On Saturday, I received a call from my mom, who has Alzheimer's, saying she was sick, it was an emergency. She said she had a terrible night, felt like she had to vomit, but didn't, and as I was talking to her, her words began to slur and she sounded like she had a mouth full of mashed potatoes. I got in touch with my sister, who is an RN and works at the assisted living facility where my mom lives. She went to be with mom, and I rushed over there. By the time I got there, I am ten miles away, they had called 911 and mom was on the transfer cart being taken to the ER. I followed them and the nightmare began. I stayed with mom for the next 27 hours. I have two sisters, one was out of town and the other, the RN was working a double shift that day and the next. I refused to leave my mom because of the dementia. It can cause some really frightening reactions in someone with dementia, so I stayed. She was admitted midafternoon and I slept there that night, well, if you can call it that, on a chair. Mom felt so guilty that she was in bed and I was in a chair and kept begging me to get in bed with her, that I finally did and neither of us slept. She stayed until Monday evening and during the three days, had countless TIA's (mini strokes). She had every conceivable test, MRI, MRA, EKG, EEG, Ultrasound of the carotids, of the heart, and more that I cannot remember...everything coming back negative. The neurologist told us that she felt the TIAs were being caused by medication....of all things, Sudafed! Mom recently was put on Sudafed to be taken twice a day because of her sinuses always draining and her nose constantly dripping. She has taken Sudafed for years but not as regularly as she is now. The neurologist told us that she feels Sudafed should be taken off the market...it is known to cause strokes! I called mom's attending physician and he agreed! Why then would he prescribe it for her? Well, it's a "possible" side effect, not everyone is sensitive to it. Needless to say, mom is off Sudafed. I took her back to her assisted living facility Monday evening and I spent the night again, sleeping in a recliner chair. I don't think I have to tell my fibro friends what my body is like. I have been withdrawing from Prozac for the past month or so, and now this. I don't think I stopped crying for three days (of course, I didn't let mom see me). Mom has no idea where she is now, she doesn't recognize her "home". She keeps calling me and saying "I want to go home." It is heart breaking. My sister, the RN, is able to check on mom. She doesn't work on her floor, but can get there to check in. My other sister is now back home, so she is going there today. I haven't been able to work in four days and I don't get paid when I don't work so I'm desperately trying to get some work done, but all I want to do is stay in bed. I can't seem to get enough sleep.
There isn't much any of you can say. I just needed to vent to someone that understands how tough this is on us.
I have found a psychologist that I am seeing this Saturday. I have struggled for years knowing I needed therapy, but always thinking I can't afford it. I've come to realize I can't afford not to have it. I think the Prozac masked a lot of issues I've had that are now surfacing...I think I am coming out of the ether and it's not pretty. My parents were holocaust survivors. I have been doing research and finding that many children of survivors have PTSD along with FM. I know I need to work through this.
Sorry for the length of this, but thank you for letting me vent.
Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.