Rheumy says Fibro

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Regular Member

Date Joined Jan 2008
Total Posts : 100
   Posted 12/29/2009 9:21 PM (GMT -7)   
  Hello Ladies, 
 I posted a few weeks ago not sure what my problem was , they tested for RA, Lupus, etc.  all came back ok, Rhemy did the pressure points and all and says I have Fibro, the funny thing is I am feeling pretty good right now.  I started taking Vitamins a few week ago and not sure if that is it or I also started Humira weekly instead of bi-weekly for my Crohns, not sure if that would do anything.  Anyways I could not stay very long as it was christmas eve and my mother was having a triple bypass so had to scoot.  He said come back in a month to discuss meds for sleep and pain,  not sure if I want to start anything else now though, guess will have to see then.  Anyways guess I can join you all for good now!
Crohns, now Fibro

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 12/29/2009 9:53 PM (GMT -7)   
Hey Deb, welcome to our fibro family. You are a fibromite! If you haven't already be sure
to check out fibro 101, second thread page one, lots of good info.

I am glad your tests for CTD's came back negative. It is great that you are feeling pretty
good. Hope your mom is recovering well from her bypass.

This forum has lots of friendly, caring people. You will find great support here. Heat is a
fibromites friend and always feels good if you are hurting and daily exercise is very
beneficial. Someone is always around to help here. We care!

Hugs, Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 12/29/2009 11:39 PM (GMT -7)   
Hi Deb and welcome back!

Well, it's official eh? That's good and bad news all in one answer. Good since you at least know what you are dealing with, but bad because it IS fibro. Your description of how you are feeling is very "text book" as fibro goes. You feel pretty good right now, that is until the doc pushes on those tender points. (doesn't it make you want to hurt them back??...lol) But one day something will set the fibro off and you will feel like a truck ran over you. No telling how long either will last but enjoy the easy times. Whatever level of fibro pain you have it always seems to swing high and low on the pain charts and the locations of the worst pain seems to move around also...for many people.

Another piece of good news is that your doc is offering to treat the fibro! Many find they are told to "lose weight, lower your stress, take tylenol and you'll be fine". Ya, right! THEY don't have fibro. So when you go I would suggest two things. Just listen to what he has in mind for treatment. Never, ever be afraid to speak up if there is a medications you're not comfortable trying...unless you get to desperation! They know what meds do and don't go together and if needed you can take pain meds with many other types of drugs.

The other thing is it would benefit you to keep a pain journal at least until you go back to see him twice more. It will not only show him where your pain is and when and how severe it is, but if you begin to take some pain medications you will be able to see in your journal how the medication affects you. There's a link to a free copy of a jhournal page in the CP 101 thread but here's the link anyway. www.painfoundation.org/learn/publications/files/TargetDailyLog.pdf So many people on the forum have had great results by using a journal of some sort. Take it along to every sort of doctor visit and ask them to review it while you wait. You'd be amazed the difference it can make.

Glad you are here and take it easy. We don't want your quiet pain period to turn into a miserable flare!

The three grand essentials of happiness are: something to do, someone to love, and something to hope for. — Alexander Chalmers

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

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