Hi, Angie, and welcome! I think the pain manifests itself differently with each person. We all respond differently with various medications too. We just have to keep trying things to see what works for us. You see, since the doctors don't know what is causing this, there is no set pattern at all.
I was watching television and had my toes start aching, then the tendons in the top of my feet, then my ankles, then knees....all the way up until it hit my elbows. This, by the way was happening on both sides of my body. When it hit my elbows, it was like I had banged the nerve really badly and had that horrible "electrical shock" type pain shooting down in my hands and that didn't start to subside for two weeks! I thought I had rheumatoid arthritis but it turned out to be fibromyalgia. Anyway, I went from being pain-free to being in total misery in 45 minutes while sitting in my living room watching television. I haven't been pain-free since.
I always have pain in my back, shoulders, and neck and usually a few other places on my body. Those places change from day to day. But, everyone's story will be different.
Be sure to check out the Fibro 101 thread...the second thread on the forum. There are links to a lot of good information about fibromyalgia there. You will learn a lot.
I'm so glad you found us and joined in. Keep asking questions because we are here to help you. I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7