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New Member

Date Joined Feb 2010
Total Posts : 8
   Posted 2/27/2010 1:13 PM (GMT -7)   
Hello everybody.  I get on this site all the time to check out symptoms and problems that people are having. I used to just read but I decided to register and jump in )with this question.  Does anybody get chills?  I mean out of the blue.  I also started running a sub-normal temp (which I saw on here that others have)  I am so desperate to find out if anybody else has them that I joined this site.  Please let me know.  Thanks and I am so thankful for all of the people who posts things on here.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17528
   Posted 2/27/2010 2:15 PM (GMT -7)   
Hi and welcome.  I'm glad you decided to  join to join in.  We have wonderful members that love to help one another and, as a bonus, we do care about each other, too.  So, welcome to our fibro family!
Yes, many with fibro will get chills...right out of the blue.  We will get hot, too.  Many a night I have blankets up to my ears and then get hot and take them all off and then get cold and put them back on...all night long.  Also, during the day, I can get chilled, almost like I was getting sick, and then it goes away.  It doesn't happen a lot with me, thank goodness.  The doctors are beginning to think this is a neurological illness so that would make sense with the chills.
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good information about fibromyalgia and you will learn a lot there.
I'm glad you found us and decided to join in.  Don't hesitate to ask questions because we are here to help you.  I hope to hear more from  you soon.

Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 2/28/2010 1:23:39 PM (GMT-7)

Veteran Member

Date Joined Nov 2008
Total Posts : 2858
   Posted 2/27/2010 3:02 PM (GMT -7)   

Hi there and welcome!   Yes, I get the chills out of nowhere too.  I also get goosebumps when I do something as simple as pulling a sweatshirt over my head, or brushing my hair.  I guess our thermostats are all screwed up.  My body temp is about 95 degrees.  Just one of the joys of fibro!


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil

Regular Member

Date Joined May 2009
Total Posts : 241
   Posted 2/27/2010 4:56 PM (GMT -7)   
Hi, I am glad you decided to post! I get chills like that and they always come with the aching flu-like pain. I can never tell which comes first, but the chills always make me tighten up my shoulders and make the pain in them worse.
Do your chills come with additional pain?
Fibro dx 2004, RLS, raynauds

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 2/27/2010 11:59 PM (GMT -7)   
Just wanted to Welcome you to our family and am very glad you are here.

Please do join in with your questions and your experiences also. By sharing it gives us all better ways to handle this disorder than many doctors don't even care to acknowledge. This is a self-help disorder but there are ways to make your life a lot more livable and by you and me and everyone else sticking together we will WIN!

Warm hugs,


Post Edited By Moderator (Sherrine) : 2/28/2010 1:24:26 PM (GMT-7)

Regular Member

Date Joined Oct 2008
Total Posts : 111
   Posted 2/28/2010 12:41 AM (GMT -7)   
I am always cold except for when I'm REALLY hot - so hot my ears and cheeks turn bright red and feel like they're burning. My body temperature runs low, too, around 97. I've been sick recently and found that when I feel feverish, my temperature is actually 94-95 - lower instead of higher. I keep forgetting to ask my doctor (what a surprise).

There doesn't seem to be anything for it. When I get a real chill, nothing will warm up my body, not a heating pad or a hot shower or anything. My skin will still be cold to the touch and I will be shivering with goosebumps. It happens for no apparent reason. So does the blushing and heat; though it does happen when I'm anxious or embarrassed, it also happens for no reason sometimes.

I'm only 21 and my mom jokes I'm going through menopause!

Diagnosed with fibromyalgia February 2008, dysthymia January 2009, biliary dyskinesia January 2010
Savella, Vitamin D, Provigil, Temazepam

Regular Member

Date Joined Feb 2010
Total Posts : 64
   Posted 2/28/2010 5:40 AM (GMT -7)   
I am always getting chills as well.... at work i swear the heat is set at 90(legally it should only be set at 71) but I am always shivering. My coworkers get a kick out of it because it is so hot in the building and here I am well shivering cold with a sweater on then all of a sudden i am so hot I feel like I am going to end up passing out and my cheeks get so red that other staff think that I am embarrased about something(most of the time I just let them assume it instead of setting them straight... it isn't worth the effort.)
LOL wooo hoo it says I am a regular member instead of new member now....

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 2/28/2010 9:34 AM (GMT -7)   
Hi Gagee and welcome.  I have a terrible time with body temp, I'm either freezing or sweating, rarely comfy. We keep our family room very warm, the room I'm in the most, and when I go out I dress in layers cause I never know what temp where I'm going is going to be. Some times I don't think I'm ever going to get warm but when I do a hot flash will hit.
Glad you joined.
luv and hugs

Post Edited By Moderator (Sherrine) : 2/28/2010 1:24:53 PM (GMT-7)

Regular Member

Date Joined Oct 2009
Total Posts : 434
   Posted 3/1/2010 5:13 PM (GMT -7)   
My body temperature is always lower too, usually between 96 to 98 degrees.  I will also chill for no apparent reason, I use to stay hot, but not anymore.  I will wear long sleeves to work even in the summer.  I am always saying the house is cold too.

Nana Monster
Veteran Member

Date Joined Jul 2009
Total Posts : 957
   Posted 3/1/2010 9:29 PM (GMT -7)   
My normal body temp is around 95 or 96. The guy at the herbal shop told me that a lot of overweight people have lower body
temps so it doesn't burn the fat like it's supposed to. I usually keep my heat at 55 but the kero heater has it around 60 most
days. I work in a dishroom that is usually around 80 degrees and about 100+ in the summer (I've seen it as high as 115).
I don't normally have a problem with chills unless I sit around alot. It seems to lower the body temp even more by being
Regular Member

Date Joined Dec 2006
Total Posts : 53
   Posted 3/2/2010 8:24 AM (GMT -7)   
I get chills, mostly when I get too warm, believe it or not. I mean when I am cold I get the odd chill, but when I start to get to warm, then I get creepy chills that go very deep, and the goosebumps break out, and when I have goosebumps they are terribly sensitive, my skin hurts like I have a fever. Usually cooling myself down a bit makes it go away.
fibromyalgia, Irritable Bowel, restless legs, polycystic ovarian syndrome.

