No idea what to do

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New Member

Date Joined Oct 2009
Total Posts : 2
   Posted 10/27/2009 8:52 AM (GMT -7)   
Okay, so here is the thing. This might be a long story, but I really need help. I have been sick with headaches that do not go away with medications. I have had horrible back pain on my right side that sometimes goes to my left side. I have Irritable Bowel syndrome and it didn't used to give me problems, but now I have had horrible diarrhea and vomiting for four months now and i have lost weight, I get swelling in my hands bad on some days. I itch like crazy off and on through out the month for the last three months. My neck hurts. I was just diagnosed with Premenstrual Disphoric Disorder and i get painful periods every month too now. The docs did an ANA test on me and the first time it came back positive and then the second test was negative. They tested me for everything they could think of and it is all normal. Now i can't get my doc to see me at all anymore, even though my blood pressure was high because I was in pain and normally i have great BP and I had lost some more weight. They are not even trying to refer me out anymore to get tested and they will not see me and I am furious, is there any way I could get through to my docs and have them look at me for possibly having fibromyalgia? I am at my wits end with all this stuff, I have been feeling depressed and have not been myself at all lately and I am on antidepressants, but I am not a depressed person usually. I just need help on how I can get my doc to listen to me and get some answers already! Please help!

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 10/27/2009 9:40 AM (GMT -7)   
Hi pumpkine!

Gosh I'm so sorry you're having so much trouble getting good medical help. But now that you've joined our 'family' we'll see what we can do to offer suggestions. Welcome and glad you are here, btw!

My first suggestion is to find a new primary care doc!! If you have insurance where you can self refer then you need to see a good rheumatologist who treats fibromyalgia and try to get in right away! A rheumy is who technically will be the one who can diagnose fibro although primaries can also.

If you are having trouble finding a good primary that you know is advance is what you want then I would suggest getting yourself to the closest university/teaching hospital. If you will go to the fibro forum main page and at the top...see the first topic titled Fibro 101?? In there are links to lots of help sited and information. There is one that has a link to major university/teaching hospitals. Locate one closest to you and call them. Let them know that you are in need of a good doctor who can diagnose fibro, if that's what you have, and treat the condition for you. Also let them know about all of the other disorders that you suffer from. These places are on the leading edge of technology and will not turn their back on you.

about the's most likely not working for you any more. I have had this happen a couple of times. Doc explained to me that after about 2 years they effectiveness wanes to the point of just not working any more. Then it's time to switch to a different on. There are so many kinds and now styles with less and less side effects are always coming out.

It's all about having a great medical team if you are going to be able to handle fibro! Good luck and please keep us posed on how you are doing!

Children will not remember you for the material things you provided but for the feeling that you cherished them.
Richard L. Evans

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums

Regular Member

Date Joined Jul 2009
Total Posts : 223
   Posted 10/27/2009 12:44 PM (GMT -7)   
It took me a year to get my primary doctor to finally listen to me about the pain and itching. For some reason they seem to block this out...not sure why that is. It was when I spoke of my hands and arms hurting that he finally looked at me and listened. This was after I had had a gall bladder removal and found I had cirhossis of the liver from fatty liver and a blood disease. But he did listen...and since I've seen a rheumatologist and officially been diagnosed with fibro and given some relief. They do come around when the right words are spoken I suppose lol.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17501
   Posted 10/27/2009 2:28 PM (GMT -7)   
Hi, Pumpkine, and welcome!  Yes, I agree with Chutz that you need another doctor.  I see a board certified Internist but many use rheumatologists.  The good thing about an Internist is that they are like a general practioner but have more education.  Make sure they are board certified and if they are diplomates, that's even better.  They have to take regular tests on all the new things in medicine in order to keep the title of diplomate, I believe. 
Link number 12 in the Fibro 101 thread talks about getting a good doctor.  It would be good to get copies of your medical records from your doctor.  You can tell them you are keeping a file of your health problems and tests that have been run.  Having these records might keep you from having to go through the same tests again.
You might want to see a gastroenterologist, too.  The fact that you are losing weight should be checked out.  They can help you get control of the diarrhea and then you would be feeling better.
I am glad that you found us and joined in.  Let us know if you find a doctor.  We really do care.  Hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

New Member

Date Joined Oct 2009
Total Posts : 2
   Posted 11/5/2009 9:33 AM (GMT -7)   
I did find a pain management doc yesterday, but they only do injections for pain, and I have seen the GI doc when I had my eno and colonoscopy. I do itch a lot. To the point I make my skin bleed sometimes. I am still having a lot of pain and I am trying to get in the the rheumo doc but they said they won't see me either. So maybe the pain doc can diagnos me with it and I can finally get some relief.

Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 11/5/2009 7:31 PM (GMT -7)   
I suggest you find a new doc ASAP and get a full workup. Don't accept a fibro diagnosis until they've ruled out everything else. Your painful periods and gastro symptoms could also be from endometriosis.

What does the gastro doc suggest you do for the diarrhea?

Regular Member

Date Joined Jun 2009
Total Posts : 439
   Posted 11/6/2009 12:18 AM (GMT -7)   
PMDD is NOT fun.
As for the headaches they are not fun either.
I suffer from both ...
tips for the headaches:
1) drink a full glass of water immediately, then if you still don't feel better within an hour and are still awake, try another glass of water.
2) lay down and sheild eyes from light, don't watch TV or go on the computer, and if you feel really bad, don't even read or craft
3) consider asking your dentist for a Bite Guard if your spouse complains that you grind your teeth at night (I guess I dream about food or something becuase I am constantly grinding my teeth while I sleep. This can cause hundreds of pounds of pressure and massive headaches)
4) try a warm shower to relax tension in the neck and shoulders. if that doesn't work alternating cold and hot water for 10 seconds each can get the blood flowing and reduce tension as well.
5) if only one side of your neck or head hurts, massage the opposite side. I have a theory that tension in the neck causes pain in the opposite side.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 11/6/2009 6:53 AM (GMT -7)   
Hi Pumpkine and welcome. You have been given great advice already about finding a new doc that believes in fibro. Sadly, that is half the battle for some.
I live with a headache to some degree all the time and have for years. Neck problems can cause headaches cause the nerves from the neck go up over the top of the head and I know that is a lot of my headaches. IBS is common amongst fibromites. What all did the gastro doc check you for??? There has to be a reason someone vomits for four months.
I really hope you find a great doc and get answers soon.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
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