Do you feel the fibromyalgia is progressive?

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Date Joined May 2008
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   Posted 1/11/2010 7:14 AM (GMT -7)   
Feels like to me, my fibromyalgia is getting worse, I don't remember feeling this bad last winter. Granted, the winter here is South Eastern PA is much colder than it was last year, but I just don't remember feeling bad all the time like this last year.
Lyme, Fibromyalgia, Anxiety, IBS, Reflux, Insomnia,Sleep Apnea
Current Meds: Tramadol, Percocet for break thru pain, & Adavan
Taking it one day at a time.... 

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   Posted 1/11/2010 7:34 AM (GMT -7)   
My pain and fatigue have definitely gotten worse over the years. It's hard, though, for me to determine which of it is due to the fibro and which is just part of aging.
"There is no charm equal to tenderness of  heart." - Jane Austen

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   Posted 1/11/2010 7:51 AM (GMT -7)   
Good day ...

even though research says Fibro is not progressive . I would disagree with that .. I would say it most certainly is progressive. at least for me it has been

I was Dx'ed with Fibro about a year and half ago.. and it has progressed I think pretty fast.. to the point I am debiting how much longer I can work.. I started working from home right after I was informed I had Fibro thinking this would work out better for me.. I do have to admit if I was still working in office I would have already had to file for SSD. and through work.. but so far have not.. only short term for less than three months when I was dx'ed with Fibro back then.. it gets harder and harder as each day passes.
this is a cruel DD , and it can be hard to get your family to realize just where you are with this.. like me. my husband is so used to me being strong and dealing with all kinds of Medical issues. but never letting it stop me.. but this time.. its a Different story .

Wishing you the best of luck ... stay strong.. .. the one thing I know is we must keep moving exercise even if its just throwing your arms around and kicking your legs up and down while sitting what ever. you just need to keep moving. because if you stop the pain gets worse. I know from experience
Spirit ~
Fibro, Chronic Fatigue ,Anxiety ,( arthritis,, hands, feet, knees, back , neck )  , disk disease in neck with bulging disk , adhesions , Migraines, High blood pressure ,Gerd, IBS , Sever sleep apnea
Med's ,,,  fentanyl patch, Perc, Soma, anxiety meds, Ect.

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   Posted 1/11/2010 8:15 AM (GMT -7)   
Hi Monica, I believe my fibro has been getting worse, The frequency of flares and the
intensity of pain has increased. I believe my MCTD(scleroderma,lupus & RA) along with my
other conditions has been putting a huge strain on my body. Emotional stress and physical
stress play a big part on how we feel.

Weather also has an affect on my fibro. No doubt fibro can be excruciating, the pain can be
overwhelming at times. We just have to take one day at a time and push through it.

Hugs, Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 

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   Posted 1/11/2010 8:20 AM (GMT -7)   
I've had fibro for 22 years and it held steady until a couple of years ago.  But I am getting older so some of the aches and pains could be from that.  Also, the weather has been wretched this winter and that plays into how I feel.  I am on a statin medication and that can cause muscle aches and pains and I did start those a couple of years ago, too.  My doctor wants me to stop the statin meds for one month, take 200 mg of COQ10 for a month and then add the statin meds back in and continue to take the CIQ10, too.  Apparently, the statin meds deplete the body of COQ10 so I'm going to give that a try. 
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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   Posted 1/11/2010 8:36 AM (GMT -7)   
Let me put it this way, something has gotten much worse in the past 2 1/2 yrs. Is age a factor??? I also have osteo arthritis with fibro and MPS and I know the arthritis has gotten worse. I have a lot more tender points and knots is it fibro or MPS??? Since I have been on gluten free diet for celiac I think my energy has improved a little cause I'm getting more nutrients, still don't have enough energy and probably never will. I also have Sjogren's and many digestive issues.
I guess only someone younger and with no other medical problems could answer this.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
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   Posted 1/11/2010 8:37 AM (GMT -7)   
I don't know if fibro is progressive or not, but I have definately been feeling worse. I can't lie down, sit down, or stand up for too long. If I lie or sit down for a while, when I get up, my feet hurt and feel half numb. I knees are worse, but I was told by my doctor that I have tendonitis in both knees and my wrist. I also have arthritis in my knees. I have been having a hard time opening things. My hands seem weak, and it hurts to open things. I don't know if I have something else going on or if it is just the fibro. And if it is the fibro, is it progessing? Doctors and researchers say it is not. Could they be wrong?
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. Dr. Seuss

Regular Member

Date Joined Aug 2009
Total Posts : 159
   Posted 1/11/2010 10:48 AM (GMT -7)   
Is it progressive?  Very good question.
As for me, I really don't know for sure. Somedays I feel like it is and other times not.  I do know that the weather is a BIG factor in how I feel.  Yesterday  it was dry in the 40's and I was okay from the time I got up.  Still achy but less stiff than normal.  I was able to wash 6 loads of clothes and repair a pair of pj's prepare dinner and not feel like I was dying.
This morning before I even got up I was aching stiff fibro fogged groggy and guess what ?  It was raining!  Rain and I don't mix well. 
This is how I got my handle Yo-yo because my life is up and down, up and down.  One minute I can be hanging in there and the next I can be plunged to the depth of pain and fatigue and the next day have a good day all day but the next be up and down all day. 
By the way Sherrine, your  doctor is on the right track with the CoQ10.  Statins deplete the body of CoQ10 and you should be taking it in addition to the statins.  CoQ10 is totally necessary for good heart health.

