And welcome to the Fibro Family here! I am so lucky I found this place several years ago and have made such wonderful and supportive friends. I have no idea how I would cope without them.
I'm not very knowledgeable on connective tissue disease so I'll bow to Sherrine on that one. But one of the side effects of most of the medicine you take is sleepiness, tiredness and just feeling yucky! (that's a fancy medical term we use here a lot...lol) I think most people taking that combination would be tired feeling but it does sound like you are more tired than you should be. Also, add to the fact that your immune system is compromised and you have a hard time fighting off whatever bugs are going by. Add the fatigue that goes with fibro.... you see what I'm getting at here. You are bound to need rest.
I would imagine after a while you will adjust 'somewhat' but you may not be very alert
while on that combination. I'm saddened that your rheumy isn't explaining things to you very well. Make sure to ask whenever you don't feel you are being well served by a medical person. They often forget we don't know these medications nor are we used to handling them every day like they do. If they still don't answer your questions to your satisfaction then talk to the pharmacist where you get your medication. They are the ones who know the side effects and contraindications off the top of their heads...it's their job! Get on the phone and get some answers.
Another idea is to ask your doc about
something to counteract the sleepiness. I did and wow, does it make a difference. I take narcotic medications for pain and found that sometimes while driving I would stop at a traffic light and realize that I had just had a little "power nap" while waiting. Scared me silly! So I found out about
Provigil and asked my doctor if it was reasonable for me to try it. He agreed it was a good idea and I've been taking it ever since. It is designed for several uses...1, to treat people with narcolepsy 2, to treat people who take medications that cause sleepiness 3, to help shift workers adjust. It doesn't 'buzz me up' nor force me to stay awake but for me it lets me stay more awake and alert
during the day. Some people are more sensitive to it and do get insomnia but each person has to either find the right dose or it might not be something they want to take. I am very grateful to my doctor for being so
open to suggestions...but I know he would never let me try something that was not safe and appropriate for me. You might find some information online, print it out and take it along to your next appointment.
OK, I've babbled enough. Glad you're part of the gang. Please do join us for our daily Koffee Klatch where we just have some fun. And also watch for the postings before our Chat Nights which are on Thursdays... 6 PM Pacific, 9 PM Eastern. Hope to see you there!
Play fair. Don't hit people. Say you're sorry when you hurt somebody.
(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
Post Edited (Chutz) : 9/6/2009 9:09:59 PM (GMT-6)