Just diagnosed

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Regular Member

Date Joined Feb 2010
Total Posts : 64
   Posted 2/11/2010 11:26 AM (GMT -7)   
I have been suffering with pain for years but in the last few months it was like 5 times worse.  I have gone to the doctors before about pain and was told several different things which all of them were not true.  I have  been told I was wearing the wrong kind of shoes and then sent out the door i was told I pulled a muscle and sent out the door I was told it was anxiety or allergies and ....sent out the door.  Well the beginning of January i was in so much pain that I would have gone to the emergency room but I didn't because of the fact that ... I would be told some concocted story and sent out the door... so I made an appointment with my doctor which I hadn't been to very often(I don't go to the doctor until last resort).  When she came in I pretty much told her that i was not going to accept just being brushed off and that I really needed her to Listen to me.  I told her that I never admit that I am in pain but it is so bad that I am being forced to admit it. i told her that I have been in before about pain and was told some concocted thing and never had any followup. I told her that the pain is decreasing my sleep and now I am desperate enough to admit that I have it and something needs to be done.  So she did a whole lot of blood test and told me to call her back in a week.  I called back in a week still in pain and had to make another appointment.. she tried prednisone to see if it was something... surprisingly that didn't help anything except make me feel really weird.  She ended up sending me to a specialist and ta dah this morning i was officially diagnosed as having fibromyalgia... the doctor this morning got the full view of my morning pain because it was way early in the morning and I was not awake at all when I got there.
My biggest questions at this point is what do i have to look forward to? Does the pain get worse?  What can I do besides take pills that will help(not a fan of medications)?
   obviously new to this and full of questions

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 2/11/2010 1:38 PM (GMT -7)   
Hi Melisana,welcome to the forum, the land of the friendly fibromites. I'm sorry you have
fibromyalgia but glad you have found us. We understand the pain and we are here to help

if you haven't already check out fibro 101 at the top of page one. There is alot of good info
for a fibromite.

Fibromyalgia is something you learn to live with by taking one day at a time. Somedays
the pain will feel worse, we call that having a flare. Heat is a fibromite's friend. I find
soaking in a hot bath helpful. Many of us use heating pads and bedbuddies.

Exerercise is a must. You will become stiff and sore if you don't move. I enjoy walking.
We all tolerate meds differently. I take Savella (SNRI) daily and use a muscle relaxer
cyclobenzaprine when I'm flaring.

Most importantly you have to believe that you can live a happy life. Having a support
system really helps. Good luck to you. You will find the members here to be caring and
helpful. I'm glad you joined us!

hugs, Robin

Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 2/11/2010 2:09 PM (GMT -7)   
Hi Melisana and welcome to the family. Sorry you had to join our family but you will be happy you did. I'm glad you finally got through to your doc that something was wrong. I had to do the same thing before mine took the fatigue I was having back then seriously, wasn't even having that much pain yet but I knew the fatigue could no longer be explained away.
Be sure you read the fibro 101 thread, second on first page, it contains a lot of great info about many things.
I'm not a big fan of meds either, actually, I have a med phobia and go into an anxiety attack thinking about starting a new med. I take 100 mg of amitriptyline at bedtime, I was on this for anxiety and depression when I was dxd with fibro. I don't seem to have as much pain as many others on the forum so I think it does help. I tried cutting back almost two years ago and went into the worst two week flare I have ever had and not had one since. I have never tried Lyrica or any of the other meds that are out now for fibro. I did try neurontin (old version of lyrica) for a few days but didn't like the way it made me feel so stopped, but a lot of that is my medphobia. So I do know that I don't give meds a chance that might help me.
I did relent and started taking a little vicodin a few months ago out of desperation but only when I can't stand the pain any longer. I have osteo arthritis in my upper neck, hands and lower back and that drove me to the vicodin more than fibro did. I use heat in any form. Many of us use bed buddies you can buy or make your own out of a long tube sock filled with uncooked rice and tie the end shut and put it in the microwave for a few minutes to heat it. I try very hard to keep as much stress out of my life as possible but with my family that is impossible so there are many things I have to put in God's hands or I would have lost it years ago. I use distraction when I'm in pain by getting on the forum and try to help others or play a game on the computer that takes my mind off the pain. 
You have to keep moving no matter how bad you feel, sitting or laying all day will only make the pain worse. There are some stretching exercises on the fibro 101 thread that are very good. You will figure out in time how much exercise is good for you and how much is too much, we are all different.
These things are just what I do personally and not one treatment works for everyone so it is trial and error to you figure out what works and doesn't work for you. It would be nice if the treatment was cut and dried and the same for all but as weird as fibro is, it's not.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
Vit D/calcium

