My doctor can't decide....How long...

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Regular Member

Date Joined Sep 2008
Total Posts : 211
   Posted 9/15/2009 9:48 AM (GMT -7)   
My doctor can't decide if I have fibromyalgia or if it is from all my other medical condtions.  How long did it take for you all to be dxed?  Did other things come up first?

36/f   proud single mom of 2

Diagnosed with GERD/Acid Reflex 2002

Diagnosed with IBS 2007

Diagnosed with Arthritis 2007

Diagnosed with UC, then Crohn’s 2008, now the GI isn't sure which is it exactly...he calls me a strange case.

Diagnosed with Generalized Anxiety Disorder 2008

Current medications: Asacol 2 tablets 3X daily, Imuran 50 mg daily,Endcort 3mg 2X daily, Pentasa 2 500mg caps 2X daily, Prilosec 20 mg 2X daily (if needed), Cymbalta 60 mg daily. 05 mg Zanax (if needed) Probiotics, Calcuim/Mag/Vit.D. Flinstones multi with Iron and Vit. C 500mg daily

Regular Member

Date Joined Jul 2009
Total Posts : 236
   Posted 9/15/2009 10:55 AM (GMT -7)   
Hi.. Hope today finds you in a good day . turn turn tongue
I am sorry you are having probelms finding a DX .. with me .. about 10 yrs for the Fibro DX . ... I'm sure there is something else still going on .. But we have not found it or been able to DX yet..
it can take years and years to finally rule out enoughto get the corect DX .and then it sems we still develope new things to go with it. crazy is all I can say . it becomes a crazy mess.
Wishing you the best of days. Take care  yeah
Spirit ~

Veteran Member

Date Joined Apr 2009
Total Posts : 673
   Posted 9/15/2009 12:24 PM (GMT -7)   
I went through a battery of tests before I was diagnosed. And then it seems I keep finding new things to go along with it. Just hang in there. I know it is frustrating not knowing what is going on, but, eventually, you will get an answer. Good luck to you.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. Dr. Seuss

Sera Smiles
Veteran Member

Date Joined Nov 2006
Total Posts : 671
   Posted 9/15/2009 3:55 PM (GMT -7)   
From when I began asking questions and scheduling visits to multiple docs, it took roughly 18 months for an official Dx of FM. Before that I was Dx with MCTD, [mixed connective tissue disorder]. My official DX came from a brusque and ill-mannered rheumy who told me that MCTD did NOT exist, and he would never ever entertain the notion of anything Rx for pain relief. I never saw him again. I can not tell you how many docs I saw, but reality is that my story is everyone's story. Hang in there, do a lot of reading, don't let others set your response to this health challenge, and keep an open mind while being protective of every breath. Good luck and never stop trying to unravel the kinks in your health. You will be stronger because you believed in yourself.
"A butterfly is most vulnerable immediately after its' metamorphosis."
Dx FM- 2003
Rx Meds- Ultram, Toprol, Cymbalta, Ambien
OTC meds [PRN]- Aleve, Benadryl, B Complex, Vitamin D, Omega 3, Multi Vitamin

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