New here and hoping for advice

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New Member

Date Joined Jan 2010
Total Posts : 1
   Posted 1/6/2010 7:07 AM (GMT -7)   
Hi everyone! I am hoping for some input on some symptoms I have been having, but I want to apologize in advance for how long this may turn out to be

It all started when I was 6mths pregnant. I started getting pains in my chest area which doctor attributed to just normal pregnancy complications. After a few visits of complaining and multiple trips to the ER, the doctor finally realized that it wasn't just pregnancy complications. After my son was born, my gallbladder was looked at as well as the other organs around it, but everything turned out normal. The pain continued and then my abdomen on the right side started hurting (about 2" to the right of my navel, both 1-1/2" below and above navel area)- I couldn't even bear to lay my son on my stomach because I would flinch even before he made contact with my skin. I hated having water spray onto my abdomen because of the way it felt numb and odd. Then my side started having the problem too. Often times I would get sharp stabbing shooting pains as though someone was taking an instrument similar to an icepick and stabbing it in and out of my abdomen and side

Car rides are unbearable because I feel like something is digging into my side, abdomen and chest area- sort of like if the lower ribs on the right were curled upward and digging into organs. One time while working out at the local YMCA, I felt something ball up and spasm near the right side of my rib cage and I wasn't able to stand up completely until it subsided.

I have had CT scans (2ea), a CAT scan, an MRI, an ultrasound, XRAY, HIDA scan and a colonscopy and they have ALL come back normal. But I KNOW something isn't right. My lower back hurts on both sides as do both hips. I feel TIRED all the time (and not just because I am a mother to a toddler like doctors keep telling me) I just feel like NO ONE is listening to how exhausted I feel all the time. I wake up feeling as though I need to go right back to bed- as soon as I wake up I am counting down until my son takes his nap so I can have one too and then as soon as my dh gets home from work, I go to bed. I have no energy to do anything and I spend half of my day trying to avoid doing anything

I am getting migraines much more frequently- I was diagnosed at 15 with them (mom and 2 older sisters have them as well) but they are coming much more often, about 3 a week that last all day and sometimes into the next. I pee A LOT (about 25-35 times a day)
When I lay in bed at night I can't get comfortable because I constantly feel like I need to pee or I have pain in my back, side, hip and then I can't keep my legs still. Only at night do my knees seem to feel uncomfortable and sometimes ache. My neck and shoulders hurt constantly, my right leg gets shooting pains- I feel like I am a senior citizen and need a walker already and I am just 31! I don't even want to get older if my body is just going to ache more

My hair- that is another story! It is falling out sooooo much, especially in the shower- I could coat the whole shower walls with the hair that falls out! I used to have such nice thick hair and now it is getting thinner and dry and the color is just very lifeless.

I do bruise very easily- for one month I was getting multiple bruises on my legs every day- they would show up out of no where- one day I had a total of 17 bruises ranging from size of a dime to a size of a half dollar- doctor just attributed them to having a toddler, but we hadn't done anything to warrant any bruising (no rough playing,he doesnt kick or punch, I didn't fall or bump into anything) I kept all the photos I took though just I have them documented

I am so tired of being tired all the time and having no energy. I hate being in all of this pain- it has gone on for 3 years now and it seems like no one knows what is going on. Doctors included. I have seen more than 10 of them! The other day at a new OB/GYN, he suggested I may have fibromayglia, but is checking for fiberoids first before looking into testing for fibro, even though he believes the test for fibroids will come back negative. I just feel like the longer this goes on, the more in pain and more I give up I get.

Sorry for this long drawn out is just that I am lost and feel like I have no one to listen to me

Post Edited (TiredOfBningTired) : 1/6/2010 7:25:48 AM (GMT-7)

Forum Moderator

Date Joined Apr 2005
Total Posts : 17529
   Posted 1/6/2010 11:22 AM (GMT -7)   
Hi, Tired, and welcome!  I'm so glad you found us and joined in.  Your story is very familiar in a lot of ways.  Most of us have the muscle pains in the back, shoulders and neck.  Many have migraines, the stabbing and burning pain, the restless legs, the bruising, and of course the fatigue.  You very well could have fibromyalgia.  It sounds like your doctor is zeroing in on it.  You have to go through the testing to rule out other illnesses that have the same symptoms as fibro.  I use a board certified Internist as my doctor but many on the forum use a rheumatologist.  Just be sure your doctor believes in fibromyalgia....and it does sound like they do!   That's a big plus for you.
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good information about fibromyalgia including a list of symptoms.  You just might see yourself there.
The chest and rib pain could possible be costochondritis.  I have that and it can be quite painful.  My doctor has me taking ibuprofen with food to help with that.  There is a link in Fibro 101 all about it.  Read that and see if that's what it sounds like to you.
You can have a full and enjoyable life with fibromyalgia!  I know that I have.  We will help you.  Don't hesitate to ask questions and we will share what has worked for us.  I know it is difficult right now...especially not knowing what is really going on with your body...but you will get a diagnosis soon.  Then you can move forward with your life and learn how to work around the problems this illness is causing you.  So, please let us know what you find out.  We really do care about you.  I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Jul 2009
Total Posts : 236
   Posted 1/7/2010 4:45 AM (GMT -7)   
Hi Tired
Welcome to our family. I am sorry you are going through this though, sounds like you have a pretty good Doc. and I'm sure you will find answers soon.
there is lots of good information here. support and understanding.
Read Ask questions or just vent if thats what you need for that day...

we will be here for you .. take care dear... Looking forward to getting to know you .

take care , prayers for good days for us all..
Spirit ~
Fibro, Chronic Fatigue ,Anxiety ,( arthritis,, hands, feet, knees, back , neck )  , disk disease in neck with bulging disk , adhesions , Migraines, High blood pressure ,Gerd, IBS , Sever sleep apnea
Med's ,,,  fentanyl patch, Perc, Soma, anxiety meds, Ect.

Regular Member

Date Joined Oct 2009
Total Posts : 434
   Posted 1/7/2010 6:43 AM (GMT -7)   

Welcome.  It sounds like you have gotten some good testing done so that is a good thing.  It sure does sound like you could have Fibro.  You have found a wonderful place here for information and for support.  I have dealt with Fibro for many years now and for the most part lead a fairly normal life.  Keep on the path you are on.  It's alway good to rule out other things.  I hope you get some relief. 

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