My sis thinks I'm losing it...

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Date Joined Sep 2009
Total Posts : 663
   Posted 3/9/2010 1:59 PM (GMT -7)   
Hi all, I just had to share with you my latest thing and see if any of you do this. Since the pain has gotten so bad over this last year, which sent me to Doctor after Doctor until I finally got my diagnosis of fibro I having been scouring the internet daily trying to disprove my diagnosis. I look on here everyday and any other article I can google about fibro trying to find the symptoms I don't have. I guess I'm scared of this being a lifelong thing. I was hoping for something that could be fixed ( I'm sure we all were). Anyway, as some of you know I had to go get a couple of teeth pulled yesterday as I got a toothache 2 weeks ago and it was horrible. While during the last two weeks I had a horrible headache (more horrible then usual but not a migraine either) that started a couple days after the toothache. So last night I was trying to see if a bad tooth could cause a headache, well I found another forum regarding bad teeth causing all kinds of horrible stuff, someone even posted that it could cause fibro like symptoms. Well as you all can probably guess by now, I thought I was going to wake up cured...ta dah! :( and as you all know, I wasn't. I guess you would have to have a really bad tooth for a really long time to have this happen. Does anyone else torture themselves this way? Any ideas how to stop? Once again, thanks for listening.
Gentle Hugs,
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Lopressor, Lexapro, Famotidine, and Promethazine as needed for nausea from migraines

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Date Joined May 2008
Total Posts : 704
   Posted 3/9/2010 2:09 PM (GMT -7)   


Lost my post so I'll keep it quick, can't say I blame you. I know when I got diagnosed with Lyme this past spring, I was convinced that thru a pic line and IV, I would be cured from all my fibro pain. Well, after two months I started realizing that it was still there. But I don't think we ever stop having hope that it will go just as it came. I know I don't anyway.

Lyme, Fibromyalgia, Anxiety, IBS, Reflux, Insomnia,Sleep Apnea
Current Meds: Tramadol, Percocet for break thru pain, & Adavan
Taking it one day at a time.... 

Forum Moderator

Date Joined Apr 2005
Total Posts : 17557
   Posted 3/9/2010 2:34 PM (GMT -7)   
Shannon, do you trust your doctor?  That is important.  If you do, then you need to accept the diagnosis and look forward.  The anxiety and stress you are going through doesn't help one bit.  I think we all checked around but the answers are not there for fibromyalgia...yet.  They are actively working on this now. 
There are tons of "cures" for fibro out there.  I just got done editing 14 of the same post for the same wonderful cure that took you to a website that sold a lot of stuff that was well over $100 a pop!  The hucksters are out there to line their pockets with our pain.  There is a lot of advice out there that isn't sound, either.  It's so easy to get caught up in that stuff and to be so disappointed when you find out the truth.
You said your pain has gotten worse over the past year, which means to me that you have had this pain for quite a while....far longer than you had your toothaches.  I honestly don't think there is any correlation.
When you totally accept this illness is when you can start to move forward and feel better.  We might not have this for life.  I do think the doctors, that are devoting their lives to finding out what causes fibro and how to cure it, will figure this out.  You have to have hope.  
So, stick with us.  Ask questions.  We will share what we do to feel better and have a full, enjoyable life in spite of fibro.  I know that I've done everything I've REALLY wanted to do.  I find ways to work around fibro.  I don't stress myself out over it so I am helping ease my pain that way, too.  I think positively about life and am thankful for all I CAN do and don't dwell on the things I used to be able to do quite easily.  I still can do most of it, but in a different time frame.
As you move forward, you will learn what you can do without your body "screaming" at you.  You will learn your limits, when to take a break, etc.  It will become a way of life for you and you won't be thinking about fibro all of the time.  It's part of your life and thank goodness it isn't life-threatening!  So, relax, ask questions and we all will give you a hand!
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Feb 2009
Total Posts : 846
   Posted 3/9/2010 2:36 PM (GMT -7)   
Hi Shannon and welcome. I am terrified of dentists. I had to have a tooth pulled last summer and I actually was sedated for it. I woke up and everything was done, like magic. Now I have a post where the new tooth will be in a few months. I also was 'asleep' for that too. My blood pressure goes crazy because i get so worked up, so being asleep is the right thing for me, but maybe not for everyone.

I get a little down some days because I can't do everything I use to, but actually I keep pretty active. I'm 64 now and was dx'd a year ago but like many here, I know I had it for a long time. Probably even going back to childhood. Because I've always exercised and practiced yoga I think I kept the FM in check a little.

The people here are great!
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
On the eighth day God created Golden Retrievers.

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 3/9/2010 5:28 PM (GMT -7)   
 Somedays I'll get frustrated and down because of chronic pain. I think we all wish
we could wish it away. Life can still be a beautiful thing. Each day a new chance to see
what it brings. Some days will be happy and others wil be sad, but we still have the chance
to just live it and that makes me glad. One day at a time and it's ok to cry, but laughing
is more fun.

Hugs, Robin

Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Veteran Member

Date Joined Sep 2009
Total Posts : 663
   Posted 3/9/2010 5:57 PM (GMT -7)   
Thank you, I feel better knowing I am not the only one who is having trouble coming to terms with this. I do trust my doctor very much and that helps alot. She's great and is working hard on getting me on the right mix of meds. Yeah, I have had all the fibro stuff alot longer then I had the toothache, it's just that I tried to tell myself that maybe it had been bad for alot longer then it, at least I can laugh at my craziness now but I was seriously let down when I woke up and still had fibro. What a goof I can be! Laughing is so much better then crying so I guess I gave myself some much needed humor. Take care all, I'm sure I will have another issue to post about in the near future, in the meantime I'll be reading everyone else's...take care all!
Gentle Hugs,
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Lopressor, Lexapro, Famotidine, and Promethazine as needed for nausea from migraines

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 3/11/2010 8:00 AM (GMT -7)   
Shannon, I had a very hard time accepting fibro and so did my DH. It does change your life and your family's lives. DH was talking to our oldest son last night on the phone and I heard him tell son we don't have a life anymore, we don't have the friends we use to, they got tired of asking us to do things I guess, we don't travel the way we use to and when we do we have to stop after 4 or 5 hours cause that is all I can handle in the car. It made me feel bad for him cause it's not just me that has fibro it affects the whole family.
Don't get me wrong I am very thankful for what I can still do and that I have a wonderful understanding husband and family but I would be lying if I said it hasn't changed our lives. I also know there are many, many things worse than fibro I could have gotten and I'm thankful for that. Having fibro is like coming to a detour in the road and having to figure out a different route to take to get to where you want to go. You still get there, it will take longer and the road may not be as nice as the other one was but you have to suck it up and keep going.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
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getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 42066
   Posted 3/11/2010 3:09 PM (GMT -7)   
Hi Shannon,

I am really glad that you have joined us. Know that you are not alone with this. We have all had to learn differnt ways to do things and different ways to cope. But it gets easier with time. You might still have a fibroflare now and then but know that it doesn't last forever. Fibromyalgia is a strange disorder, but know that we are all in this together. I hope that you have better days to come.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

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