cont my 14 year old daughter

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Regular Member

Date Joined Jun 2009
Total Posts : 78
   Posted 8/17/2009 11:59 AM (GMT -7)   
My 14 year old daughter was diagnosed earlier this summer after months & months of doctors.  She was put on cymbalta at the beginning because they said she was "depressed" & each doctor upped her dose.  When she was finally diagnosed they upped it to 60mg 1x daily specifically for the FM.  She has started to have side affects from it including loss of coordintaion, crying, sleeping all the time, freezing even when its 90 out, etc. We have decided to take her off it all together.  There are tons of websites dedicated to getting off cymbalta & forums just for that as well.  We have an apt w her FM doc this week but have started the weaning now.  I'm worried that they will try to talk me into keeping her on a lower dose.  We figure she's had FM for years & has been on cymbalta maybe 6 months.  It hasn't done her any good, only worse.
  She has an apt w a neurologist this month to see why a person her age would have FM.   
 We have spoken briefly w her school counselor who told me to come in during my daughters  orientation & we'll talk about putting her on a 504 plan.  I have been advised by friends to push for a IEP.  We feel like we're swimming in mud against the tide all the time! 

Forum Moderator

Date Joined Apr 2005
Total Posts : 17524
   Posted 8/17/2009 12:16 PM (GMT -7)   
Cymbalta doesn't work for everyone.  That's one of the problems with fibro.  What works for one person doesn't necessarily work for the other.  Hopefully, with the help of your FM doctor, you will find the right combinations that will help her.
We have had quite a few young people on this forum with fibromyalgia.  Many, including our mod Jeannie, have had it since they were toddlers.  So, it's unusual but not rare for a teenager to have fibro.  We had one girl that was 15 when she started on this forum and is now going to college.  It did take many doctor's visits for her to find what worked best for her.  So, keep on plugging away.  I'm sure she will find relief soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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