Getting frustrated

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New Member

Date Joined Feb 2010
Total Posts : 1
   Posted 2/22/2010 8:31 AM (GMT -7)   
Hi all,
New member here. A little history, about a year and a half ago I had some pain around both knees at the same time while walking. Thought nothing of it.
Over the next 6 months I started having the feeling of dead legs in my thighs, weird, weird feelings, sometimes felt like I couldn't move.  3 months after that delveoped tingling in both feet at exactly the same time that would not quit remained constant.
At this point went to a neuro and had full blood, MRI on my brain and neck and back, nerve stimulation studies on my legs. All came out negative, in fact my blood work stated that I was very fit. At this point I asked if it could be fibro as my dad has it in his neck and chest, neuro said hope not as it's difficult to treat, let's just see how you go with no meds for a few months.
Then all symptons just dissapered for 3 weeks before this Christmas, I thought great must have been something and nothing, maybe stress.
Of course it came back just before end of January with different symptons, legs aching and jelly like I'd done 100 squats, tingling in my feet all the time (almost like pins and needles when I put my foot down in the morning getting out of bed), and sometimes stiff/weak hands.
Then went away for 2 weeks.
Now over the past week different come back like all my leg muscles are strained from doing too much exercise (which can't be as I've stopped going to the gym), then this weekedd sharp pains in both my heels when walk.
Anyone think this could be fibro, at my wits end! yeah
Luckily I'm still sleeping fine...

Veteran Member

Date Joined Jun 2007
Total Posts : 702
   Posted 2/22/2010 9:28 AM (GMT -7)   
I would rule out things such as MS, Lyme back injury etc.. thats one way to diagnose ruling everything else out...
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few

Forum Moderator

Date Joined Apr 2005
Total Posts : 17557
   Posted 2/22/2010 10:14 AM (GMT -7)   
Hi, James, and welcome!  Merrygirl is correct.  You need to rule out other illnesses first.  There are a number of them that have many of the same symptoms as fibromyalgia. 
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good information about fibro, including a link called What Else Could It Be.  These things need to be ruled out first because they can be treated.
You could have fibro but I know that when I was hit by fibro, I have never had the pain ever go completely away.  I'll have good days and days with flares but I always have pain.  So, I'm not positive what is going on there but your doctor should be able to figure it out. 
I'm so glad you found us and joined in!  Don't hesitate to keep asking questions.  We'll try to answer them the best we can.  Also, let us know what you do find out because we really do care about you.  I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 42069
   Posted 2/22/2010 10:15 AM (GMT -7)   
Hi James,

Welcome to the HealingWell Fibromyalgia forum. You have come to a very supportive place. Your doctor does have to rule everything out to get a fibromyalgia diagnosis. And that takes time.

Check out the thread called fibro101. There is a section on there that is called "what else could it be" or something similar to that. You could find some answers there.

We are all so happy that you joined us. All of the members here are so very kind and compassionate and will help you in any way that they can.

I am hoping that you get some answers, and I think reading fibro101 would really benefit you.

Take care, keep posting and remember that we are here for you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Feb 2009
Total Posts : 42
   Posted 2/22/2010 5:20 PM (GMT -7)   

my problems started off in my legs, although i was very active ( i use to train race horses) i just thought my legs were getting "over used" but when i stopped riding and the pain was getting worse and worse i decided to get some help, i have alot of numbness, cramps, and sometimes it feels like i ran a million miles and all i did was walk up the stairs, i too had mri's, ultra sounds, nerve tests, xrays, and the works i was actually in the hospital last week because of all the pain i thought i had a blood clot, it does sound like a fibro thing though the best thing would to be to get it checked out by a fibro specialist, also does it effect your hips? cause mine decided to move up there as well, im actually going to a new doctor this week to get some more help.

best wishes too you!
depression/anxiety/fibromyalgia - diagnosed - 2008

HLB 27 - positive - 2007

medicine - none

"in my eyes, if you standing there facing a pitbull its better to stay where you are instead of running away, at least it wont have the chance to bite you in the butt, so dont run from your problems, face them." - House MD

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