Hi, Uniquely Lyme and Arizona Lady, and welcome! Fibromyalgia can be a very ugly illness but, once you get control of the pain, you can really enjoy life again. I know that I have.
Be sure to check out Fibro 101...the second thread on the forum. There are links to good information about fibromyalgia and you will learn a lot there.
It is important that you keep moving with fibro or you will be stiff as a board. Gentle exercises are very good to do and there is a link in Fibro 101 with some good stretching exercises that really do work. Also, you need a gentle regular exercise, too. I walk and swim as my exercises. When I started walking, I couldn't go more than four houses down and had to come right back. But now I can walk long distances and I feel so much better when I get back home and have more energy! And, when I'm in the water, I really don't have pain. The weightlessness that water causes is so wonderful and you can move much more freely.
Moist heat is our friend. Many here have a Bed Buddy. You can get these at Walgreen's and other places or you can make your own by taking a tube sock, filling it 2/3's full of raw long grain rice and tying a knot at the end. Pop it in the microwave and this gives off moist heat due to the moisture in the rice.
I use ibuprofen (2,400 mg per day), extra strength Tylenol (4,000 mg. per day), malic acid/magnesium supplements and Vitamin D3 to help with pain and fatigue. There are links about the malic acid and the vitamin D in Fibro 101. Many with fibro are deficient in these vitamins and nutrients.
Be sure and pace yourself. You can't do everything you used to do in the same time frame. You can get it done but it just takes longer. I'll work a little, sit a little, work a little, etc. and that helps too.
Attitude plays a big part in fibro, too. Always try to look at the things you can do and don't dwell on the things you have difficulty doing. Find things you can do that takes the focus off the pain. I find that the pain will fade some in the background when I do that, too. With fibro, the pain waxes and wanes so you will have bad days and better days. Because of that, I look forward to each new day with anticipation and I do take one day at a time. If I'm having a bad day, I know that I can handle that and look forward to the following day. See what I mean? I know I sound like a Pollyanna but this does help me a lot. I'm a positive thinker and this has helped me with depression and anxiety that usually goes along with this illness.
A good sense of humor is wonderful...especially when it comes to fibro fog! We have had many laughs over some of the dumb things we have done....like when I tried to start my car with the key to my freezer!
Anyway, I'm glad you are here and have joined our family. Don't hesitate to ask questions because we are here to help you. I hope to hear more from both of you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
Post Edited (Sherrine) : 3/7/2010 6:22:24 AM (GMT-7)