New to forum, looking for any suggestions

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Oct 2009
Total Posts : 4
   Posted 10/4/2009 12:35 PM (GMT -7)   
Hello to all of you, I am new to the forum world. After having seems like my worse day ever, well one of them, per some recommendations and the many times I've thought of seeking suggestions from any place else I thought what's to lose? So here I am. I'm not very familiar with Fibromyalgia, I have been officially diagnosed with in the past year but believe to been experiencing symptoms for years. My past consist of, after experiencing 8 years of major back pain and degenerative disc disease I had back surgery (anterior/posterior spinal fusion L4-S1) at age 31, after approx. 3 years of healing, rehab and being to the point I can say it was the better of the alternate choice of living on pain meds for the rest of my life. Had my second child after 15 years, she's a handful but also the joy of my life, preg.and deliver went well. And needless to say, never a problem with my back. A year after my dtr. was born in 2006, I had a full hysterectomy, decided after finding my uterus never went to "normal" and I had fibroids and ultimately Endometriosis. Surgery and all to that point went well. But since I have never felt "GOOD" again. I currently experience daily pain throughout my body, hands, wrists, ankles, hips, arms - basically the only thing not hurting daily is the top of my head and that's when I don't have a headache and something new I seem to be having some vision problems, hard to see the screen so typing this was a little challenging, forgive my sp...

I'm currently on the following medications:
Cymbalta 60mg/1xday - been on over a year
Estro-test?sp 1xday (which I know is for hormone replacement) - been on over a year
Klonopin .01/2xday - been on about 2mths
Lipitor 600mg/1xday - been on over a year
Lyrica 175mgs/2xday - started about 6 weeks ago, worked upto 300mgs/day

I am seeing a rheumatologists who started my on the lyricia, I began water therapy and than discontinued because it was not doing anything, i was evaluated for PT specifically for Fibromylgia and was d/c before I began, due to my flexibility and strength non issues and as far as I've been taught and do in general daily stretching - I suffer daily no matter what I have tried it seems to be getting worse when I have those horrific days and lasting longer, I return to see my rheumatologists this week and right now am left with no words, but HELP...Anyone have any suggestions?? Experiences? I am 38yrs old have a wonderful and supportive husband and terrific kids, I'm sick of feeling like this and I can't imagine living into my 50's??? OMG, can you imagine..

Regular Member

Date Joined Sep 2009
Total Posts : 84
   Posted 10/4/2009 1:18 PM (GMT -7)   
Yeah, and oh i've imagined, i'm just finishing my PhD and a lot of days i can't even stand to think about it in just my 40's. I know tons of people say heating pads and hot baths, i don't do heat makes me sick i actually like the cold instead. When i hurt he worst i resort to music, or just watching a movie to try and take my mind off the pain. I find the less stress the less pain, but as like today thats not always the case. I know personally i've tried drugs I know professionally don't treat the pain, but rather treat something that unfortunately is not in my head. But in sheer desperation did it instead of listening to my body. To be honest i take narcotic pain killers now, but it was a trade up. It's sad when one turns to narcotics to be more sober and free of other drugs side effects. In the first few years i fought tooth and nail against this "thing" happening to my body, i was very angry just because i didn't like it and it hurt so bad. I was jealousy that i got to watch close friends and family go on doing the things i loved so much, but didn't want to, and more so didn't want to admit because it just hurt outright. The doctor who gave me the nice lecture about how the pain was in my head really did it in and i just kinda exploded, my degree, yes is in the psych field so honestly at that time i got very mad and threw in his face that unlike him i was actually qualified to make this call. True as it maybe shortly there after sitting in the office of pain management doctor it finally came to me, the fight the anger, denial, and despair really only made me feel worse both physically and emotionally and they both really really affected how my body reacted. And finally after all these years i stopped thought about it and applied a lesson i learned years ago as a small child in martial arts class, listen to your body it is the one thing that has no hard feeling about telling you the truth of your own limits. Since then i find more good days then bad, and the bad are easier to deal with.

Well anyways Hi and Welcome, lots of loving, caring, and understanding people here with lots of good ideas.

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 10/4/2009 1:37 PM (GMT -7)   
Hello and welcome to the forum. If you haven't already check out the fibro 101 thread,
on the top left side of the page, there is lots of good information.

You are luck to have a wonderful and supportive husband and kids, that goes along way
with helping you deal with fibro. It makes it easier to cope, when you have a back-up team.
I am lucky to have great support too!

I have degenerative disc disease also and have gone through rounds of physical therapy, and have had back surgery; a lumbar laminectomy. It really has helped me.

