Are my symptoms fibro?

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Regular Member

Date Joined Sep 2009
Total Posts : 41
   Posted 10/22/2009 2:23 PM (GMT -7)   
I have had pain in the back of my hips in the gluteus area, low back, knees, and behind my neck/shoulders both sides for the last few years. I also have 2 bulging discs in the L4--S1 area. My P/T therapists in the past said I also had trigger knots on both sides of my hips and in the back of my neck and shoulders.

The worst pain has been a burning/aching pain I would get around 3pm and later into the day on most days in the back of the hips. I would also get more low back pain when standing for more than 10 minutes or walking. It feels like I've walked 100 miles even though I barely walked one mile.

I am also in the menopausal stage too and I have found that since I lost an ovary the pain started to come on then and became more frequent as the years came on. I am also low thyroid and am currently taking Synthroid and Cytomel. I have found that some of the pain is better in the morning, less stiffness and achiness and I am able to do some light exercise since upping the Cytomel dose.

I would say my pain level on most days prior to getting the Cytomel up would be about 5 and nothing I took, advil, etc. ever got rid of the pain even for a few minutes. If I rested and didn't walk, you know like sat in my comfy chair, or slept, it would subside. But then walking around even in a grocery store I'd get spasms, burning, aching and would need to sit immediately. No OTC pain relievers every helped it.

I went to a Rhemy doctor and she pressed lightly on the 18 spots and since I did flinch, she said, not fibro. I am wondering if one can have different levels of this disorder?

Could my above symptoms be fibro? And since I've read that getting T3 levels up helps and I am doing this and seeing a little relief does this mean it's fibro?

Regular Member

Date Joined Oct 2009
Total Posts : 76
   Posted 10/22/2009 9:44 PM (GMT -7)   
Has your rheumatologist done Xrays or MRI's on you? Has he/she done NCS (nerve conduction studies) and an EMG (muscle function test) ? Have they ruled out Multiple Sclerosis, Lupus, Rheumatoid Arthritis, Myastheinia gravis, etc on you?

When I went to the first rheumatologist (the first one in Pittsburgh who was doing studies on it) the first thing he did was had me X-rayed from head to toe. Then a lot of bloodwork was done.

Maybe you can call your insurance company and see if there is another doc in your area who works more with Fibro. It confuses me that your tender points are there and they said not fibro. Things that make you go hmmmmm. Good luck to you!
Major depression; Bipolar Disorder; Fibromyalgia; Spinal Stenosis; right arm and leg nerve compression; cataracts; glaucoma; IBS; RLS; hypothyroidism; B12 deficiency ... that's enough or I'll get more depressed.

Regular Member

Date Joined Sep 2009
Total Posts : 41
   Posted 10/23/2009 4:26 AM (GMT -7)   
The Rheumatologist did many blood tests and said nothing showed for lupus, lyme, etc. I've had MRI of the brain for something else and nothing found. I have MRI of the back and just the 2 bulging discs came up.

It just seems weird to me that I have pain mostly behind my neck and shoulders, and behind my hips, and my knees and those are 6 of the main areas of pain. But when the doctor pressed, she didn't press very hard and I didn't feel any pain. When I go to the massage therapist and he puts a little more pressure behind my hip area and neck it hurts, and then he presses a little harder on those knots and it really hurts bad. When I put the same pressure in the areas on my husbands body he says he feels nothing.

I just wonder if one can have fibro, but mild with knots and triggers and not all over constant body pain. Can one have pain in only some of the 18 areas? I can get up and function most days, but I always feel some stiffness and fatigue in the areas I mentioned. Since starting thyroid hormone, especially Cytomel it's a little bit better at times.

I am now adding the 2.5grams of malic acid and magnesium malate. I will see if this adds more benefit.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 10/23/2009 6:45 AM (GMT -7)   
Hi Corky and welcome. We are only a group of people with fibro and can not dx anyone but I know from my own experience fibro can present itself in strange ways. I had anxiety and fatigue for the first few years with very little pain and it took an all out flare for it all to click for my doc. Now about 7 yrs after being dxd I have pain from the top of my head to the bottom of my feet.
Have you read the fibro 101 thread at the top of the first page??? It does sound like your doc was ruling out all the other things it could be listed in the fibro 101 thread which is the first step in getting a fibro dx. Perhaps it would help if you took all the test you have had to another doc and explain your symptoms to him/her. You can also print out a list of the symptoms listed in the fibro 101 thread and see how many apply to you. Some keep a pain journal to take to their docs. The tender point test is not always reliable.
We have several members still trying to get a dx so you are welcome whether you have a dx or not.
luv and hugs
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Regular Member

Date Joined Sep 2009
Total Posts : 41
   Posted 10/23/2009 8:47 AM (GMT -7)   
THank you. Yes I read the Fibro 101 and I printed out the pain chart too. I am going to try and find another doctor to check me over and I will bring the pain chart with me.
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