Brand new type of pain...after two years w/ Fibro!

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Regular Member

Date Joined Mar 2008
Total Posts : 316
   Posted 12/6/2009 9:20 PM (GMT -7)   
Hello Everyone,
After having this thing for two years, I thought I knew the range of pain that Fibro could throw at me.  I thought the pain I'd experienced during flares was as bad as it was going to get.  I found out last night that I was very wrong! skull
I'd had stabbing pains before, but nothing like last night!  I had no idea how much worse the pain could get.  I couldn't even get out of bed, because when I moved to the right the stabbing intensified.  I had to ask my husband to help me get up.
How many of you were thrown a curve ball with the pain, after having this for a while?  I've read that many of you have had progressive-type pain.  Is this what you meant?
Today, the pain is certainly not gone.  It is not as bad as last night, but much worse than my previous flares.
Thanks for listening...

Veteran Member

Date Joined Feb 2009
Total Posts : 686
   Posted 12/7/2009 4:23 AM (GMT -7)   
Sorry to hear this, Kerri. Depending on where you live, it could be the weather. My low back was killing me yesterday, and that usually doesn't hurt so much. As far as I know, our pain can change - if yours keeps up, see your dr.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.

Veteran Member

Date Joined Nov 2008
Total Posts : 2858
   Posted 12/7/2009 5:38 AM (GMT -7)   

Hi Kerri...I have always described my pain as an aching/burning flu like sensation.  Last night, for the first time ever, I woke up feeling like I was beeing stabbed in my calf with a knife.  It would come and go but wake me up.  The pain has also moved from my lower back up to my shoulder blades and neck over the past few months.  So...I'm just chalking it up to fibro and the wonders it brings us every day!



fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil

Forum Moderator

Date Joined Apr 2005
Total Posts : 17501
   Posted 12/7/2009 6:32 AM (GMT -7)   

Oh, yes!  The pain can come out of nowhere.  Sometimes I don't know how I can stand it BUT I do know it will leave.  I've never had the extremely intense, unbearable pain last.  Like you, I start feeling a little better. 

Last night after dinner both hips felt like I was being stabbed.  I could hardly walk and needed to get the cane out but this morning I'm better.  I still have the pain but it isn't as intense.  I guess it goes with the territory.  Just anticipate when the pain will leave..because it will!


Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined May 2009
Total Posts : 447
   Posted 12/7/2009 7:27 AM (GMT -7)   
For me I thinl when the pain comes it feels like someone has decided to cut a bone out be it from my back or my leg. Even after all this time I still get surprised at what the fibro will throw my way. I can not get anyone to help me because for me just being touched is argony. That is if I am in a flare or not.
But what would life be with out surprises, all I can do is think tomorrow life will be better.



Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 12/7/2009 7:47 AM (GMT -7)   
That's the way it has been for me Kathy, with each flare the pain keeps getting worse and moving places on my body that I didn't have pain before. I never had that much pain in my legs and feet til the past few months. Once the flare leaves I still have pain in that area. I do not know how they can say fibro is not progressive, it has been for me. I finally relented and starting taking a little vicodin it has gotten so bad. I've been having a little reprieve from the flu like, not feeling well part of fibro and been more active but with being more active comes more pain. We can't win.
Hope you get better soon.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
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Regular Member

Date Joined Mar 2008
Total Posts : 316
   Posted 12/7/2009 8:35 AM (GMT -7)   
Hello All,

Well, I can see from your responses that I'm certainly not alone. It sounds like you've all experienced new and different pain after having this for a while.

Thank you for responding; I'm glad to know that you can all relate - even though I wish none of you had pain, on the other hand.

I started drinking wine to dull the pain the other night when it hit. I'm really not a drinker, only pouring an occasional glass. And, I almost never run to alcohol to dull anything. But, I have to say it did help. I did not drink to the point of drunkenness or anything, but just until it warmed my body a little (two glasses total).

Well, I guess we can say that there is never a dull moment with Fibro!!

Thanks again,



Fibromyalgia since 2007

"No pessimist ever discovered the secret of the stars or sailed an uncharted land, or opened a new doorway for the human spirit."
Helen Keller

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 12/7/2009 10:13 AM (GMT -7)   
Hi Kerri, The pain you described was something I experianced last night, stabbing pain.
I agree with mjoy that it could be weather related. I felt chilled to the bone and what I
think happens is the blood vessels constrict and not enough blood flow gets to the
muscle, causing more pain.
I ended up taking a muscle relaxer and slept 12 hours. Flexeril (cyclobenzaprine) usually
helps with the pain. I can't believe I slept so long. My body must have needed it. I am
in a flare. The weather temps went from close to 70 down to the high 40's in a week.
My Fibro usually throws me a curve ball, I really don't know what to expect
until I'm hit. The intensity of the pain and length of the flare varies.
Hope you are feeling alot better

Veteran Member

Date Joined Jun 2007
Total Posts : 906
   Posted 12/7/2009 11:04 AM (GMT -7)   
Kerri, I've had fibro for 25 years, but in just the last 6 months I started having pains up and down the front, side and back of my legs. It's brand new. The joys of fibro!lol
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea

Regular Member

Date Joined Mar 2008
Total Posts : 316
   Posted 12/7/2009 11:34 AM (GMT -7)   
Robin, I'm glad to hear you got much needed sleep. I am sorry that your flare is persisting, however. I hope it calms soon.

I think those who posted about the weather may be right. Each year, my flares certainly increase in the cold / wet weather. But, the type of pain has not historically changed. That was a new experience.

RedDiane, after 25 years and you are still experiencing new types of pain? I guess that answers my question! I'm sorry that a new pain struck you too.

I think for Christmas, I'm going to give myself gifts to increase warmth. New slippers, some comfy sweaters, different flavors of tea, etc. It's going to be along winter.

Thanks again for all the responses. :)

Gentle hugs...


Fibromyalgia since 2007

"No pessimist ever discovered the secret of the stars or sailed an uncharted land, or opened a new doorway for the human spirit."
Helen Keller

Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 12/8/2009 2:11 AM (GMT -7)   
I have felt horrible for the past three weeks. the pains are new also. I have continued swimming no matter how hard it is. However, I always feel much better after 15 minutes in the water.

Last week I did more walking than usual, I use a wheelchair most of the time outdoors and I ended up in so much leg pain that even the sheets hurt my body. My New Year's resolution is to buy a recliner, hopefully one with a massager.

I hope everyone feels better soon.


Veteran Member

Date Joined Jun 2008
Total Posts : 846
   Posted 12/8/2009 9:14 AM (GMT -7)   
I hope that this flare ease for you soon! (((gentle hugs)))

Last Christmas was all about comfort for me too... my dh was so sweet. He got me fuzzy socks, sweaters, electric blanket, back massager/heater for my computer chair.

I'd have to say my worst pain was about 6 moths before all the other symptoms of aching, fatigue, and numbness started making me go to my doctor. I had such incredible pain around my bad knee/ leg that I coudln't even put weight on it. It felt like I was a hit target of the mob and they wrapped my knee around a tree. I even went to the ER b/c I figured I must have hurt my knee somehow, without realizing it. This lasted about 3 days. It has started acting up again this fall, ghost whispers of what it was, but hasn't really started up again. I've only had fibro for about 1 1/2 years, but for me it is always changing. It settles in one area for a few months, then moves around to another. And each time it surprises me.
fibromyalgia and possible trigeminal neuralgia
50 mgs amitriptyline daily, T3s for facial pain (really not appropriate med) and now tramacet

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