Where do you 'so called' sleep?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Veteran Member

Date Joined Nov 2008
Total Posts : 2858
   Posted 1/10/2010 9:59 AM (GMT -7)   
Just wondering if I am the only one.  I have found myself migrating from place to place during the night.  I can't tell you the last time I spent a full night sleeping with the hubby.  Bought the pillow top king sized mattress...then a foam egg shell on top of that...and one of those down thingys'.  I still feel like I am sleeping on a mattress stuffed with bowling bowls and highway cones.  I need something against my back so I have been starting out in the recliner then end up on the couch.  The hubby seems to understand but I really don't know how he feels about it.  Up and down to pee all night...switching from side to side because of my hip pain...then there is the old RLS...I don't think he misses being kicked in the crotch several times a night. Oh and all the comforters and blankets I pile on...he sweats like a pig, poor guy.  But I miss sleeping with him.  I remember when my mother moved into her own bedroom because of my father's severe RA and acid reflux...he had to sleep on one of those tilted boards, and everytime she leaned against him he screamed in pain.  It was sad, and now I see this happening to me.  I bought two of those 'body pillows' to lean against in the bed and they ended up on the floor during the night.  So...do you all still get to sleep with your partners and if not..do they understand?
Maybe I should take myself to Fibro R Us...they must make a nice comfy fibro friendly bed...LOL!
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 1/10/2010 11:02 AM (GMT -7)   
Donna, I sure understand the up and down peeing thing and switching from side to side.
If I'm not up for that it's from pain or insomnia. My hubby could sleep through anything,
so all my movement does not disturb him at all. We used to sleep spoon style, more than
not an arm around me feels lke crushing pain.

I sleep with a body pillow and two other pillows, usually dressed like I'm sleeping out in the
frozen tundra. My hubby is my other body pillow that throws off good heat. He also never
knows when I'm up or out of the bedroom.

Last night I was up for a couple of hours, woke up with bad pain so I took a muscle relaxer,
plugged in heating pad, nuked bed buddy and ended up on the couch watching HGTV.

Can't remember when I slept all through a night.This past week, one night slept 11 hours with
numerous breaks. Donna, I wish there was a Fibro R Us that made the perfect comfy bed.

Hugs, Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 

Forum Moderator

Date Joined Apr 2005
Total Posts : 17529
   Posted 1/10/2010 11:40 AM (GMT -7)   
I use a queen size pillow and wedge it behind my back so it doesn't move.  If I move in my sleep, I wake up anyway from the pain.  So this works for me.  Those body pillows are too large and too stuffed for me.  You can't wedge them behind your back and have them stay.  Also, I sleep partially on my side and partially on my back.  That helps relieve the pressure on my hips...most of the time. 
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 1/10/2010 12:23 PM (GMT -7)   
Okay, I'm feeling pretty blessed right now that I can sleep pretty good most nights, last night was not one of them but..... Maybe it is the 100 mg of amitriptyline and 1 1/2 mg of xanax I take a bedtime. Actually, our bed is the only place I can sleep, can't do recliners or couch except to rest during the day.
I tried all the toppers and found our mattress was more comfy without all that on it. I can not sleep with a lot of heavy covers on so I sleep with sheet and electric blanket and if I get cold I pull the quilt up and then I throw it off and do this all night but still manage to sleep. I usually only get up once at night to go potty and go right back to sleep. I also have to have the TV on low to listen to as I'm going to sleep so my brain doesn't wonder.
I most always go to bed around 10:00 pm and sleep to between 6:00 and 7:00.
I don't normally nap during the day but I woke up way too early this morning so I'm going to try to take a little one today if I can.
I bought two body pillows, that are now in the attic somewhere, and I couldn't sleep with them either. I do change pillows a lot and have a stash in the closet cause my neck is a big source of pain for me and what feels good one night maynot feel good the next night.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
Vit D/calcium

Myself 09
Veteran Member

Date Joined Dec 2009
Total Posts : 6100
   Posted 1/10/2010 1:11 PM (GMT -7)   
This all sounds so familiar!!