Myself 09
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   Posted 1/11/2010 10:48 AM (GMT -7)   
At this point, I don't feel it is progressive. For me. And I could be wrong.

In many ways, I feel better now than when I was first diagnosed. I take my meds, and stay in close contact with the doctors. I sleep properly (well, I sleep as much as I can), I eat properly, I exercise consistently. I learned to say 'No' to things I felt I either could not do or would over-exert me. Water aerobics, proper sleep patterns, and stress management have made me feel far better than five years ago.

However, in interests of full disclosure, my partner feels the condition is progressively getting worse. AND, I tend to be an over-achiever who pushes herself quite hard.
Fibromyalgia DX 2005. Ulcerative Colitis, arthritis, TMJ. Family History of Fibro--2 out of 3 siblings diagnosed.

There are three kinds of people in the world: ones who see the glass as half-full, ones who see the glass as half-empty, and others who see a big crack in the side which is leaking all over their %$#@# foot.

Regular Member

Date Joined Oct 2009
Total Posts : 434
   Posted 1/11/2010 11:21 AM (GMT -7)   
I think it is progressive.  I know I am worse and my diagnosis has been around 10 years ago.  The progression has been slow though.  Hang in there and take things one day at a time.

Regular Member

Date Joined Oct 2009
Total Posts : 69
   Posted 1/11/2010 4:58 PM (GMT -7)   
I thought for a while before my dx that I could have fibro. However I do know that since my dx I have felt worse than I have in the past!! Newer symptoms showing up every so often etc. So as far as I'm concerned it is progressive. Or at least can be.
Probable diagnosis of fibromyalgia. Along with: Bipolar,OCD, Borderline Personality Disorder, PTSD, anxiety, gastroparesis,pcos,add Meds: Neurontin, Lyrica, OMEGA 3 Fish oil and vit d3, tenex wellbutrin i stopped taking.

Juvenile FMS
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Date Joined Dec 2009
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   Posted 1/11/2010 9:49 PM (GMT -7)   
Yes and no. Being 16 with no other health problems, it is easier for me to measure my fibromyalgia pain. I would say that the pain is constant so far, but the symptoms aren't. When my symptoms first started, I was having shooting pains in my back and legs, involuntary movement of my limbs, and a lot of muscle numbness. In the past six months or so, I have only experienced those symptoms less than a handful of times. However, I have had an increase in muscle spasms, I notice a lot more spasms in my arms and my hands. The all-over pain though has been constant. Same pain in the same regions of my body, same frequency.
Diagnosed with Fibromyalgia in June 2009

currently taking melatonin (3mg) to assist with sleep

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   Posted 1/11/2010 10:24 PM (GMT -7)   
I am definitely better than I was 15 or even 10 years ago. I have less pain and I don't flare nearly as often. When I do flare, it's only for a few days. Rainy/cloudy weather does make me ache more but not as bad as it used to and I feel much better when the weather clears.

I wish I could say the fibrofog got better but at least it didn't get any worse.

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   Posted 1/12/2010 7:42 AM (GMT -7)   
A twenty plus year veteran says; absolutely. As we age more and more health issues arise aggravating the Fibro.

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Date Joined Sep 2006
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   Posted 1/12/2010 4:56 PM (GMT -7)   
Fibromyalgia is definitely progressive! I have had it since I was 28. I used to have flares once , maybe twice a year. Then it started to happen more and more often.

In the last ten years, I have been unable to stand for more than a few minutes. I need to use a wheelchair to go to stores. I need a stool in my kitchen to cook anything. My pain has gotten worse. I need to take percocet now four times a day, something I never needed to do ten years ago. I also take lyrica now.

Housework has become almost impossible and now I need a maid once a week to help me with the floors and the kitchen.

The rain bothers me more than anything. It is when the rain is building, before it falls that I hurt. After it falls, I feel ok. It's weird. Must be the barometric pressure, you know?

Anyway, I am 58 now and the fibro has gotten worse. Anyone who says different is just plain wrong!!!!!LOL.

Have a great day, my friends!!

Co-Moderator Chronic Pain and Fibromyalgia Forums
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   Posted 1/12/2010 7:02 PM (GMT -7)   
I think the fact that I'm getting older and the arthritis is getting worse is a major factor is what I'm seeing in the fibro. It's definately gotten worse over the past couple of years and medications just to function are growing.

The weather also is a huge factor for me and lately the past few years we've seen huge shifts in temperature here in Indiana on a daily basis. I can always tell when it's going to rain or get a temperature spike because I feel extremely heavy and ache all over...its weird.

getting by
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   Posted 1/13/2010 5:44 PM (GMT -7)   
I think that everybody is different.  And I think it depends what time in our lives we get it.  Also different people have different pain thresholds. 
For me, it isn't progressive (at this time, who knows what will happen down the road).  It has leveled off with the help of pain medications and stimulants.  Without them, I don't think I would be able to function. 
I admit that I had to take time off of work this winter, but I know that the cold wouldn't let me work, it was getting harder everyday.  But I do plan to return in spring.  
We have had some damp weather too which isn't helping things any.  But it is suppose to get nice within the next couple of days. 
I just take it one day at a time, if I can function, I do, but if I can't I just rest.  So far, I have been productive, but who knows what tomorrow holds.  
Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

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   Posted 1/13/2010 6:23 PM (GMT -7)   
I have had fibro for 25 years and it has slowly, but inevitably gotten worse. More pain, more places, more fatigue. I am much, much worse than I was even 10 years ago. Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea

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