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New Member

Date Joined Aug 2009
Total Posts : 2
   Posted 9/8/2009 12:48 PM (GMT -7)   
I posted last week as my first post, I really appreciate the replys.

I am only 20 years old, I have been struggling with this pain about 2 years, right before I got married in 07. I can usually manage the pain until i get a flare up, which usually happens twice a year. I am in the middle of a flare up and i just feel so alone. Most doc says its fibro but I havnt found a doc willing to really try to treat it. Before I gave up I decided to go see a othro surgeon because my knee is really severely swollen and I can barely walk on it. He did mri and x ray and it looks "frayed" but no obvious tear, he gave me cortizone shot and said it will help or we will do surgery. Came back 3 weeks later with MORE pain in knee than before shot.
I went back to see my othro and he decided not to do a knee surgery. He thinks it will damage knee more. He told me "I just cant help you here, im sorry" I feel as though that is what every doc tells me, they cant help me. Im too young to have these issues. I just feel so alone and so hopeless.

Ive seen 4 ruemys and they all suck. I need one who understand fibro and wants to help me, but the wait time for ones near where I live are months, i cant wait that long, i work full time 60hours plus, and im a full time student, i can barely make it every day with the pain and with work, I need to go on disability at work but i feel bad, and i dont have a dr who can put me on it......i need help. i dont know where else to turn. im on a NAISD and it isnt helping, nothing helps.

every since the dr told me he couldnt help me last week ive been so depressed, I dont feel like anyone understands and I feel so alone. I can barely drag myself out of bed because I cant go on living like this, but i feel there is no hope. I dont have the passion or energy anymore to look for more drs, i want to give up but i know i cant......i need help.

please someone help........

Regular Member

Date Joined Feb 2008
Total Posts : 278
   Posted 9/8/2009 1:14 PM (GMT -7)   
There is always hope. We will always wake up stiff and with pain, but life goes on and the world still turns. We can not waste the energy feeling sorry for ourselves.
I do not see a Rheumy because it seems to me they are as baffled as we are. Excercise, eat right, and stay a part of the world and you will be fine. Everyone has their own challenges to embrace, we have FM.
Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005

Forum Moderator

Date Joined Apr 2005
Total Posts : 17557
   Posted 9/8/2009 3:20 PM (GMT -7)   
I'm so sorry you are having all of these problems.  I know it doesn't seem fair being sick at such an early age.  I started with all of my health problems in my 20's also.  But, there is always hope, as long as you continue with the search. 
I do understand what you are saying about the doctors.  It's the same for me.  Either they don't know what I have and what causes it or they do know what I have and can't do anything about it!  It can be irritating but I never gave up and have had a full and enjoyable life.  We are here to help you. 
I don't know where you live but, if you are in the US, here is a link to some doctors that treat fibromyalgia in each state.  Maybe one is close to you.
I don't see a rheumatologist, either.  I use a board certified Internist as my doctor.  They treat the whole body and I have had luck with them.
Did you get a chance to read the Fibro 101 thread...the first thread on the forum?  You might get some ideas for things that will help you.  You will learn a lot about fibro, too, and knowledge is power.
Try to think more positively about your situation.  I know that can be very difficult when in a flare.  I've been in a flare all summer.  It happens to me every year but, the thing about a flare that is good is that it does end.  So, look to each day with anticipation and look at all the things you CAN do and I think that will help you get control of this. 
I do hope you start to feel better.  Let us know how you are doing.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

solar powered
Veteran Member

Date Joined Nov 2007
Total Posts : 538
   Posted 9/8/2009 6:52 PM (GMT -7)   
I am sorry that you are having so much pain. I think maybe you should get a second opinion about your knee. With the swelling being so severe, that has nothing to do with your fibro. His use of the term "Frayed" concerns me also. Whatever is frayed may be getting caught or pinched in the joint? I have lots of orthopedic problems and find it hard to believe that nothing can be done for your knee. If you can get some help with the knee pain I would think it should help your fibro pain some also by getting rid of a source of pain. Hope that makes sense. Good luck. Lisa
If I can laugh at it, I can live with it.

Regular Member

Date Joined May 2009
Total Posts : 138
   Posted 9/9/2009 8:12 AM (GMT -7)   
hello, im so sorry about your pain and depression. you are far too young to be suffering like this."not that theres a good age for suffering." i too have heard from many drs. that they could not help me. when i asked my former gp if i might have fibro, he said,"yes i think you have it but theres nothing you can do about it so i wasnt going to tell you". can you imagine that? i immediately found a new dr. anyway, you may need to find new drs. who have a better understanding of fibro and the depession that usually accompanies it. are you on an anti-depressant? i also believe your pain is being under treated which is ridiculous, although it is common. if you are prescribed pain med. you could take it and after it starts working and then do some light exercise. it will help with your pain and depression.( or it should). im sorry you feel so depressed but please dont give up hope. i know thats easier said than done. ive been where you are. my husband has always helped me, as best he can. if you can, try to lean on your husband for moral support. knowing the main person in your life is there for you can help with your depression. also an anti-depressant usually helps with pain, if you find the right one for you. i wish you the very best. let us know how you are doing.

Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 9/9/2009 10:11 PM (GMT -7)   
Have you been evaluated for Lyme Disease? The swollen knee getting worse after cortizone is a red flag. Go over to the Lyme Disease forum and do a little reading. Lyme is frequently misdiagnosed, the test is unreliable.

If it is Lyme, treatment may give you your life back.
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