JoAnn, we talk about having all the tests run before fibromyalgia can be diagnosed properly. We direct people to Fibro 101 and the thread What Else Could It Be and Lyme is on several of those lists....along with other illnesses. I have told members about IGeneX Labs in Palo Alto and I have sent members over to the Lyme forum if they want more information. So, Lyme is covered on this forum. (Is fibromyalgia covered like that on the Lyme forum?) But, the bottom line is that this is the fibromyalgia forum. Your Lyme discussions should be kept on the Lyme forum. All HealingWell members have every opportunity to visit any of the forums and can read all about Lyme on the Lyme forum. But, I do know you are just trying to be helpful.
You can have fibromyalgia without having Lyme. Actually, that's the case to those of us who have been checked out. Also, did you know that 15-50% of people diagnosed with Lyme actually don't have it but have fibromyalgia? They are given medications that they don't need and that can harm them. I was one of those people. They didn't have testing when I came down with fibro back in the 1980's but Lyme was being talked about. My doctor put me on Tetracycline and I ended up with such severe ulcerations in my colon that I had to have it totally removed. I now live with an ileostomy. The medicine exascerbated my Crohn's disease and, as it turned out, I didn't have Lyme to begin with!
I hope you understand why we asked you to stop posting about Lyme on the fibromyalgia forum. I also hope that you start feeling much better soon and it helps your other problems. I'm now locking this thread. Any more posts on here will be deleted. Thanks!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
Post Edited (Sherrine) : 1/23/2010 11:25:50 AM (GMT-7)