I toss and turn, despite the Rozerem. I have a pillow I wedge under my knees, as I lie on my side. It turns with me. Sometimes, I end up on my back to try a new position, with the knee pillow on my stomach. I have a regular mattress, and it's okay, not great. My aprtner and I live in different cities (durn the job market!), and he has the heated waveless water bed. I love sleeping on that, and do tend to sleep better when visiting him. Whether this is due to the waterbed or the comfort of sharing a bed, I am not sure.
Fibromyalgia DX 2005. Ulcerative Colitis, arthritis, TMJ. Family History of Fibro--2 out of 3 siblings diagnosed.

There are three kinds of people in the world: ones who see the glass as half-full, ones who see the glass as half-empty, and others who see a big crack in the side which is leaking all over their %$#@# foot.

Veteran Member

Date Joined Jun 2005
Total Posts : 1852
   Posted 1/10/2010 1:33 PM (GMT -7)   
I sleep pretty much like sherrine describes due to bad hip pain waking me up. Extra pillows here and there, tried all kinds of sizes and shapes and it doesn't make much difference. I have found the mattress itself is an issue for me, spring mattresses I can't sleep on at all due to intense pain all over. Memory form works best, only gotta deal with hip pain then. Tried air and it was almost as bad as spring. Yes, I still sleep with hubby but if pain is too bad I do get up and sit in recliner with heating pad and watch tv.

Nana Monster
Veteran Member

Date Joined Jul 2009
Total Posts : 957
   Posted 1/10/2010 1:52 PM (GMT -7)   
I sure miss my waterbed. It was great for pain. Just burrow down in the heat and vege. Now I have
an air mattress which I have to keep fully inflated with an electric blanket under the sheet. I found
if I put 2 blankets under the electric one it keeps more heat under me. The heat sinks in the bones
and makes a marked difference in pain.

I also take my 1/2 hour "nap" for my lunch break. Even in the winter I go out in my car and bundle
up in a blanket and kick back and relax.

Right now I'm kind of having a hard time as I ran out of my herbals and am in some pain. Every
day it gets a little worse. Muscles hurt and the last couple of days I've broken down and used
darvacet. Hopefully Wed. I'll be able to get to Syracuse to refill. I never want to get to where I was
last year at this time. cry

Regular Member

Date Joined Nov 2009
Total Posts : 135
   Posted 1/10/2010 2:05 PM (GMT -7)   
Sometimes I struggle with this terribly. My husband works nights so I don't sleep with him often. But he snores and jerks, so that only tends to disturb my sleep further. From the mental part of sleep I sleep better when he is in bed with me. I will go back to sleep sooner and sleep a lot heavier. We have a routine though of light snuggling but as soon as we r about to fall asleep we turn our seperate way and do not touch. Lol.

But most nights I'm alone and I swap from the bed to the couch and vice versa. Sometimes my couch is best because it supports my back and I can lay on both. That is when my hips are hurting the worse.

I had a sleep study and I have sleep apnea but I did not hit rem sleep the whole night. They aren't sure y but I hope to get that resolved soon.
27 yrs old-Fibromyalgia; PCOS; Surgery induced Menopause; Classic Migraines with Aura; Neuropathy; Ankylosing Spondylitis w/ narrowing around the spinal cord; Spinal Stenosis of the Cervical & Lumbar Spine; other little things
Medications for pain: Oxycontin; Soma **will update when change meds for sleep, etc.
Other treatment: Aquatic Therapy (still have to start); Sleep Study (need a sitter)

Myself 09
Veteran Member

Date Joined Dec 2009
Total Posts : 6100
   Posted 1/10/2010 2:47 PM (GMT -7)   
I hear you Cat. That is the one thing I hate about my sharing the waterbed with the partner... his sleep apnea and snoring. He 'plans' to do a sleep study, but feels no real urgency about it. The jerking can be hard to sleep with.

I have some bad nights where I am up and down, to the couch, to the bathtub to try to soak out the aches and stressors. But, luckily, the rozerem helps to relax me and knock me out. The real problem is when I nap too much... I have a hard time sleeping properly then.
Fibromyalgia DX 2005. Ulcerative Colitis, arthritis, TMJ. Family History of Fibro--2 out of 3 siblings diagnosed.

There are three kinds of people in the world: ones who see the glass as half-full, ones who see the glass as half-empty, and others who see a big crack in the side which is leaking all over their %$#@# foot.

