave you with a residual headache. You may want to talk to your doctor about it..

Another thing I've just begun is weaning myself off sugar and those bad ca ca sugar substitutes..Like so many other fibromites I've gained 15 lbs in over a year.. so, I'm determined to get some of this off!! and I've been researching about sugar and especially corn syrups stuff like that...bad bad stuff...

I wish you well, ask lots of questions, again read over fibro101. The moderators here are very knowlegable and kind.. This is my fibrofamily!!!!

hang in there...also have you tried melatonin? natural sleep aid..

hope to talk to you soon and that you are feeling better,

Jerrie/Fibronana
Fibromyalgia,meralgia paresthetica,degenerative disc disease,rheumatiod arthritis,depression,asthma
Trazadone,neurotin,predisone,percocet,Xanax
One day for women/50+, estroven, magnesium/Malic acid, fish oil, probiotics

Femangel
Regular Member


Date Joined May 2011
Total Posts : 174
   Posted 8/25/2011 7:31 AM (GMT -7)   
Goodness me! Thats a lot of symptoms....
Loads of stuff on there that i never have related to Fibro or even to beeing ill in general.
Like for example the restless legs... I've got that half the time, goes so far i tend to get on everyones nerves cause i simply can NOT sit still!
"Live in the present, remember the past, but fear not the future, for it doesn't exist and never shall" (Christopher Paolini - Eldest)

Fibromyalgia, Scoliosis, Degenerative Disc Disease, Parasomniac.

Medically confused
New Member


Date Joined Aug 2011
Total Posts : 4
   Posted 8/25/2011 9:24 AM (GMT -7)   
@fibronana thanks will look into it. Yes I was told have very high arches as well. It took and still does take a lot of getting used to wearing then proper shoes all the time and not walking barefoot. Not to mention lot of money buying the right shoes and when went to special shoe store got my true foot size which was totally off and had to rebuy shoes. Very frustrating. I still get pain just not as bad and manageable now

FibroNana
Regular Member


Date Joined Sep 2010
Total Posts : 194
   Posted 8/25/2011 2:05 PM (GMT -7)   
@medically confused,

not sure I'm ready to bite the bullet and buy shoes...one of my docs today said it could be peripheral neuropathy.. great..gonna wait till I see my neurologist before I get freaked out about it..
Fibromyalgia,meralgia paresthetica,degenerative disc disease,rheumatiod arthritis,depression,asthma
Trazadone,neurotin,predisone,percocet,Xanax
One day for women/50+, estroven, magnesium/Malic acid, fish oil, probiotics

mrs.unique
Regular Member


Date Joined Aug 2011
Total Posts : 78
   Posted 10/29/2011 2:46 PM (GMT -7)   
Why is it when you look up fibromyalgia on other sites they don't say anything about all the other symptom you can have with fibro.?

Iamsotired1224
New Member


Date Joined Nov 2011
Total Posts : 6
   Posted 11/28/2011 9:15 AM (GMT -7)   
Thank you for this list...I think I’ve experienced 90 % of these. I felt like I was going crazy and the people around me didn’t seem to believe me when I kept stating all the symptoms I was feeling.

McFibro
Regular Member


Date Joined Aug 2011
Total Posts : 57
   Posted 11/28/2011 7:06 PM (GMT -7)   
nana68 - that bladder infection with no bladder infection - I had that and it turned out to be a prolapsed bladder. You might want to check with your urologist or a pelvic dr. to have it checked and good luck-I hope it's just fibro!

McFibro
Regular Member


Date Joined Aug 2011
Total Posts : 57
   Posted 11/28/2011 7:06 PM (GMT -7)   
nana68 - that bladder infection with no bladder infection - I had that and it turned out to be a prolapsed bladder. You might want to check with your urologist or a pelvic dr. to have it checked and good luck-I hope it's just fibro!

applevenus
Veteran Member


Date Joined Aug 2011
Total Posts : 934
   Posted Yesterday 10:21 AM (GMT -7)   
Add tinnitis (ringing in the ears) to this list
46F, Fibromyalgia, Vitamin D deficiency, allergies/multiple chemical sensitivities, possible Chronic Fatigue & occasional IBS symptoms.

