Fibromyalgia following Complex Regional Pains Syndrome/Reflex Sympathetic Dystrophy

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Mar 2010
Total Posts : 1
   Posted 3/14/2010 9:35 AM (GMT -7)   
Five years ago I was diagnosed with stage 2 CRPS/RSD involving my right leg. Great relief was achieved with a procedure involving inserting a needle into my spine until they reached an area that caused my leg to warm indicating increased blood flow. I was told at the time that there could be a another occurrence and it would not necessarily involve my leg.

For the last 15 months I have experienced generalized pain that is virtually debilitating. I have had significant relief from Chiropractic care and it has been suggested by my chiropractor that I am suffering from fibromyalgia. I am told that there is believed to be a significant incidence of fibromyalgia following CRPS/RSD.

Does anyone know anything about this? Could you tell me what further things I should consider?

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 3/14/2010 11:33 AM (GMT -7)   
Hi djjl

Unfortunately, I don't have any answers, but I did want to welcome you to the HealingWell family. I'm sorry it's pain that brought you here, but you certainly found a wonderful place of support and encouragement. If you haven't already read the document called Fibro 101, you might want to...there might be information there you'll find useful.

I hope one of our other members has the info you need, but in the meantime, I hope you'll stick around and join our little family.

All my best,
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine plus Vitamin D and Multi-Vitamin daily

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 3/14/2010 11:36 AM (GMT -7)   
Hi djjl and welcome. Many have gotten fibro after a physical or mental trauma so I don't know why you couldn't get it. Some people can't relate anything to their getting fibro.
Read the fibro 101 thread, second on first page, it contains lots of great info including a list of symptoms that you could print out and check the ones you have and take it to the doc if you find you have many of the symptoms.
You need a doc that believes in fibro, there are some that still don't believe it is a real illness and think it is all in our heads. It doesn't matter what kind of doc some use internist, rheumatologist or PCP. My GP dxd me after ruling everything else out, which is also in the fibro 101 thread under what else could it be.
If you have anymore questions feel free to ask.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
Vit D/calcium

Eliza H
New Member

Date Joined Nov 2012
Total Posts : 13
   Posted 11/27/2012 8:06 PM (GMT -7)   
Hi all,
I wanted to introduce myself as I am brand new to HealingWell. My name is Eliza, I am a 26 y/o female from New York, NY. Djjl, it seems we have a few things in common now. I realize you wrote this a while ago, how are you feeling today?
I have been living with RSD in my right leg since 2008, had most treatments available and currently have an SCS to manage my pain. I was just recently diagnosed with pain condition #2, fibromyalgia. I am feeling nervous as I have managed to fight my way back to standing on my feet with my RSD and don't know what to expect now.

26 Years Old trying to positively overcome RSD, Fibromyalgia, Food Allergies, Acid Reflux, Anxiety, Hypoglycemia, Low BP and Vitamin B+D deficiencies.

Have a Spinal Cord Stimulator for the RSD :)

Regular Member

Date Joined Nov 2010
Total Posts : 299
   Posted 11/28/2012 8:36 AM (GMT -7)   
Hi Eliza,
Welcome!  You will find a lot of information and support here.  I found your post particularly interesting.  I was diagnosed with Fibro 6 years ago.  I knew a good deal about chronic pain because my father also has RSD/CRPS.  I think it is marvelous that you have found a way back to standing on your feet with the RSD.  My father has had it for about 17 years and still has a daily struggle.  He also had a SCS but found that it wasn't the answer for him.  I have also thought recently that he possibly is starting to show signs of Fibro as well. 
I think one of the best things you can do is educate yourself about Fibro.  There is A LOT of unknown, but there is a lot of information out there about what is "normal" and what you can expect.
Lastly, I too am on the young-er side.  I was diagnosed when I was 24 years old.  I know our struggles can be very different from those who are in their 50's and 60's.  Please know that you are not alone and you can still live a full life and accomplish all of your hopes and dreams.
I hope you find much support from this wonderful forum!
"Just when the caterpillar thought the world was over, it became a butterfly" - Proverb
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 15, 2017 8:47 PM (GMT -7)
There are a total of 2,905,994 posts in 318,907 threads.
View Active Threads

Who's Online
This forum has 158253 registered members. Please welcome our newest member, Jessica Jaroff.
345 Guest(s), 11 Registered Member(s) are currently online.  Details
PeteZa, 19tarpon47, Keylyme, dipson, Worried386, Michael_T, Girlie, rafaeltoral, ExplosiveKittens, Jessica Jaroff, Goat0724