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anna w
New Member

Date Joined Nov 2009
Total Posts : 1
   Posted 11/27/2009 5:13 AM (GMT -7)   
Hi :) I have been suffering for about 7 years now, I am 46 years old. I decided to type fibro into the comp to see if my symptons fitted. So I have not officially been diagnosed with it, but was amased to find that I could well have it.
I suffer daily and was so fed up with it I decided to type fibro in because I saw it on the TV! My symptons are : constant pain, even to touch lightly, in my neck, shoulders, back and I generally ache all over. I always have a stuffed nose, headache or migraine. I get restless leg syndrome and numbess tingling in my finger tips. I do hate driving at night because I struggle to see and avoid other people headlights. I know I have IBS and constantly suffer with heartburn.
My husband can not even massage my back because it hurts too much, he says he can not believe the amount of knots I get there and even when he touches them very lgihtly I ask him to stop because it is too sore!
If this is what I have, in a way I will be relieved because I was just putting it down to getting older!
Where do I go from here? What do I say to my doctor and who will he refer me too? I am not insured at the moment so that in itself is a problem. Any advice would be appreciated, thank you so much.


Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 11/27/2009 8:23 AM (GMT -7)   
Hi Anna and welcome. Normally, to get a dx of fibro they have to rule out the other disorders that fibro mimics. If you will read the fibro 101 thread, at the top of the first page, it contains lots of great info including the other things it could be. There is no test for fibro it is dx through elimination and with the tender point test.
My GP dx me, some use rheumatologist, neurologist and internist. It doesn't matter what kind of doc you go to as long as they believe in fibro, do everything they can to help you and you have a good relationship with them.
I'm glad you found us and we have other members that do not have a dx as yet so you are more than welcome to stay with us and we will help you get through this.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
Vit D/calcium

Veteran Member

Date Joined Apr 2004
Total Posts : 6056
   Posted 11/27/2009 10:59 AM (GMT -7)   
Happy to make a new friend, but not for the reason.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

Regular Member

Date Joined Nov 2009
Total Posts : 47
   Posted 11/27/2009 11:05 AM (GMT -7)   
Hi Anna-

I'm newly diagnosed and certainly no expert. Just wanted to welcome you and chime in to find a doctor that wants a fibromyalgia case. I've been having medical testing done for years - this past two years (I'm 44 now) I became so ill that I pushed my primary doctor to find out what was going on. In March there was one abnormal test for Celiac Disease -- this was approximately my 50th blood test during those two years. I was diagnosed with Celiac, changed my diet to gluten free. This did help my digestive issues, but my chronic aches/stiffness and severe fatigue and fogginess became worse.

When I went back to my primary at 7 months gluten free I insisted she try to find something else because of my worsening condition regardless of improvement to my digestive track. She re-ran tests for thyroid and additional autoimmune possibilities which all came up normal again. She suggested fibromyalgia but her description didn't seem to match my symptoms. I did research fibro after she mentioned it and many symptoms were spot on. I saw another physician in her office that isn't a rhumatologist, but specializes in chronic pain and has many patients with fibro.

Although I don't feel much better yet, it is helpful to know what is causing my symptoms. I have improved slightly with mild exercise along and other treatments over the past weeks - and am hopeful for more improvement for the first time in many months.

Good Luck to you!

Fibromyalgia 10/27/09 & Celiac 3/26/09

Med/Supplements: Flexeril at bedtime; Multi-Vitamin, B, D, Calcium, Magnesium, Fish Oil, Probiotic -- Trying Malic/Acid, CoQ10

Still a mystery - heat/humidity intolerance

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 11/27/2009 2:02 PM (GMT -7)   
Hi Anna, Welcome to the home of friendly fibromites. Sorry you are hurting. When you
go for your first doctor's appointment, I suggest you bring in a list of all your symptoms.
Some of our members keep pain journals, so they have a record for their doctor.

My PCP referred me to a Rheumatologist. It took me a while before I was diagnosed. It
is typical for people with fibromyalgia to see more than one doctor to recieve a diagnosis.
The reason being the main symptoms of fibro are pain and fatigue, overlap with other
disorders. If something is found in your bloodwork, the process of a dx can become more
complicated and can take years.

I found that taking a proactive role in your healthcare helps during doctor visits. Ask for
copies of lab reports. Do research, ask questions about medications and side effects.

Wishing you the best of luck. Keep us posted, we care!

MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 

Forum Moderator

Date Joined Apr 2005
Total Posts : 17497
   Posted 11/27/2009 2:35 PM (GMT -7)   

Hi, Anna, and welcome!  I see you were referred to Fibro 101.  You will find a list of symptoms there.  You might print them out and highlight the symptoms you have.  Also, you will find a link to a pain journal.  Print that out and write down your pain throughout the day.  Also, there are pain charts in Fibro 101 that will help describe the pain in terms your doctor will understand.  All of this will help with a proper diagnosis, along with blood work and tests.  It is aggravating having all of these problems with no name to give them. 

We are here to help you along the way.  Don't hesitate to ask questions because we are here to help you.

I'm so glad you found us and joined in!  I'm looking forward to getting to know you and I hope to hear more from you soon.


Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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