I take vitamins, Tramadol for pain, Flexeril as needed.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17524
   Posted Yesterday 10:24 AM (GMT -7)   
Tinnitus is there...#28.
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

fibro ?
Regular Member


Date Joined Nov 2009
Total Posts : 76
   Posted 1/4/2012 10:32 AM (GMT -7)   
A lot of us have gone so far down the rabbit hole that there is no return trip,, I know I have small fiber neuropathy,, I know I have been told I have Fibro,, and was reading yesterday that 30% of people with fibro develop a small fiber neuropathy,, so dont be so quick to say that some of teh stuff is fibro,, there is no reason why a person should suddenly become cold insensitive,, truth is, this is a problem with the nerves closest to the skin,, the ones responsible for sensations, when you start to trip and fall over your own feet,, again dont be so quick to relate it to fibro,, this may be a problem with the motor nerves,, the ones responsible for walking, arm movement,,
I have had problems for over 5 years,, and still have yet to be Dx;ed, they kmnow I have SFN, and sicca,, and yet after so many test and test, I got only this to show for it,, been told its a sereonegative sjogrens syndrome,, but who knows,, I just watch my body lose more every day, it seems in the last month things have gone from bad to worse,, I now have no feeling at all in my fingers,, there just sticks,, no fine motor skills,, I am tripping more,, and a family that has no clue,, I love them to death,, but since I am a man,, and supposed to be the head of the house,, they look at me like Dad is ok,, he would never fail us,, but dad is failing,, hes gone to far down teh rabbit hole

Marrit
Regular Member


Date Joined Jan 2012
Total Posts : 146
   Posted 1/12/2012 3:43 PM (GMT -7)   
nana68, I suffered for years with that. It's very similar to interstitial cystitis.
However, my bladder problems improved exponentially after a round of antibiotics for bacterial vaginosis, which I didn't know I had because there were no symptoms.
Might be worth investigating.

bestaunt1156
New Member


Date Joined Jan 2012
Total Posts : 1
   Posted 1/21/2012 12:58 AM (GMT -7)   
I just found this today and I have all but just a handful of the symptoms. Nut I was just wondering does anyone have pressure in the head with fibro? Thank you for this list, it has helped me a great deal.

libra1019
Regular Member


Date Joined Jan 2012
Total Posts : 32
   Posted 1/21/2012 12:47 PM (GMT -7)   
Hi Sherrinne,
 
Didn't see dizziness and nausea on the list, or did I just missed it??
 
 
Libra
FM diagnosis 2005

Ongomom2
New Member


Date Joined Jan 2012
Total Posts : 1
   Posted 1/21/2012 5:52 PM (GMT -7)   
I just found this site today and I also have all but a handful of the symptoms. I have an upcoming appt. with a Rhumetologist.I don't wish these symptoms on anyone else, but it's finally good to know I'm not alone. I've had osteo arthritis (knees)since 17. Now at 48, both knees need replacement. I'm tired, feel like I have the flu, hands hurt, feet and legs hurt ALL THE TIME!!! I go to bed and wake up feeling more tired than when I went to bed. If I sit for more than 10 minutes I'm stiff, I get up in the morning I'm stiff. I'm either extremely cold or extremely hot and don't forget the night sweats!!! For, at least, the last 3 years I've gone to several dermatologists for facial breakouts. One said adult acne, one said Rosacea nothing seems to work.
I'm sorry I seem to be ranting. If anyone can give me any tips for my upcoming appt., I'd appreciate it.

silhouettespass
New Member


Date Joined Feb 2012
Total Posts : 1
   Posted 2/10/2012 8:43 PM (GMT -7)   
I'm 26 with a 2 yr old son and was diagnosed with FM about a year ago. I have nearly every single symptom on this list. So many people think I'm crazy, and don't believe me, and I'm sure that complaining all the time gets tiresome. I've lost nearly all of my friends because I sometimes just don't want to get up and leave my house. Being a full time junior in college and raising a toddler on my own is beyond stressful which just makes the FM worse. It's a cycle I can't seem to get out of. But now thanks to finding this forum, I know I'm not alone. I also have been treated for 7 years for: arthritis, GERD, diagnosed OCD/anxiety, and I was diagnosed with ADD but now I think it is just fibro fog. I have tried being on medications for FM, but my blood pressure shot up way too high. I have not seen anyone who specializes in my condition, so my doctor isn't much help at all and I feel completely lost and at my wit's end most days. I pray for the day that things get easier and I don't feel twice my age. Any words of encouragement would be greatly appreciated right now since I spend most nights crying. Thank you all, have a great weekend.

