Hot Flashes with Fibro?

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Regular Member

Date Joined Mar 2008
Total Posts : 263
   Posted 10/4/2009 6:38 AM (GMT -7)   
Hi all, I am 52 and was told last week I have Fibro. I have had really bad hot flashes for 7 years. My Dr. told me 3 years ago it was not my harmones but my health causing them. I went thru change 8 years ago. Early after losing my husband after 22 years. Anyway I cannot stop these STUPID hot flashes and I was wondering if anyone else has them with Fibro. I have tried EVERYTHING in the book. I have had IBS for 28 years and cannot take anything for them anymore. I just started Savella and one of the side effects is HOT FLUSHES! EEKKK! And what is the difference between hot FLASHES ans hot FLUSHES smhair I just thought I would see if anyone else with Fibro has hot flashes also.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41838
   Posted 10/4/2009 9:01 AM (GMT -7)   
I have them all the time, but I am 50 so I thought that they were menapause. Could be fibro I guess.

I hope that they subside for you. I know how uncomfortable they can be. I usually get them at work. Am always warm where everybody else is freezing.

I hope that you feel better soon.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 10/4/2009 1:04 PM (GMT -7)   
I have been through menopause and still get hot flashes sometimes. I seem to get them
when I am flaring and notice it is worse in the evening.

I do take Savella and hot flushing is a side effect. I don't know if I could tell the differance
between a hot flush and a hot flash. All I know is that they are annoying and it feels like I
am emitting hot radiant steam from my body. I keep telling everyone heat is good for fibro,
but not this heat!

Good luck to you, and if you do find a cure, please pass it on

MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 

Regular Member

Date Joined Sep 2009
Total Posts : 84
   Posted 10/4/2009 1:23 PM (GMT -7)   
YES!!! I get them and meno for me is a very very long ways away. Though maybe flushes?? I get hot and yucky sweaty, and doctors have said maybe you sweat alot?? haha yeah so that my hair drips sweat for two three sometimes more hours in a row? Sorry the hot flashes or whatever they are is a sore spot no one seems to want to address so if you get the answer let me know

Regular Member

Date Joined Jun 2008
Total Posts : 289
   Posted 10/4/2009 3:14 PM (GMT -7)   
yes i get them all the time... and like Watashi to the point my hair is soaking wet...

its because with fibro our temperature gages are not we react different to hot and cold
Diagnosed - fibromyalgia 2001
Meds amitryptilene 30mg/day
Lyrica 75mg/day

Veteran Member

Date Joined Mar 2009
Total Posts : 599
   Posted 10/4/2009 6:12 PM (GMT -7)   
Hi, I do not get hot flashes/flushes but very cold ones. My temperature gauge is definitely off - if I am not warm enough I sweat to the point of needing to carry around paper towels with me, but it is a very cold sweat. My hair gets sopping wet and so do my clothes. I am frankly really miserable about it and don't know what to do. I am 41 and could be perimenopausal, but all my relatives went thru menopause after age 50, so I doubt it. Today it is rainy and cold in Anchorage where I live - I was doing the dishes this afternoon (very slowly and languidly, watching the rain, listening to music) and started sweating because I was cold. And my heat is on 75.

I try to spend some time each weekend counting my blessings and being mindful of what I am grateful for, because there is so much to learn in life and on this fibro journey. But I just don't know about the cold sweaty thing. How weird is this??

Regular Member

Date Joined Sep 2009
Total Posts : 124
   Posted 10/5/2009 10:56 AM (GMT -7)   
Littleneck, my sister went through menopause in her 40's and I'm 56 and still not through, so don't judge by family experience necessarily.
fibro, migraines, ibs

Regular Member

Date Joined May 2009
Total Posts : 30
   Posted 10/5/2009 11:01 AM (GMT -7)   
Yes, espeically if i am doing any type of strenous work.. i almost pass out on several occasions!
"We all have many obstacles in out life, some of us have more then others.
 Mine may have limited my options, but it will never limit my possibilities"

New Member

Date Joined Jul 2009
Total Posts : 5
   Posted 10/5/2009 2:41 PM (GMT -7)   
Yes I've been getting them for years too, now I am starting into menopause, almost glad cause now I just say menopause grrrrrrrrr. Was embarrassing in my 20's.

I've never taken anything and still don't, but now that i am entering into menopause, they seem better, go figure.

After coming off my anti depressant, they seemed to subsided a bit. Not sure if this was the reason.


Regular Member

Date Joined Mar 2008
Total Posts : 263
   Posted 10/5/2009 7:48 PM (GMT -7)   
Thanks to all of you. My hot flashes have been such a problem for years. I am going to a new Dr. and I am going to tell hom about the hot flashes. My other Drs. just ignored me like they didnt matter. I wish all of you would also tell your Drs. Maybe they will put hot flashes on the LONG list of symptoms. But it makes me feel so much better to know I am not alone. After this and IBS I know what the saying Misery loves company means. It just means it helps to know that someone truly understands how you feel. I wish I could tell you that something worked for me but I havent found anything that works except I air on my face at the very start of one. I carry a small fan in my purse or use a card. Carry around greeting cards in my purse. Thanks again.
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