Regular Member

Date Joined Feb 2010
Total Posts : 64
   Posted 2/11/2010 3:19 PM (GMT -7)   

I have already figured out the heat thing :) the last couple of months I haven't taken any medications except for the vitamin D3 that the doctor told me to take because my vitamin D level was so low.  I had to figure out something that worked at least a little bit for the pain to make it tolerable.  I take hot showers several times a day and then I snatched the heater out of the living room and put it in my room to keep me warmer... I am always cold... on top of that I have been using a cherry pit hot pack that I curl up to and lavender oil to help me to relax a little more to go to sleep.  the last couple of weeks that seemed to help.  Before we started trying to figure out what was going on I was taking a lot of Ibuprofen and actually for three days before I broke down to see the doctor I ended up taking tylenol to see if it would help better even though I am allergic to tylenol... it didn't help either.  So right now I am only on the vitamin D3 and starting today the B12 not sure how much that will help yet.

The biggest thing I have going for me is that I have a positive attitude even with all the pain.  I am very persistant and rather determined and don't generally let anything stop me from accomplishing what I need to. I also know that I have God on my side and he isn't going to give me anything that I can't handle.  I believe the reason I am having the more severe pain right now is because God is trying to teach me something it is working to slow me down and force me to admit things that I would have never admited otherwise.  I look at this more as a growth stage rather than something to dread.

Keeping stress low was mentioned... does stress make it worse? if so that would be why it has been worse the past few months because my job has been extremely stressful... it is a high stress situation in the first place(I work as an aide in a nursing home), but add the poor management in there and it makes it twenty times more stressful.

thanks for being here.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41844
   Posted 2/11/2010 4:08 PM (GMT -7)   
Hello Milesana,
It sounds like you are figuring out fibro.  Yes stress does really effect fibromyalgia.  It is our enemy.  So if you have any destressing techniques, do use them.  I myself meditate and do deep breathing when I get stressed out.  It centers me and relaxes me.
I do take pain medications, and adderall for the fatigue.  For me the fatigue bothers me more than the pain.  But I haven't had a flare in a long time.  So I am happy for that. 
I too have to take life one day at a time.  That is one of the positive things that came from fibromyalgia.  I find that taking life one day at a time and not worrying me has given me actually a better quality of life.  So I highly suggest that.
Where I live, we tend to have crazy weather and the barometric pressure bothers me.  Well, when it changees I should say.  When there is a weather front moving in it really effects me. 
I also take a lot of vitamin D3.  I have found that it helps a lot of us on the forum.  There is information on malic acid/magnesium supplements on the fibro 101 thread, that you might want to read about.  I have found that it really helps me.  I am working a part time job now after not working for seven years.  Actually I am on leave of absence due to the fibromyalgia and the weather right now, I am going back in the spring.  So I feel actually that I am doing better than I was when I first acquired this lovely disorder. 
Any way, I am rambling.  I hope that you continue to post.  We have many wonderful members here and I think you are going to like it here.  I hope that you are feeling well and having a wonderful day.
Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Forum Moderator

Date Joined Apr 2005
Total Posts : 17501
   Posted 2/12/2010 11:09 AM (GMT -7)   
Hi, Melisana, and welcome!  As usual, you have gotten great advice from our members.  They really are great, aren't they!  We love to help one another and we really do care about each other, too, so I know you will like it here.
I use malic acid/magnesium supplements, along with the vitamin D3 to help with pain and fatigue.  These have helped me a lot but they don't help everyone.  It might be worth a shot, though.  There is a link all about them in the Fibro 101 thread.  I always pass things by my doctor first and so should you.  My doctor didn't think they would help me but he said they wouldn't hurt me either so I tried them.  He was wrong!  :-)
I also use ibuprofen with food and extra strength Tylenol for the pain.  I don't take any of the more potent things.  Between the above, stretching exercises, gentle exercises (mainly walking and swimming), and hot showers, I have managed to keep control of the pain and have lived a full and enjoyable life in spite of fibromyalgia.  A positive attitude and an anticipation of a good day works wonders too!
I'm so glad you found us and joined in.  I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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