Does coffee make your symptoms flare?

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need some zs
Regular Member

Date Joined Nov 2006
Total Posts : 143
   Posted 11/10/2009 3:37 PM (GMT -7)   
Just wondering. I drink coffee every day -- half-caf, not full strength. I love it. I've given up almost every other drink I love for the sake of this illness (soda, alcohol, most juices) . But my symptoms seem to get worse after I have had coffee in the morning.

I gave it up for a few weeks about 2 years ago and felt no different, but I'm thinking of trying again. Has anyone had/heard of anyone being affected by coffee (with or without caffeine)?

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Date Joined Nov 2008
Total Posts : 2858
   Posted 11/10/2009 3:49 PM (GMT -7)   

Very interesting question.  I have developed so many food allergies since my fibro dx that it's frustrating to figure out what to eat every single day.  I get extremely hyper on coffee but never noticed pain level changes.  It's strange that many pain killers have caffeine in them...Excederin, Anacin, Percogesic...supposedly because caffeine helps relieve pain.

I personally have not noticed any diet change worsens my symptoms.  I won't give up the chocolate!



fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

Regular Member

Date Joined Nov 2009
Total Posts : 173
   Posted 11/10/2009 4:50 PM (GMT -7)   
No I have not noticed this either. Actually having a cup right now. Usually do not drink any in the evening but live on the NC Coast and getting the Ida rain now. Coffee just sounded good.
In the middle of a flareup anyway so it is time to pamper myself so I will return to my Good days again!
Good thoughts your way All!


Regular Member

Date Joined May 2009
Total Posts : 447
   Posted 11/10/2009 6:02 PM (GMT -7)   
Coffee is something I have very rarely because for me it can bring on a flare in no time, if I have one it wil only be half strength. It is just one of the things I know will bring on a flare, I do not eat flour now any type as it also brings on a flare. I think with this illness it is a personal thing as too what brings on flares I have a som with fibro and he has different foods he can not eat.


Regular Member

Date Joined Nov 2009
Total Posts : 29
   Posted 11/10/2009 7:50 PM (GMT -7)   
A few years ago, I gave it up just to see, but I didn't see any difference. I guess it's one of those things that is different for everyone. It doesn't take much sugar to drain me of energy though.

Regular Member

Date Joined Mar 2009
Total Posts : 285
   Posted 11/10/2009 11:32 PM (GMT -7)   
Personally, I couldn't get through the day awake without my caffeine. I take it in caplet form, which is about the same as 2 cups of coffee, and try to avoid it in drinks and food, if I have a cup of coffee, I skip my next dose. It's helped me a lot, and I use it at my dr's suggestion rather than try to fight the side effects of another script. Caffeine is a drug and if used correctly, under the supervision of a dr, can be beneficial. But it seems so many of us react differently to the same things.

Any idiot can face a crisis - it's day to day living that wears you out.
Anton Chekhov

My train of thought derailed long ago, now I take the bus, few more stops, but I eventually get there.

FM, costocontritis, wide spread arthritis, fibroid tumors, PTSD, 2 heart attacks at 22, PID

Buspar 10mg, Acetometaphen 500mg, Zantac 150mg, B-complex, Tramadol 150mg

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Date Joined Aug 2007
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   Posted 11/11/2009 6:41 AM (GMT -7)   
I have not been able to relate any foods or drinks to making fibro worse.
luv and hugs
Forum Moderator Fibromyalgia
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Irish Babe
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Date Joined May 2007
Total Posts : 1380
   Posted 11/11/2009 8:23 AM (GMT -7)   
NSZ, I love the smell of coffee, but I can't stand to drink it. So I can't say that it causes problems or not. I allow myself 1 Pepsi a day, other than that it is water or decaf tea.
One thing we have seen here is that we all react differently to different meds and foods. If that is one of your triggers, I would suggest you eliminate it. I've given up so many things I like due to one illness or another. But if I find something causes me a problem, out it goes.
Good luck w/ this.
God bless.  Alice.

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Date Joined Apr 2005
Total Posts : 17524
   Posted 11/11/2009 12:37 PM (GMT -7)   

I usually drink tea but I do have coffee occasionally.  I think it's the caffeine in it that is supposed to affect some people.  It doesn't affect me but it could affect you.  There is caffeine in chocolate, too.  Have you noticed more pain after eating chocolate?  If you do, you could be sensitive to the caffeine.  Try decaffeinated coffee and see what happens.  You will at least get the flavor you love.


Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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Date Joined Jan 2007
Total Posts : 3550
   Posted 11/11/2009 2:09 PM (GMT -7)   
I am constantly amazed at how similar MS and fibro are.  This is a good thread.  There's no rhyme or reason to my flares.  I LOVE coffee but I do drink decaf.  I love the caffiene but it isn't consistent enough for me and kinda messes with my blood sugar.  I need consistent help with fatigue so and I have meds for that.  I do love a good cup of coffee in the morning.  The rest of the time I drink tea.
Gretchen  ~  diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

Nana Monster
Veteran Member

Date Joined Jul 2009
Total Posts : 957
   Posted 11/11/2009 7:07 PM (GMT -7)   
I've been drinking coffee since I was 7 and have never noticed any difference in pain. But maybe it
explains why I've never made it over 5' tall?

Forum Moderator

Date Joined Jan 2007
Total Posts : 3550
   Posted 11/11/2009 7:13 PM (GMT -7)   
LOL!  That is the first thing I thought of!  "wow I wonder if she is stunted?"
Gretchen  ~  diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

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