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Regular Member

Date Joined Dec 2006
Total Posts : 53
   Posted 10/24/2009 10:31 AM (GMT -7)   
I just got back from my apt with the rheumy.  He says he is convinced it is Fibro.  I was surprised, but grateful to have talked to him and found out that I am not going crazy!  So many little aches and pains, some intense, some just annoying.  The symptoms have definately flared up since a miscarriage last month, which is what prompted me to push my MD for a referral.  The worst is the neck pain, upper back tension, lower back pain. The feet aren't too good either, nor the hips.  LOL _ It's easier to just mention what doesn't ache. My elbows are pretty good!  So now I have a prescription for amitryptoline, so I am hoping that will help with the trouble sleeping.  The rheumy was surprised that it took me so long to go see him, since many of my symptoms began so many years ago.  In hindsight, I agree, but going through it, no one ever stopped to put my various complaints together. I would see my doc about the neck pain one month, the next about this constant hip pain. Another trip for the pains and numbness in my hands. Not until I wrote down a list of all 30 symptoms and presented it to him did he really think about them all being connected.  Well, that's about it. Just wanted to say hi.  And share my story.  I am staying upbeat about this for the most part. Relieved to have a diagnosis.  And feeling fortunate that so far my pain isn't as bad as some people have it.  And feeling happy that I can go to forums like this and find compassion and understanding, because it seems so hard to find it among well-meaning but clueless friends and family!!

Forum Moderator

Date Joined Apr 2005
Total Posts : 17501
   Posted 10/24/2009 1:55 PM (GMT -7)   
Hi, Jamiesmom!  I'm sorry for your diagnosis but it is good to finally know what is going on.  I know many here have gone through a lot of testing to rule out other illnesses first and it's a long, drawn out ordeal.  But, once you know what is going on, then I think it's easier to accept and move on with your life.
Be sure to check out the Fibro 101 thread...the first thread on the forum.  There are links to good info about fibro and you can learn a lot there.
Many with fibro are also deficient in malic acid, magnesium, and vitamin D3.  I take malic acid/magnesium supplements and vitamin D3, also.  These have helped me with pain and fatigue.  There are links in Fibro 101 all about these and how they work in your body.
Be sure to keep moving.  If you sit or lay too much you will be stiff as a board.  Also be sure to pace yourself.  Trying to work like you did before fibro could put you in a flare.  It sounds like your pain levels are low and that's wonderful.  You want to try to keep it that way!
I'm so glad you came back and let us know what you found out.  Don't be such a stranger now.  Also, don't hesitate to ask questions.  We are here to help you.  I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

yankee girl
Regular Member

Date Joined Nov 2008
Total Posts : 125
   Posted 10/25/2009 7:30 AM (GMT -7)   

I also had symptoms for about 10 years, but didn't get a conclusive diagnosis from a rheumy until about 4 years ago. The flares, the uncertainy, the pains---it's like my body is schizophrenic! Luckily I've been on pain meds for an unrelated condition which, of course, is helping the fibro pain.

Exercise is crucial. I walk every day...if I don't, all the muscles in my legs and hips seem to seize up in spasms. I also work out with free weights. The BEST exercise IMO is swimming---and I don't mean it needs to be "real" swimming--the best I can do is a mean dog paddle and that works just fine.

Yankee girl
 severe nerve damage/several surgeries on wrist, TMJ--have titanium disks, PTSD, fibro
roxicodone, xanax

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 10/25/2009 7:52 AM (GMT -7)   
Hi Jamiesmom and welcome. I'm sorry about your loss. Getting the dx is half the battle sometimes. Now you can figure out what works best for you and it is all trial and error cause all fibromites are not created equal. I'm on amitriptyline and it does help with the pain but even it has let me down this fall.
Heat it is our best friend showers, baths, bed buddies you can get at drug stores or make your own out of a long tube sock filled with uncooked rice and tie the end shut and pop it in the microwave a few minutes. I have even found dry heat from my little heater in the mornings make my muscles feel good.
Stick with us and you will learn a lot about fibro and it is nice to have people that understand what you are going through.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
Vit D/calcium
Regular Member

Date Joined Dec 2006
Total Posts : 53
   Posted 10/25/2009 11:42 AM (GMT -7)   
Thanks for the welcomes. Yes, I am lucky my pain is not worse. I can walk, after a few limping steps to get me going. It does hurt a lot, but I have been coping with it for a wile so I am getting better at not disturbing it too much. It is hard with the two girls, as my three year old has a loud sharp voice, and I am afraid I am very sound sensitive. So now I have to work on getting her to speak quieter. But at elast now I know why I have been losing my temper with her so much lately, and now I can work on getting better control over it.
fibromyalgia, microscopic colitis, restless legs, polycystic ovarian syndrome.

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 10/25/2009 12:24 PM (GMT -7)   

I too am glad you have joined the family! The friendship here is what keeps me going. I do hope you keep posting and join us for our daily Koffee Klatches when you can. It's a little time for US to relax, read fun 'stuff' and remember that we are just like the rest of the world deep down inside, and we need to smile and laugh too. Also, on Thursday evenings we have a live chat night. I will post about that on Thursday mornings. We start about 6 PM Pacific time, 9 PM Eastern...

Hope you can join us!
Children will not remember you for the material things you provided but for the feeling that you cherished them.
Richard L. Evans

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums

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