Regular Member

Date Joined Feb 2010
Total Posts : 29
   Posted 3/2/2010 8:58 AM (GMT -7)   
Nana, I'm with you. I hardly ever get chills and am always too warm. When I'm the only one at home, I lower the thermostat to 55 and sometimes even open windows in the winter. I had never heard that overweight people have lower body temperatures and therefore don't burn fat as they're supposed to. Since I'm very overweight, maybe that's part of my problem.

Breast Cancer Survivor (2005); Bipolar Disorder; Diabetes; Migraines; Fibromyalgia; Knee and Ankle Rheumatoid Arthritis

Regular Member

Date Joined Jan 2010
Total Posts : 166
   Posted 3/2/2010 9:14 AM (GMT -7)   
Me, too! Just thought I'd add another voice. So cold often that I can't stand it, and sometimes the opposite. The heat hits especially at night, but does anyone else notice that it's worse if you are tired or stressed?

New Member

Date Joined Feb 2010
Total Posts : 8
   Posted 3/2/2010 7:18 PM (GMT -7)   
Thanks, everybody for the warm welcome (I need the warmth lol).  I do find that I get hot at night.  I've been cold all day then at night I get so hot that I kick the covers off and turn the ceiling fan on then I get cold.
Someone said low body temp sometimes is caused by having more weight but I am underweight or just below normal.
The chill symptom just started last week.  I'd never had it before but with fibro, it's something new everyday.
Thanks for all of your help.  It makes me feel like I am not alone.

New Member

Date Joined Mar 2010
Total Posts : 3
   Posted 3/3/2010 5:38 PM (GMT -7)   
I am new to this, but get the most unusual chill symptoms at times. It feels like they go through my head and all throughout my entire body.

New Member

Date Joined Jan 2011
Total Posts : 1
   Posted 1/22/2011 10:13 PM (GMT -7)   
im only 23 and all this just started and im really scared i dont know whats wrong with me and neither does my dr. hes checking me for hormone problems. it all happens to me at once. my body feels like its on fire every where its really hot but im never running a fever then while thats happening my heart rate and my blood pressure rises very high and i feel like im having a hard time breathing. that might be anxiety but then im really hot but my body is freezing and aching really bad when it happens especially my legs and i get really weak tired and dizzy. what do you think is wrong with me im scared an i want it to all go away?

Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 1/23/2011 12:02 AM (GMT -7)   
Yes, me too. This is one of the hardest parts: the fevery and chills feeling like you have the flu when you don't.

btw, I thought I was in menopause, but I think prozac is giving me night sweats. I get them only when taking prozac. Just got night sweat pjs which help, but look old lady.


Veteran Member

Date Joined Aug 2010
Total Posts : 795
   Posted 1/23/2011 6:25 AM (GMT -7)   
I, too, get chills at times. Usually I am really hot, for no reason, and then I get chills. Sort of feels like I am coming down with the flu or something. I also have night sweats, but I believe that is caused by the Lexapro. I have read posts from other people who take Lexapro and also wake up in a sweat at night. It doesn't happen every night. It happens two or three times a week. Strange.
Fibromyalgia, Inflammatory Arthritis, Osteoarthritis, Asthma, High BP, DDD, Bulging Discs in Cervical & Lumbar Spine, GERD, Prediabetic
Prednisone, Lexapro, Cardizem, Lisinopril, Advair, Lipitor, Vit D, Joint Supplements, Soma, Tramadol, Fish Oil Supplements
I take one day at a time, and try to save my energy for the joy in life.

Free Spirit
Regular Member

Date Joined Nov 2010
Total Posts : 190
   Posted 1/23/2011 6:44 AM (GMT -7)   
Welcome Gagee and Tiffywee,

I have had similar episodes for years, can't tell you how many times I took my temperature, expecting to have a fever, only for the thermometer to read 95, or 96 degrees! I have to lay down also, because my body aches so much while it is happening. The chills run straight through me.

At age 25 I was going from one doctor to the next, trying to figure out what was wrong. There was so much going wrong in my body at once. That coupled with fear put me in a position of being unable to properly express each symptom. What I was able to tell them just didn't fit into any category the doctor's knew about at that time. Hang in there. Don't be satisfied until you get some answers.

Free Spirit

Veteran Member

Date Joined Mar 2010
Total Posts : 1286
   Posted 1/23/2011 11:06 AM (GMT -7)   
Hi guys (gals),  I think that somehow my inner thermostat has done a flip flop.  I used to wear long underware from October until April.  Also used to wear a thermal shirt under a sweat shirt, inside or outside.  Don't get me wrong, I still get cold but I am hot more often than not.  I threw out all my pullover sweat shirts and bought a bunch of zip up hoodies, they come off easier. 
I can be sitting here in a T shirt and thin sweat type pants and break into a sweat, literally with sweat running down my body.  It is not hot flashes as I have had those, they start on the chest ade the fire goes up to the face.  This is an all over rush of heat.
On days that I am cold and can't get warm usually means I am on my way to getting sick or fighting off something.
My temperature is also around 96.......Soooo when it reads 99 does that mean I have a temp of 3 degrees above normal?  Often wondered that.
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