Hi, Kim, and welcome! I am always sad when I hear of young people getting this illness. They should be out enjoying their friends and having a great time at school. But, your daughter will probably be able to do that once you find what works best for her. We had a teen on here a few years ago that was soooo depressed and missed her "other" life. We "Moms" on here guided her and she got help from her parents and her doctor and ended up doing very well. She is now in college. So, I think this really bad time will pass for your daughter.
Be sure to check out Fibro 101...the second thread on the forum. There are links to good information about fibromyalgia and you will learn a lot there.
We do have flares...times when the pain is horrendous....and that causes more fatigue and it sounds like that's where she is right now. Also, the stress of this illness can cause depression and more pain so it is like a vicious cycle.
Everyone is different when it comes to fibromyalgia pain and the medications that they take. I take ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements, and vitamin D3 to help with pain and fatigue. There are links about the supplements in Fibro 101. They will explain how they work in the body.
It is very important that she keep moving. I know the last thing you want to do when you are in pain is to move but, if you don't with fibro, you will be stiff as a board and you will have more pain. There are some good stretching exercises in Fibro 101 that really do work. Have her try these. They can be done sitting down so, when she goes back to school, she can do these at her desk. They aren't really noticable, either. Also, she needs a gentle exercise plan to keep her moving. For me, it's walking and swimming. These both are wonderful for fibromites. When I started walking, I could only go four houses down. Now, I do a lot of walking, starting with a one mile walk with my dog every morning. Some days I don't want to do it but I always feel better when I get home and I have more energy, too! It's really worth it.
When she does things, she needs to pace herself. She can still do much of what she did before fibro but it will take a little longer. Her body will tell her how much she can do before it "screams" at her. She will learn how to live with this illness. We all do.
Moist heat is great for fibro. Hot showers and baths feel so good. Many have a Bed Buddy. You can get these at Walgreens and other places or you can make one by taking a tube sock, filling it 2/3's full of raw long grain rice and tying a knot at the end. Pop it in the microwave and it will give off moist heat due to the moisture in the rice.
A positive attitude is a huge benefit to have with fibromyalgia. Have her start thinking of all the things she CAN do with fibro, instead of what she is having problems doing right now. The negative thinking will just make her more miserable and she will hurt more, too. She needs to know that she can have a full and enjoyable life in spite of fibromyalgia. I know I have! I've had fibro for decades. When I was diagnosed, it was called fibrositis! It hit me between the eyes one evening and I just learned how to deal with it. Consequently, I've now done a lot of traveling in the world, I've stood on glaciers, I've snorkled and parasailed, and this past December I spent 9 hours walking through Disneyworld and even went down Splash Mountain! I'm no spring chicken either. I'm nearly 63 years old!
I do believe that she will get there, too, once you find the right combination of medications that will give her control over the pain. She will learn to be in control of fibro instead of fibro being in control of her! We are here to help her, too. It might be good for her to come on and ask questions, too. We are very family friendly on this site.
I hope I have answered some of the things that I'm sure are rolling around in your mind right now. I can't wait to hear that she is doing better and is back at school with her friends. Don't hesitate to ask questions because we are here to help you. I hope to hear more from you and from your daughter soon!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7