Hi, My name is Lynn, I'm from New Zealand, but am now living San Diego. I'm dyslexic so forgive the spelling errors especially where I use a correct word, but it's not the right word for the sentence.
I work from home, doing a thing called SEO, which is making websites do better in search engines, or rank highly in search engines.... because of my fibro, I work from a lazy-boy chair with a laptop on a pillow and spend no less than 12 hours a day, often at least 16-20 hours a day at my computer.
I'm new to this forum, but not new to Fibro I've been diagnosed for about 15 years and probably had fibro for about 17 years at least.
When I first was diagnosed my whole world seemed to crash in, while at the same time it was a relief to find out something was wrong and it wasn't "attention seeking" or "all in my mind"
My best advice is don't let fibro become who you are, I have fibro, just like I have brown hair and hazel eyes, it's part of my make-up, it isn't going away. Please don't think I'm being flippant, but seriously the more you let fibro control your life the more it will control your life. Find out for you what causes a flare-up and avoid, if you can those situations.
I became obsessed with fibro, wanted to know all the symptoms, then waited for the symptoms I didn't have to appear, stalked forums like this when I got a computer, and read and hung on to all the bad, sad and terrible posts....
My, then 8 year old daughter talking to her friend gave me a break-through. My daughter told her friend,
oh, I help my mother, cause she's gets sick all the time, like when she goes shopping for food and stuff, if she goes down the smelly aisle (the aisle with cleaners and chemicals) she gets crippled up and can't even walk to the car, but if I go and get stuff out of the smelly aisle, she doesn't hurt so much...
Over the coming weeks I found that my daughter was quite correct, I did react badly to smells, after turning off the plugin air freshener, just doing that thing alone, my constant pain levels decreased massively, then getting rid of anything in the house that smelled, mainly cleaners that had a strong smell, and starting to use baking soda and vinegar as a cleaner, baking soda as a deodorant, both for person deodorant and smells around the house. And of course avoiding smells outside the house like the smelly aisle at the supermarket by seemingly constant pain diminished drastically.
The downside I suppose you could say was that when I was exposed to strong smell's I seemed to have a stronger reaction. But those flare-up were further apart, and easier to cope with because I often knew or could think back to what had caused them. I also knew that the flare-up would be over in a couple of days if not sooner. If the smell was in a restroom, where they use some smelly thing rather than cleaning the restroom properly then the flare-up although bad would be over within 3 or 4 hours.... knowing for sure the pain would end was a break-through.
Over the years, I've found that practically anything that shocks the senses, like loud music.... which I used to love, bright lights or strong sunshine, strong tastes, getting a fright from something, anything that is a shock will cause a flare-up.
I live a quiet, chemical free life now, and find that for the most part, my flare-ups are a thing of the past.
I thought it was time to come back to a forum like this and give newly diagnosed fibro suffers some light at the end of the tunnel
But to the people that have had fibro for a while, have you found that a shock of some kind, whether it be almost having a car accident or change in the weather, or smelling a strong smell, something that causes a shock to one of the senses will often start a flare-up.
Ok, that's enough for now...
Many thanks to the forum for being here, I hope I can give back something.