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Veteran Member

Date Joined Mar 2009
Total Posts : 599
   Posted 12/7/2009 9:12 PM (GMT -7)   
I haven't been on much in the past couple of weeks because I'm in the midst of a major flare. I can hardly get out bed and missed all but one day of the past two weeks at work. I make myself get up and move around- actually, my dogs make me, bless their hearts! - so I won't ache even more. My skin and scalp and finger bones hurt. And all the trigger points are screaming, especially in my neck, elbows, and back; the muscles in my arms are so sore I can't lift them, or pick anything up. This is as bad as it has ever been AND I take meds every night (gabapentin, Cymbalta, muscle relaxer, Tramadol). I have three new bed buddies to help counteract the ache. Sometimes it is just so bad I sit in my recliner and cry while I ride it out. My next doctor appointment is this Friday, thank God.  
On some positive notes, a few weeks ago my BF and I talked and decided it was a good time for me to apply for Disability (SSDI). He is working FT and can cover us. So I completed the very through SSDI application online, turned in my medical records, doctor approval forms, all the forms, and am now waiting to hear from the medical evaluators if I need to see one of their docs or not. My last day at my part-time job is Christmas Eve. I just really decided I need this time to sort out moving to a new climate, and to try and find the right diet, meds, supplements, and exercise that will work to get the pain and constant flares under control.
One thing the SSDI application made me aware of is exactly how many, many jobs I have had in the past 15 years!! blush  I will be thrilled if it is approved right away but have found a pro bono attorney who will assist my case if/when I have to refile. I inquired over the phone at an agency which works with disabled adults in my town, and they gave me three or four referrals. I emailed the attorney just to introduce myself and let him know I'd filed my SSDI application, told him what I'd assembled and turned in to support my claim, and he wrote back and said he would be happy to help if I was denied.
It's not even that cold in southcentral Alaska right now. I think it's the constant barometric changes and shifts from dry to humid (which I prefer) and back that are really getting to me. So I'm moving in the spring back to New England where I'm from, a considerable kinder, more well-rounded and humid climate. I hope that will help as well. I know a lot of us lately have been down and out, either weather- or stress-related. I'm so glad I can vent my little vent here!
Just sign me "Tired of Crying!"  cry

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 12/7/2009 9:46 PM (GMT -7)   
Littleneck, I'm right there with you in the pain department, I had my cry just awhile ago.
Hopefully everyone who is flaring now will find some pain relief soon! Fibro pain can be
excruciating and I am thankful that they eventually end, sometimes not soon enough!

The weather changes can really do a number on a fibromite. I hope your move back to
New England will help you. I prefer humid weather too. Summer is my favorite season.
I love it when it is in the mid 80's and humid.

I am glad you were able to find an attorney who could help if your SSDI application is denied.
Your boyfriend seems very supportive, that's great!

Hope you get relief soon


MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 

New Member

Date Joined Oct 2009
Total Posts : 12
   Posted 12/7/2009 9:57 PM (GMT -7)   
Don't give up if you get denied the first time on your claim. I have a sister who is very much unable to work due to numerous very serious medical issues. She tried twice and got denied, applied again, just a short while ago, and got her acceptance letter last Friday. She and her husband both cried when the letter came after a two year battle. So hang in there if all does not go as expected. Good luck to you and hope you are feeling better soon. High regards to your BF for understanding and being supportive.
Each day brings a new adventure.  Always strive to make yours the best it can be!      

Veteran Member

Date Joined Mar 2009
Total Posts : 599
   Posted 12/8/2009 1:31 AM (GMT -7)   
Thanks. My BF is very noisy, but supportive. (I'm always complaining on here about how loud he is!)


I'm not expecting my SSDI app to be approved right away, to be honest, so wanted to get some more ducks lined up. I'm so glad your sister was, imjb. Actually, I don't think I've ever heard of or met anyone who was approved right away.

Robin, I also prefer "the 3 H's"- hazy, hot, and humid. Mid 80s summer and humid is also my very best weather. I can go up to a very humid 95 before I melt! (ahhhh)

Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 12/8/2009 2:07 AM (GMT -7)   

I hope the flare stops soon. It has been a rough season pain wise for a lot of people.


Veteran Member

Date Joined Jun 2008
Total Posts : 846
   Posted 12/8/2009 10:30 AM (GMT -7)   
I do hope this flare ease for you soon! I wanted to wish you luck with your claim. It sounds like you are very organized... and you are absolutely right, I think relocating will be easier once you have this out of the way. You sound like you have a very supportive bf, that's wonderful. We could all use people in our corner!
(((gentle hugs)))
fibromyalgia and possible trigeminal neuralgia
50 mgs amitriptyline daily, T3s for facial pain (really not appropriate med) and now tramacet

MT Lady
Veteran Member

Date Joined Jul 2008
Total Posts : 969
   Posted 12/8/2009 11:24 AM (GMT -7)   
We are in the midst of a winter storm here in the midwest (northern Illinois), already got about 2-3 inches of snow and it's expected to snow around a foot more over the next 24 hours with winds of 30 to 40 miles per hour. I woke up flaring like crazy this morning, can barely keep myself up. There is this muscle in the back of my head, just above my neck, actually two, one on each side, well when the barometric pressure changes, the pain is unbearable in those muscles and then it shoots from there up around my head. That's in addition to all the other pain. I think I'm headed back to bed. I did have to get it, for my dogs and they love the snow. They'll be so happy tomorrow,
take care everyone

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.

Regular Member

Date Joined May 2009
Total Posts : 241
   Posted 12/8/2009 11:38 AM (GMT -7)   
I hope you feel better soon. Glad you have a dr appt so soon - hopefully he can give you something.
I hope the disability comes through for you, but that is great you already have an attorney if needed. Good luck.
Fibro dx 2004, RLS, raynauds

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 12/8/2009 12:25 PM (GMT -7)   
OOH I think you all who are in the midwest got the storm that slammed me yesterday. I had my worst Fibro flare ever yesterday. But am thanking God that it is somewhat better today.

Littleneck, I hope you get some relief from your pain soon, and will definetly keep you in my prayers that your disability goes thru. Somedays I wonder why I don't apply, I sometimes think its my stubborness not to let my conditions win.

Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Forum Moderator

Date Joined Apr 2005
Total Posts : 17497
   Posted 12/8/2009 4:20 PM (GMT -7)   
I'm so sorry you are feeling so badly.  Those flares are quite miserable but I don't have to tell you that!  Remember, it will pass eventually and hopefully that will be tomorrow!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Mar 2009
Total Posts : 599
   Posted 12/8/2009 8:14 PM (GMT -7)   
Thank you, everyone. Big soft ((((((hugs)))))) to everyone, especially in the Midwest that are getting Alaska weather right now.

And mamanan, thanks for the laugh, saying I'm organized. I think I'm going to print that out. : ) Desperation might be close to organization!
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