Hey everyone!! My name is Emily and I was diagnosed with FMS about a year ago. It has been a very looooong haul for me. It all started about 3.5 years ago. My youngest was about 6 mo old. My oldest just started preschool. She cam home sick several times. My immune system was not used to the onslaught of new strains of virus' and I was hit hard. I spent about 6 mo-1 yr constantly sick. I got mono, flu, walking pneumonia and a slew of other colds and stomach bugs. In that time frame I also had a bad accident in a car and on a horse, both I feel played a part in this. I truly believe that this time frame of about 1 year was enough of a tramatic time on my body that it awakened the beast within. It was like my body just couldnt recover from each attack and finally something else took over. I developed a sever anxiety disorder. (which is now under control without meds, yay!)
Whatever this is I am dealing with, I believe i have always had. I dealt with alot of pains growing up. I have read articles that have suggested that some patients can remember having severe "growing" pains as children. I definatly did. In fact my mom to me to an orthopedic Dr when I was 13 because I was in so much pain. The Dr then couldnt find anything "valid" wrong. We went on our way...So I believe that this has indeed been ongoing since childhood, but was more dormant than active.
I started actively pursuing a diagnosis about 2.5 years ago. (before i'd just go in say I dont feel well and they say "you check out fine" and send me on my way). I knew something wasnt right. I felt terrible. I couldnt think straight. My body was weak and neurologically i was off. They ran a slew of tests, nothing out of the ordinary. ANA was fine. No Lyme. No deficiencies. D was perfect! B, the same. Did an excruciating 4 hour glucose test....perfection. MRI's clear. EKG, EEG, clear. NCV, fine. Ugh. You get the picture... everything was peachy keen! Except the way I felt.
So they desided to start treating symptoms. I was on Topomax for headaches. It messed with me emotionally something fierce. No headaches, but we almost divorced. It was THAT bad. It made me MEAN. Then Lyrica. I couldnt see strait I was so tired. Stopped that (though may try again). CYmbalta, put me in a great mood. Did nothing for my pain and gave me HORRIBLE twitches, affected our sex life, constipation, ect ect. The side effects sadly, outweighed the one benefit. Thankfully, I came off it with no withdrawl symptoms.
I have seen 7 Drs. Everyone has a different opinion. I see a Dr next MOnday who is supposedly very good at difficult cases like mine. He is in my mother home town, not mine. So he would not be a permanent Dr. I am hoping to at least get pushed in the right direction once we get settled in.
I honestly suspect it's not just one issue. I think FMS is definatly in there, but that something else is going on. I had a Dr suspect I was in the early stages of Lupus and just not to the point where it can be firmly diagnosed. I have started developing problems with my lungs, so we may be getting closer to that diagnosis. Who knows.
I work hard at this. I am constantly reading about ways to improve my health and deal with this. I do yoga, pilates, and looking at starting ballet. My biggest goal is to get some of this access weight off!!! I have imbalanced hormones, so it's been very difficult. I dont gain weight, I just dont lose any either!! HA! Once we get fully moved, it will be easier on me. I will have access to a gym and be able to walk every day. Right now, I am not able to do those things. I am looking forward to using a treadmill or eliptical!!! YAY.
Other than this disease, which is just ONE part of me. I am also a mother to two wonderfully amazing kids!! This is our first year at homeschooling and despite my challenges, it has been wonderful! It has truly brought us all closer together!!! My husband got a great job in memphis, TN and we are in the process of moving. We'll be fully moved the first week on Nov and we are very excited!!! I am REALLY into animals! I have an afghan hound and 2 cats. My cats are my flare up comforts. In fact, I know I am about to flare because they will suddenly be glued to my side. They stay glued to me until it's over. I always know it's over because all of a sudden, they stop following me everywhere, then usually that day, I feel tons better!! I have alot of hobbies! Reading, puzzles, riding horses (though my less since my accident, it was pretty bad), bird watching, hiking, ect. I try to keep as active as possible, because, well we ony live once!!!
My goal is to learn to cope and find a treatment program and medications that help me live a more normal life. I'm so ready to get back to living!!! I love life and love experiancing all it has to offer!! So I am ready to get out there and DO!