Irish Babe
Veteran Member

Date Joined May 2007
Total Posts : 1380
   Posted 1/10/2010 4:00 PM (GMT -7)   
Donna, I love the phrasing of your ?. Everyone in my house likes the couch, I don't find it that comfortable, can't sleep on it. I try to sleep in my bed, sometimes I get a couple of hrs, sometimes, not that much.
Like Cat, my DH works nights, so for most of the wk I am by myself. I lay on my side, w/ a reg pillow behind my back. I have a pillow under one knee, the other knee behind, out straight. As I sleep, I turn over on my back. That is usually when I have my biggest problem. I have been getting an intense burning pain in my left leg from the hip to the toes. It wakes me up and it feels like my leg is on fire. I try to get up and relieve the pain/burn, but the 'feeling' stays.
My husband snores, so some nights that he is home it is hard to get to sleep. Most nights I can fall asleep, just can't stay asleep.
Right now he will be home for a bit. He always goes off to sleep before me, I find I tend to listen to his breathing. He does have apnea, so when he stops, it is scarey. I gently rub his back and that seems to get him back on track.
I have flannel sheets on the bed, the only type we use - yr round. At times it feels like a wrinkle is out to get me, so I have to re do the sheets. I have a thermal blanket, a light quilt, and a heavy quilt on the bed. I also flip the blankets on and off, like Marlee. I also make several trips to the bathroom. I am not able to return to sleep after my trips.
I can't take naps, have never been a 'napper'. I do get very run down and I must sit or lay on the couch w/ my heating pad under me. I just can't sleep. I am so happy when the day is over, I keep hoping 'Tonight will be the night I sleep'. That is my bedtime story. lol.
I asked my DH if my 'sleep' habits bother him, would it be better for me to go to the LR? He wants me near him. I feel the same way. We only have a few nights to be together, I would rather hear him snore, then be in the other room. It is comforting just to have him there w/ me.
God bless.  Alice.

Veteran Member

Date Joined Jun 2007
Total Posts : 906
   Posted 1/10/2010 4:27 PM (GMT -7)   
We just got home and I always love to get back to my bed. It is more comfortable than any other to me. It is a sleep number bed and I usually keep it on 40. I didn't use to sleep well at all, but that is the one thing lyrica has done for me. DH travels a lot, so I sleep alone 2 or 3 nights a week, with cats. Since starting the lyrica, I only get up once a night for the bathroom. I can't stay in one position too long or something starts to hurt. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea

Veteran Member

Date Joined Mar 2005
Total Posts : 1512
   Posted 1/10/2010 4:29 PM (GMT -7)   
I used to sleep horribly, but finally getting through perimenopause helped alot. Plus.........since I've started using a cpap machine, I sleep ALOT better. Plus, my husband moved into another bedroom with the animals and his pager and cell phone, so that helped alot too!
I have slept on a couch for years. I don't know why its so comfy, but it is, and I just can't sleep flat on a bed anymore. Go figure. I feel sort of weird sleeping on a couch..........but it works.

Veteran Member

Date Joined Jun 2006
Total Posts : 1156
   Posted 1/10/2010 11:20 PM (GMT -7)   
I take Lyrica a couple of hours before bedtime then I take zanaflex one hour later. both help me to fall asleep and stay asleep. I also use a cpap machine. sometimes I wish we had at home catherizers. I still have to go to the bathroom at night. ugh.

I am trying out flannel sheets for the first time and I like them so much, I wonder if they could be used year round.


Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 1/11/2010 2:25 AM (GMT -7)   
Such an applicable thread. Right now there isn't a single part of my body that isn't screaming at me. Even my wrists, fingers and toes hurt. I cannot understand it. This past month has been pure he--. I have been through so much. Physically, most recently, mentally and emotionally, before that. I have something wrong w. my bladder which will arouse me numerous times through-out the night, and when I reach the BR, I might pee a teaspoon. So frustrating and a tad embarrassing as I get up, sometimes every 1/2 hour, to pee, w. very little output. I see a new PCP tomorrow. I am praying she can help me sort through this. The nights are forever, awful, it doesn't seem to matter what I do. The medicine doesn't seem to do much except upset my stomach. I try taking it w. milk, or a little food, nothing heavy, but 2, 3, 4 AM are not friends of mine. How can one body produce such excruciating pain, so consistently? I have to get up and walk around. Fortunately, those who occupy "my space" from time to time, are "good sleepers". Therefore, my nightly rambling doesn't seem to affect anyone too seriously, no-one that is, except me. I cannot remember when last I had a "night's sleep". The old doc, the one I am about to fire, gave me Immovane for sleep. Apparently, I yell out loud at night. This will not do, not at all. Besides, it doesn't give me but 3 - 4 hours and then leaves me groggy, confused, and a really horrid taste in my mouth. Having lost my Dad over xmas, with five years of solitary caring for him, well, I guess I wasn't taking care of myself, and now, on top of all that, I cannot get the pain to stop. There are no medicines they will give me to stop the pain. What they do give, tends to be worse in side effects than nothing at all. Please, I don't know how much more I can abide. Here's hoping some of us, somewhere, are doing better.