Fibromyalgia is very frustrating as you know. Fatigue and pain go hand in hand. Learning
to pace yourself is so important. I find that a combination of walking, stretching using
light hand weights and elastic bands help me. I am also a big believer in soaking in a
hot bath doing relaxation therapy, deep breathing exercises is a good thing. Moving is a
good thing, muscles can become stiff and sore if you don't exercise.

I take Savella 50 mgs 2x daily and I do use Flexeril when I am flaring.

I am so sorry you are hurting but glad you have joined us. Come back to post often!

MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 10/4/2009 2:13 PM (GMT -7)   
Hello nowjustsurviving, and welcome. This is a great place for support and sometimes advice as well. It sounds like you are being undertreated for your pain. I would suggest you take your supportive Hubby with you on your next visit. he can attest to how miserable you are. The rheumy sounds as though he's fallen for the Cymbalta and Lyrica hype. These are both relatively new Drugs and even the docs can't say how they work, if asked. The cymbalta has a SNRI in it which can increase anxiety. Anxiety feeds the pain. The lyrica I can't say much about, but I know it's also not fully understood how it works. I hope the rheumy can offer something a little more pain targetted. Good Luck.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.

New Member

Date Joined Oct 2009
Total Posts : 4
   Posted 10/4/2009 6:50 PM (GMT -7)   
Hello to you all, thank you for all your input and suggestions. I look forward to reading and learning more. I have a Dr. Appt. on Tuesday and I'm hoping that some understanding can come from it. I think only someone who has the "?disease" can understand what you go through and the how do you explain to someone that YOUR WHOLE body hurts like hell...Again thank you all and good luck to you also..

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 10/5/2009 7:16 AM (GMT -7)   
Hi nowjustsurviving and welcome. I spent the first few years of having fibro being angry and jealous of those that didn't have it but it didn't help one bit, I still have fibro. I think Watashi hit it on the head, it does nothing for us to be angry but cause stress which causes more pain. It's a hard pill to swallow and I imagine worse when you have small children but listen to your body and spend the energy you spend being angry on how to live with fibro. We can do most everything we did before but we have to pace ourselves and figure out how to simplify our lives to make less work for us. I've done a lot of weeding of the things that aren't important that take energy, that I don't  have, and I'm still looking for ways to simplify my life. I may be down to the bare minimum in my house before I'm done but the less I have to take care of the better.
Some people have had great results with lyrica and cymbalta and others haven't. My rheumy doesn't seem to have much faith in lyrica. Our doctors are as different as we are.
Good luck and I hope you get as much out of this forum as the rest of us have.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
Vit D/calcium

Regular Member

Date Joined Sep 2009
Total Posts : 124
   Posted 10/5/2009 11:11 AM (GMT -7)   
Lyrica and Cymbalta are a good start, but I would add Elavil at night for restorative sleep and Tylenol plus tramadol in addition to the Lyrica for the nerve pain.
fibro, migraines, ibs

Forum Moderator

Date Joined Apr 2005
Total Posts : 17528
   Posted 10/5/2009 5:58 PM (GMT -7)   
Hi, Now, and welcome!  I"m so glad you found us and joined in!  Fibro is a miserable illness but there are ways to learn how to get control of it.  That's important.  You want to be the one in control...not fibro!  Our members will share what works for them and then you can try different things to see what works for you.
I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements, and vitamin D supplements for my pain and fatigue.  I also do stretching exercises, I walk, and I swim.  It is important to keep moving.  If you sit or lay too long, you will be stiff as a board.  Gentle stretches and gentle exercise like walking really to help with flexibility and pain.  You should feel better once your body becomes accustomed to it. 
Also, you need to pace yourself.  You can't do things in the same time frame as you did before fibro.  It may take a little longer to do things but they get done eventually.
We usually have a thread at the top of the forum called Fibro 101.  It was lost last week when the forum shut down for a couple of days.  I have been working on putting it back together and it should be back up in a couple of days.  It will be the first thread on the forum so keep checking for it.  There are links in there all about fibro, stretching exercises, info on malic acid/magnesium supplements, etc.
Don't hesitate to ask questions.  We are here to help you.  I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 15, 2017 10:08 PM (GMT -7)
There are a total of 2,906,011 posts in 318,912 threads.
View Active Threads

Who's Online
This forum has 158255 registered members. Please welcome our newest member, Fazer.
279 Guest(s), 6 Registered Member(s) are currently online.  Details
countingstarsx, skylav08, Girlie, OptimisTick, ExplosiveKittens, Cajun Jeff