I'm so sorry to hear about
all you've been through....your list of diagnosed diseases and *suspected* diseases is very similar to mine unfortunately. I do feel for you!
I have a question....one thing I have been dx with that's missing from your list is celiac disease, but I noticed that you DO have Hashimoto's and some researchers feel that you should automatically be tested for celiac disease if you have either Hashimoto's thyroiditis or Graves disease (autoimmune thyroid diseases).
Have you ever been tested for celiac disease? Here's an article on the relationship between thyroid disease and celiac disease:
Celiac disease is known for doing many strange things to many different systems in the body, not just the intestines; it can definitely attack the brain and cause lesions, although the lesions are usually not in the same places that MS lesions typically appear. Atypical lesions are sometimes called UBOs....please read the following article about
neurological damage caused by celiac disease; it explains things better than I can. ezinearticles.com/?Brain-And-Neurological-Problems-Affect-Almost-Half-Of-Celiacs-Even-With-A-Gluten-Free-Diet&id=904155
Of course, I'm merely suggesting that you ask your doctor about
the possibility of celiac disease; I'm not a doctor. I'm sure that there are many other conditions that might be responsible for your brain lesions. But I thought of celiac because I remembered that it could cause brain lesions too....not many people know that.
If you have been tested for celiac disease before, or do get tested in the future, please be aware that blood tests and even biopsies are frequently falsely negative. I've also heard that people with non-celiac gluten intolerance (NCGI) can have the exact same symptoms as celiacs, and there are no tests for NCGI, so the best way to tell if you have a gluten problem is to go gluten free for a couple of weeks and then try eating gluten again. If you have celiac or NCGI it will become obvious, because you'll feel better off gluten and worse when you go back on it.
I know that many, many people on another celiac forum I belong to have fibromyalgia as well....the two seem to go together.
You're in my thoughts and prayers....I hope you get some answers soon!
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnelDoxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP
Darvon and Morphine Sulfate PRNautoimmunediseasesgfliving.blogspot.com
Post Edited (nasalady) : 2/1/2010 9:42:20 PM (GMT-7)