Desperate for answers!

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New Member

Date Joined Nov 2009
Total Posts : 1
   Posted 11/6/2009 1:30 PM (GMT -7)   
Hello everyone, I am new to the forum. I have really been struggling with my health for the last 7 months. I feel like my body has gone haywire. Last week my dr. told me she suspects its Fibromyalgia but I'm not so sure. I don't have any localized pain. My major symptom is an all over flu-like body ache. Just like you feel when you have a fever except I have no fever. Also my eyes burn like crazy. I will wake up and feel ok but after I am up I know its coming on because my eyes will start to burn and then my body starts to ache. It really feels like the flu! Except its everyday. On a good day, it won't come on until the evening. On a bad day it will come on as soon as I get out of bed. I feel like I am sick, but I don't look sick. My dr. has run so many tests.She did a complete CBC w/ diff. which was fine. I have had an ANA test, SSA & SSB antibody test, Sed rate test, C-reactive test, Double Stranded DNA test, Mono test, EBV test, CMV test, which all came out negative. I could just cry. I have been so desperate for answers to what is wrong. This has literally stopped me in my tracks. My internal Medicine Dr. now says Fibromyalgia but I haven't seen a Rhuematologist. Could this fever like achey feeling possibly be Fibromyalgia? Any input would be greatly appreciated. I am so desperate for an answer to this. I just want my life back.

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 11/6/2009 2:23 PM (GMT -7)   
Hi Heather and welcome to the forum! Your doctor has taken the necessary tests to
rule out any of the connective tissue diseases, which is a great first step. Fibromyalgia
mimics some of the CTD's. Have you had a tender point exam? There are 18 designated
points on the body that are tested for tenderness for diagnosis. Your description of feeling
flu- like is a description used by many of our members. I was diagnosed by a rheumatologist. It took along time to get my diagnosis. Many of us wait months or years.

Check out fibro 101, it is the first thread on page one, there is alot of great information.
Keeping active is important, it helps relieve stress. Find an exercise you enjoy, it helps
with the stiffness and achiness; stitting idle will only make you hurt more.

Try to get enough sleep it will help with the pain and ease some of the fatigue.
Heat is a fibromites friend, take hot showers and baths, use heating pads and bedbuddies.

I take Savella and flexeril to help with my symptoms.

I am glad you have found our fibro family, people here are willing to help and give you support. Keep posting, ask questions there is alway someone here who cares.


MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 

Forum Moderator

Date Joined Apr 2005
Total Posts : 17501
   Posted 11/6/2009 2:25 PM (GMT -7)   
Hi, Heather, and welcome!  Yes, many feel like they have the flu.  Actually, that's how I'm feeling right now.  I have all over achiness and my head feels heavy and my eyes are at half mast.  There is fatigue involved, too.
Be sure to check out the Fibro 101 thread...the first thread on the forum.  There are links to good info about fibro including a list of symptoms.  You might just see yourself there. 
I was diagnosed by my Internist many years ago.  I have never gone to a rheumatologist because my Internist did all of the testing.  But, if it makes you feel better, then go.  You have to feel comfortable with a diagnosis.  Many members use rheumatologists as their doctor for fibro.
I'm so glad you found us and joined in!  Don't hesitate to ask questions because we are here to help you.  I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Nov 2009
Total Posts : 29
   Posted 11/6/2009 3:17 PM (GMT -7)   
I had flu like symptoms and extreme fatigue for several years before I started having other symptoms, so yes, it could be fms. Or it could be something they can cure with meds. Let's hope for that.

Veteran Member

Date Joined Feb 2009
Total Posts : 843
   Posted 11/6/2009 3:47 PM (GMT -7)   
Welcome Heather. 
It sounds like your doctor has tested you for the same things many of us are tested for.  It's good to have those illnesses ruled out.  My flares feel just like the flu.  Many times I have taken my temperature to see if I was running a fever.  Of course I really wasn't.    For months before I was diagnosed with fibro I was experiencing severe dry eye syndrome which caused my eyes to burn and the lids were irritated.  I was using moisturizing drops all the time.  I had a procedure done to my eyes eventually and it has helped a lot.  I read that dry eye can be associated with fibro.
My primary doctor is the one who dx'd me and I still go to him for the fibro.  I have other things going on with this aging body of mine and I am comfortable with him treating me for the fibro too.
Glad you joined us.  You will gets lots of info and support here.
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
On the eighth day God created Golden Retrievers.

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