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New Member

Date Joined Dec 2009
Total Posts : 9
   Posted 12/25/2009 10:26 PM (GMT -7)   
  My name is Jessa,
I have been DX with Fibro for 2 years now. I am 32 yr old female. I have a few bad spells a year mostly due to stress or even the weather. (geussing)
The other night I lost all my vision in my Lt eye scarred me! I went to the Dr he sent me to a Neuro who did all kinds of tests on me. I had two Dr's look into my eyes and they saw one eye was normal the other has Optic Nuritis. (the left one)
They checked my refexes witch came back abnormal I have extra beats in both legs. So I have to have a nerve conduction test done.
I had a MRI done this week with and without Dye
My legs have been getting so bad I think its my siatic nerve oh man it hurts bad....
I am just looking for someone who knows what I am going though. All my friends and family dont understand at all. I feel like the freak that hurts allot and doesnt know why.
Any input at all would be greatful.. Thanks so much.. 

Veteran Member

Date Joined Apr 2004
Total Posts : 6056
   Posted 12/25/2009 10:49 PM (GMT -7)   
Aw, hon... you certainly are being put thru the mill. We ALL understand because we all have similar stories. Take it easy a bit, be kind to yourself and read back in the posts to see how others are coping. One day at a time... You can do this and we will help.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 12/25/2009 11:14 PM (GMT -7)   
Hi Jessa,

I'm so, so sorry that you're going through all of this! Did the doctors say what they think might be going on?

Just so you know, people with chronic Lyme disease are often misdiagnosed with fibromyalgia, CFS, lupus, or MS. Lyme disease can cause optic neuritis. You may want to ask to be tested for Lyme disease, just to rule it out as a possibility.

I have been diagnosed with a dozen different disorders and diseases (see below), and I NEVER would have believed that I might possibly have Lyme disease, but my friends on another forum persuaded me that I had to rule it out, so I was tested. My blood test (the Lyme ELISA) came back positive. So I just had the Western Blot done (a more sensitive test) and am awaiting those results.

I'm kind of excited and hoping I DO have Lyme, because I might be able to take antibiotics and maybe eventually feel much better!

Well, anyway, that's what's happening with me.....whether or not you decided to be tested for Lyme, I wish you the best of luck with everything! I hope that they figure things out quickly and you are able to get some relief from both the pain and the worry!

Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

PENDING DX: Lyme disease?? Lyme ELISA positive!

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Darvon, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


Regular Member

Date Joined Nov 2009
Total Posts : 173
   Posted 12/26/2009 7:02 AM (GMT -7)   
Hi Jessa
I am sorry you are having alot of pain and eye issues lately.  Fibro is a crazy condition.
I hope all turns out for you and we are here to help even just to listen.
Here is a site I found that is helpful to share with family and friends who may be doubting your condition or pain.
Bless YOu


Humour is always the Best Medicine!
Fibromyalgia, DDD, 2 herniated Lumbar discs, OsteoArthritis Lumbar, Migraine, Dysthmic Disorder, Anxiey, Panic Attacks, OsteoArthritis Knee, Carpal Tunnel both hands, Currently Double Depression

Veteran Member

Date Joined Sep 2006
Total Posts : 1713
   Posted 12/26/2009 9:51 AM (GMT -7)   

Welcome to the fibromyalgia forum of Healing Well. We are so glad you posted with us.

I'm so very sorry you are going through a rough spot. I too, was diagnosed with fibro when I was 28 and had two flares a year in the beginning, like you said from weather and /or stress.

At any rate, you have found a wonderful group of "friends" here, who care and who will see you through this time in your life.

Keep posting and let us get to know you and you can get to know us.

God's blessings and Happy New Year.

Co-Moderator Chronic Pain and Fibromyalgia Forums
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 12/26/2009 10:40 AM (GMT -7)   
Hi Jessa and welcome to the family. I hope they find out what is causing your problems very quickly. The stress of not knowing what is wrong with us can cause more pain than knowing.
If you haven't read the fibro 101 thread at the top of the page it contains lots of great info about many different things.
You will love it here with all of us.
Funnygurl, that was a great article.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
Vit D/calcium

Forum Moderator

Date Joined Apr 2005
Total Posts : 17501
   Posted 12/26/2009 11:21 AM (GMT -7)   
Hi, Jessa, and welcome!  I'm so glad you found us and joined our family.  This is a wonderful group of people that love to help one another and, as a bonus, really do care about each other, too!  I'm sure you will like it here.
There is one thing we all understand on this forum...pain!  But, since we have had to learn how to live with the pain, we have found ways to work around it and still have an enjoyable life.  I'm so sorry you are going through so much right now but it sounds like you are getting good medical help.  Hopefully they will find what is going on with you.  I agree with Nasalady about being checked  out for Lyme, too.  You can have both Lyme and fibro.  Not fun, but doctor's can help with the Lyme symptoms.  That's good news.
Be sure to read the Fibro 101 thread and ask questions.  We are here to help you.  I'm so glad you are here and hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Jun 2009
Total Posts : 286
   Posted 12/26/2009 2:49 PM (GMT -7)   
Welcome to the forum, Jessa! This place is a wonderful place to meet new people, get advice, and mostly get the support we all need. I hope you enjoy it as much as I do!
"Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength."

"You were only given this life because you are strong enough to live it."


Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.

Rx: Celebrex, Buspar, Savella, Lyrica, Requip, Nexium, Symbicort, Compazine, Lunesta.

Supplements: Vitamin B12, Vitamin D, Vitamin C, Ginseng

New Member

Date Joined Dec 2009
Total Posts : 9
   Posted 12/27/2009 9:01 AM (GMT -7)   
     Thank You all so Much!!!   Fore you Kind words and understanding. I have been tests for allot of stuff wthough blood tests I do know that. However I am not sure about being tested for the lyme? That is very intresting.. Right now the Dr's are thinking its MS. But she also said it could be so many other things also. I like her she makes me feel like she cares and she is going to find out what is wrong.
I hope you all had a Happy Holidays... Me I am so Glad its over Its exsusting to me and I am sure you guys also. I feel now I can relax a bit.
Well I am off to read more posts on here! Thanks so much and I will keep you posted on how my MRI comes back. Many soft huggs!((((())))))
33 Yr old Female
Dx Fibro 2007
Tring really hard to have fun and not take life so serously.

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