Hi to all, I have not posted for awhile but I have stopped in to read posts & check to see how you all have been doing. I have been up & down, dealing with Doctors, need I say more?
What does a person have to do to get a Doctor to listen to you? Stupid question right? Ok, I am frustrated with all of them. I told a Doctor that on the forums we try to remember that in each Medical School graduating class, half of the new Drs are graduating in the bottom half of the class. She told me that there is a saying in Medical School: "What do you call the person who is graduating in last place in the worst medical school in the country? "Doctor!!!" I had to laugh at that one.
I have been trying to tell Doctors for years that I have a problem with my lungs & I have shortness of breath. So, naturally, they send me to a cardiologist to have my heart checked. In the past 3 years I have had 4 echocardiograms, one EKG, a stress test (I failed because I couldn't breath) I have been under the gamma camera, had x-rays, been shot up with dyes & radioactive thingys & you know what they found? I don't have anything wrong with my heart. Who knew?!? So, I have been told by about 5 Doctors, over the last year, that my problem is, I need to exercise & I am lazy (said politely) & just need to push myself harder. I would say, but I can't breath!!!! And they, one and all, said "Well, it will be hard at first, but it has to be done." Anyway, a Doctor, to placate me said, "ok, we'll do a CT Scan of your lungs." Guess what? I have a lot of lung scarring & a breathing function test showed I was only able to take in 68% & breath out the same. So tell me, am I wrong to feel smug? Shouldn't I be feeling "Oh no!!!" I feel vindicated!!! How weird.
I have some muscle problems that I have been trying to get someone to look at, (Heavy Sigh!!!) so I saw yet another Rhuemy, I drove for 2 hours to see him, armed with a list of my symptoms & questions about my muscles. When I met him he had my chart that my Doctor had faxed over & he had read it. Wow, for a minute I was impressed!! But I was wrong, when I told him I had a list of my symptoms & I wanted to talk to him about some of them, he looked at me funny, shook his head & said No!! He had already dx'd me using my files. He said: I hate to tell you but you have a very severe case of Fibromyalgia with chronic fatigue. You just need to exercise more, do low impact & learn to live with it. He told me he didn't believe there was such a thing as Chronic Fatigue Syndrome. I was so upset I asked him about my hip muscles, I lost all my hip muscles 4 years ago & can't get up if I squat down. So I said that was my very first symptom, even before the Fibro, I was working, I was active & then I lost all my muscles in my hips. You know what he said? "I probably knew that it was going to hurt, on a subconscious level, & I just stopped using them until they had atrophied." I could have stayed home!!!!!
Last month when I knew I had to go to the pulmomologist, again 2 hours away, I really wanted to ask if I had to be there. My hair dresser found that very funny but I was serious, I don't think I should have to go & pay them good money to just dx me using my chart.
I should have listened to myself because after driving 2 hours to get there I saw him for 10 minutes & he said basically in 2 months I want you to have another CT scan & breathing function test done. That was it. He called me "Maam" when he came in & said "See you in 2 months, Maam." as he left. As I followed him out I wanted to say "Just call me 2 because I was you 2:00 appointment." Let's have some kinda relationship here. He obviosly didn't even know my name.
Well, I do feel a lot better because I know you all understand this kind of frustration & I don't have to worry about being judged. It is nice to have someplace to come & vent. Thanks for the listening ear. Hugs, Denise
I have: Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it. Prov. 25:11