Hi, Rosa, and welcome! I'm so glad you found us and joined in. I'm so sorry you have had such problems at such an early age. It is confusing. Your life doesn't seem to be in control but we will help you get some control of your life. You need to read all you can about fibromyalgia and understand this illness. I do not have the sensitive skin issues that many have on this forum. That's the problem with fibro. Not everyone has the exact same symptoms. Yes, we all seem to have fatigue and pain. Most everyone has pain in their back and neck but we have pain elsewhere, too. My pain "travels". It's one place one day and another place on another day! So, even though you think you don't fit the fibro profile, you just might.
Be sure to check out the Fibro 101 thread...the first thread on the forum. There are links to good information about fibromyalgia...including a list of symptoms. You just might see yourself there! The links in Fibro 101 will help you understand this illness better plus our members are wonderful and love to help one another. And, as a bonus, we really do care about each other, too. So, this thread is a great place to start learning. Also, don't hesitate to ask questions because we are here to help you.
Now, about all the Tylenol you said you are taking. That needs to stop, Rosa. The highest safe amount is 4,000 mg a day....that's 8 extra strenght Tylenol. Anything over that can seriously cause problems. I do use Tylenol for pain and I also use ibuprofen. The highest safe amount for that is 2,400 mg a day...that's 12 pills. I only use the highest amount when I'm in a flare. My doctor also put me on Prilosec because it help protect the stomach in 70% of the people. Those are good odds. But, if you do have ulcers, you need to use something else. I developed one ulcer about six years ago. I caught it right away and was able to clear it up within a month. I was told to use Tylenol but Tylenol alone doesn't cut the pain for me. It was a quality of life issue so we started the ibuprofen again BUT I ALWAYS take it with food, now. See, no one ever told me that and that's why I got the first ulcer. Since taking the meds with food and using the Prilosec, I have not had any problems in that area.
I also take malic acid/magnesium supplements for pain and fatigue and also take vitamin D3 for pain and fatigue. Many with fibro are deficient in these vitamins and nutrients. There are links all about them in the Fibro 101 thread.
I'm happy that you are here. I think we might be able to help you get control over this illness and live a full and enjoyable life. I know I have! So keep posting and asking questions. I'm looking forward to getting to know you and I hope to hear from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7