Regular Member

Date Joined Jul 2009
Total Posts : 236
   Posted 1/11/2010 5:22 AM (GMT -7)   
oh my goodness Becky.. LOL..
Me TOO... I'm right there with you on this one honey... I move from place to place through the night.. I start in Bed. a couple hours before my husband... then a anywhere from around 10:30 to 11 or 11:30 I'm up. mind you I'm up every hour to pee. already .
try the couch so I can support my back against the back to the couch. with comforters to lay on top of. Fav blanket so on. puppy tags along with me all night long.
then the recliner.. and lots of nights end up sleeping sitting up. back on the couch. dragging my body pillow along with me, I normally spend about one and a half hours up in the middle of the night waiting on pain meds and Soma to kick in so I can sleep again. .. I do use a c-Pac machine up in the bed room .. wish I had more than one. one for bed room one for down stars. ..
lots of nights I cry out for Gods help to get through it again. I am getting so tired of all this.
I guess I will beak down and make another Doc Apt for this week.. I swear there is more than Fibro going on.. Chronic fatigue yes . but have not had a dx for ME (cfs.) plan on working on that Dx..
do you break out in a sweat and at the same time your skin is cold to touch ??? I feel very ill when this is going on and it is happing more often every day . making me crazy. Like I need to be any more crazy than I already am Right ?

Spirit ~
Fibro, Chronic Fatigue ,Anxiety ,( arthritis,, hands, feet, knees, back , neck )  , disk disease in neck with bulging disk , adhesions , Migraines, High blood pressure ,Gerd, IBS , Sever sleep apnea
Med's ,,,  fentanyl patch, Perc, Soma, anxiety meds, Ect.

Veteran Member

Date Joined Apr 2009
Total Posts : 673
   Posted 1/11/2010 8:58 AM (GMT -7)   
Unfortunately, I have had to leave the bed and sleep on the couch. My bed is so uncomfortable that I would wake up multiple times in the night in a lot of pain. I just could not get a good night's sleep. So, I have moved to the couch. It is a pretty comfortable couch, and I sleep much better on it. But I miss sleeping with my hubby, and even though he now has all of the queen size bed to himself, I know he misses me. He never says anything about me sleeping on the couch except that he understands. I know he misses sleeping beside me. I miss sleeping beside him. But I just cannnot sleep on our bed all night. I can take naps on it because they don't last very long, but I can't sleep through the night on it. It sucks. I want a new bed that is comfortable for me to sleep on so that I can sleep in bed with my hubby again. sad
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. Dr. Seuss

Regular Member

Date Joined Dec 2009
Total Posts : 103
   Posted 1/12/2010 12:46 AM (GMT -7)   
I had t buy a temperpedic bed.
I did buy a memory foam and i DO NOT recommend that, the chemicals are horrible.
The temperpedic is far better due to chemicals and feels wonderful.  I got stuck in the memory foam one and needed help cuz i sank so far.
When i bought my temperpedic one, i went to a store that had about 6 different ones from them.  I laid on all of them till i found the right one.
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 18, 2017 1:45 PM (GMT -7)
There are a total of 2,906,812 posts in 319,001 threads.
View Active Threads

Who's Online
This forum has 158342 registered members. Please welcome our newest member, Typingservice2017.
402 Guest(s), 8 Registered Member(s) are currently online.  Details
scifigal2k, Solaris719, tickbite666, Michael_T, HaleyBugs07, Szabo246, jackinthebox, straydog