Boudicca
New Member


Date Joined Feb 2012
Total Posts : 4
   Posted 2/11/2012 1:37 PM (GMT -7)   
I just found this site, it's great. I'm 50 and was diagnosed with Fibro in 2004. I was hospitalized with my first migraine in 2001 but no one made the connection then.

The list of symptoms is interesting, i think i have or have had at one time most of them. I have had SEVERE tinnitus for probably 25 yrs or more. It's beginning to interfere with my hearing.

I don't take any prescription meds with the exception of Midrin for migraines. I can't take regular migraine meds because of my Raynauds, it's contraindicated. I consider myself high functioning and do a lot (i garden, i hunt, i barrel race, work semi-physical jobs) but i'm having more and more problems lately.

I'm glad to have found a place i can get advice and help. :)

lb12
New Member


Date Joined Feb 2012
Total Posts : 6
   Posted 2/20/2012 12:28 PM (GMT -7)   
Hello, I am 41 and was diagnosed 2-3 years ago with fibro (after it had taken my mother over 15 years to diagnose). I started with a few of these symptoms BUT since have now experienced a good part of the list given. Could someone tell me if some or maybe even alot of these symptoms are side effects of the medications that have been given to treat them????

kimliz59
Regular Member


Date Joined Feb 2012
Total Posts : 298
   Posted 3/12/2012 10:30 PM (GMT -7)   
This list is great, and I  found a lot of symptoms here that I'm experiencing.  One thing I didn't see listed is lymph node swelling...I have read other places that some people with fibro experience that, and it's something I've been dealing with for the last few months. 
 
Has anyone here had lymph node swelling as part of their fibro "smorgasbord" of symptoms?  rolleyes
Life is not about waiting for the storm to pass; it's about learning to dance in the rain.

Possible Fibromyalgia, Rheumatoid Arthritis, Type 1 Diabetes, Grave's Disease

Maximus52
New Member


Date Joined Mar 2012
Total Posts : 2
   Posted 3/13/2012 1:43 AM (GMT -7)   
I have just discovered this site. My daughter, nearly 24, was diagnosed 9 years ago. At her worst she couldn't walk and couldn't use her hands. A pain specialist diagnosed her. She has been on Nortriptilene and Amytriptilene (sp?) This week she has been told by her GP that she is sensitive to gluten. He has also written to the hospital asking for an appointment to see a rheumatologist again. She hasn't seen one for about 3 years. He is concerned that she is so severe. She has severe weakness down the right side and has muscle spasms in her arms, legs and sometimes full body spasms. No warning - they just happen. The specialist who diagnosed her described fibro as the brain short circuiting so you get pain where you shouldn't. She also suffers the chronic fatigue and fibro fog.

kimliz59
Regular Member


Date Joined Feb 2012
Total Posts : 298
   Posted 3/13/2012 9:51 AM (GMT -7)   
Your daughter's experience sounds awful!  I'm fairly new to this site, but I hope you can find some help here--there is a ton of information and lots of nice people. 
 
Does your daughter have Chronic Fatigue Syndrome, or "just" chronic fatigue with her fibro?  Has she ever had swollen lymph nodes?  That's something I'm dealing with right now, and I know that's more common in CFS.
 
Regardless, best of luck to you and your daughter, and God bless!
 
 
Life is not about waiting for the storm to pass; it's about learning to dance in the rain.

Possible Fibromyalgia, Rheumatoid Arthritis, Type 1 Diabetes, Grave's Disease

Post Edited (kimliz59) : 3/13/2012 10:54:17 AM (GMT-6)


Maximus52
New Member


Date Joined Mar 2012
Total Posts : 2
   Posted 3/13/2012 11:48 AM (GMT -7)   
Hi kimliz59. The Chronic Fatigue is possibly a separate issue as well as being part of the fibro. Never really been confirmed. To my knowledge she has never had swollen lymph nodes. I presume you would be aware if you did - pain and/or swelling? Thanks for your reply.
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