Just got back from appointment with pain management doctor

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Veteran Member

Date Joined May 2008
Total Posts : 704
   Posted 3/18/2010 10:48 AM (GMT -7)   
I just had a doctor's appt with a pain management doctor. My rhuemy felt like I should see a pain management specialist at this point because she felt she did everything she could to help me. Well all he did was feel my tender points get them flared up and say that he feels I should stop taking percocet's because they are making my pain worse. I asked him how I was to go to work everyday and manage the pain. He said that in a few years there will be things on the market to help me.

I cried the whole ride back to work. I'm in so much pain. I feel like, I just don't know..my husband thinks that is is just not what I wanted to hear and I need to try exercise and loosing weight and that will help.

I feel so all alone.

Hopegirl...aka Monica
Current yucky stuff: Lyme, Fibromyalgia, Anxiety, IBS, Reflux, Insomnia, Sleep Apnea, PCOS, Migranes... to name the major players....
Current Meds to help yucky stuff: Tramadol, Percocet, Adavan, Prestique, Neurontin, Frova
Taking it one day at a time.... 

Post Edited (hopegirl) : 3/18/2010 11:56:53 AM (GMT-6)

Veteran Member

Date Joined Jun 2007
Total Posts : 906
   Posted 3/18/2010 12:06 PM (GMT -7)   
HopeGirl, How lame is that? A few years? Also tell you husband losing weight will not help your fibro, maybe other stuff. I am going to have a lap band weight loss surgery in a few weeks and my rheumy keeps telling me, "Don't expect your fibro to get better. Weight loss won't help it" Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea

Veteran Member

Date Joined May 2008
Total Posts : 704
   Posted 3/18/2010 12:15 PM (GMT -7)   

Thanks Diane,


I just feel so alone, my husband thinks i'm on way too much meds and I would think the same thing too if I didn't have to deal with everything I do. But I guess I was expecting the doctor today to have some wonder drug, or maybe even the patch thing to help with the pain, I was not expecting him to say basically bear with it and exercise and some very proving medications for fibro should be available in a few years. He just kept saying he thinks percocet makes me much more hypersensative and I was just crying, I don't know of anything else that helps as much with the pain so I'm feeling like what do I do now?

Taking it one day at a time.... 

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 3/18/2010 1:34 PM (GMT -7)   
I personally think you maybe need to get a second opinion with another pain mgmt doc. I had one before and he was a jerk, saw another one and he was more sympathic. Gentle Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined May 2008
Total Posts : 704
   Posted 3/18/2010 1:36 PM (GMT -7)   
thank you nanners, I am thinking about that

Taking it one day at a time.... 

New Member

Date Joined Jan 2010
Total Posts : 17
   Posted 3/18/2010 2:05 PM (GMT -7)   
I'm so sorry. I've seen my share of jerk doctors too. I agree that you should go elsewhere. We have chronic illnesses and need to feel that we have a "team" that understands us. I know you feel just awful now, but please don't give up. There is someone out there who will be willing to help you. ((( hugs)))
RA, Fibro, Migraines

Enbrel, methotrexate, lodine, sertraline, relpax, nortriptyline, gabapentin, and vicodin

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 3/18/2010 2:43 PM (GMT -7)   
Hopefully there's a doctor out there who is able to come up with a great med combo to
get you the pain relief you need.

I read of this doctor who was giving a lecture on fibro pain. He explained to the people attending the lecture that they have been sitting for 30 minutes. he told them while they were sitting their nerves in their buttocks and backs were sending messages to their
spinal cord and brain that there is pressure in those regions. Since it's not harmful the
brain sends back messages to ignore it. He went on to say people with fibro the messages
aren't as strong as they should be and we percieve pressure as painful even when it
shouldn't be. Our pain is due to the way the brain and spinal cord transmits pain. He said
our volume control is turned up on pain.

No one should have to suffer needlessly. Trial and error, many of us have been through
it, but a doctor should never give up on a patient! I'm hoping you wont have to wait
long to find help. sending gentle hugs!!!

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Regular Member

Date Joined Jun 2009
Total Posts : 286
   Posted 3/18/2010 2:55 PM (GMT -7)   
I have a few "letters" to non believers that I have collected and compounded on my blog. Maybe they'll help. Send me an email or something (just click on the little envelope underneath my name) and I will give you the link to them. :)
"Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength."


Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, TMJ, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.
Rx: Celebrex, Buspar, Savella, Lyrica, Neurontin, Requip, Nexium, Symbicort, Compazine, Lunesta.
Supplements: Vitamin B Complex, Vitamin D, Vitamin C, Iron

New Member

Date Joined Mar 2010
Total Posts : 1
   Posted 3/18/2010 4:17 PM (GMT -7)   
This is my first post ever.  i mean ever on any chat room.  i have had fibro for at least 10 yrs and am at wits end.  i am on Lortab and every doc i go to makes me feel guilty for being on it.  i feel guilty when i pick up my prescription.  but this is the only thing that i have fould that helps at all.  i have to work.  if i did not work, i probably could do better with out this drug, but i this point, that is not an option.  can anyone let me know what other pain meds help that would not make me feel like a drug addict?

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41820
   Posted 3/18/2010 5:49 PM (GMT -7)   
Hi Inpain14,

I don't think that there is any narcotic that would not make you feel that way, the thing is we shouldn't have to feel guilty for needing pain medications. I take norco which is like lortab, and I know what you mean. But I know that I need the medication and that is how I get through it. So try to cut yourself some slack and try not to feel bad. You have enough to deal with besides that.

I hope that you enjoy the forum, and WELCOME! You have come to a great place to vent, and look for support. If you feel comfortable with it, start an introductory thread for yourself so that we can get to know a little about you. I am sure that you will like coming here, we all get a little addicted I think. Especially with the daily Koffee Klatch. Chutz posts one every day.

If you get a chance, take a look at fibro101. It is the second thread on the forum. It has a lot of useful information there and some interesting stuff.

I hope that you have a good night and a painfree day tomorrow.


I hope that you do get a second opinion. And I hope that the doc doesn't cut out your pain meds all together with out weaning you off. This just isn't right. See another doctor soon.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Oct 2009
Total Posts : 4906
   Posted 3/19/2010 7:07 AM (GMT -7)   
Hi -
I see two pain docs and they're both good in their area of interest. Neither one knows much about fibro though. I've had to find my own levels and drugs for treating that.

One pain doc is an anesthesiologist who does a great job with spinal injections, but nothing more. I have osteoarthritis in my whole spine and lots of problems because of that. The other pain doc is a general doc who does some spinals, but only certain types (fixed my sciatica right up!). He doesn't like his patients taking pain meds, but allows the ones Rx'd by my rheumy. 2nd doc had me doing all sorths of therapy, which didn't help.

First thing to work on by yourself is what meds work and how much to take: You didn't post your levels. I'm extremely sensitive, so my levels aren't going to work for everyone. My rheumatologist prescribed 300mg Neurontin at night. That much knocked me cold, and I still take it when I know I need something extra, like last night when I was going to need to get up early and get going fast, but not more than once a month or so. So now I'm supposed to take 100mg 3xday. I take it morning and night. But since it makes me sleepy, I take a 50mg tramadol in the morning along with it because tramadol wakes me up and makes me happy. I never take tramadol in the evening because of that.

A week ago or so I discovered a new pain reliever for my fibro, after asking for a vitamin D test, which is never regularly prescribed, that my level was only 18. I read in a recent article that the new levels needed are going to be 50 to 80. Also in Medscape (doctors' online journal) there was a formula for how much to add to get your level up: 100mg D3 for every 1ng/mL you are low. That means that for my level of 18 I needed to add 2000 units a day just to get to 38 and 3000 units just to get to 48. So I take 2000 units twice a day.

I noticed a remarkable lessening of my fibro pain overnight! It didn't help my bone pain or my trigger fingers (from Aromasin), but a lot of the muscle pain dissipated and hasn't come back.

Veteran Member

Date Joined May 2008
Total Posts : 704
   Posted 3/19/2010 11:34 AM (GMT -7)   
What a difference a day can make!! smilewinkgrin
I'm feeling so much better today. I took my tramadol this morning which is 50mg x2 and 1 50 mg provigil and I was feeling pretty good. I just took my 2nd dose of tramadol and I still am feeling pretty good.
Thank you all so much for your words. I am going to see my primary on Monday and explain to her what happened and see where we go from there.
Inpain- No we should not have to feel guilty about getting pain relief. I always wonder when the people look and say the things they do, if they walked a day in a life of a person with daily pain, if they would look or say something else.  There is a wonderful discussion on this boards, but of course I could not find it when I looked but it talks about being dependent on medication vs. being addicted to medication. I think when you have chronic pain you can't help but become dependent on it. I know that I am, I depend on the medication to get me thru my 8 hours of work each day. I am dependent on my medication to help me lead a more productive life that I would otherwise not be able to do so. If I woke up tomorrow and discovered I was pain free and no longer required prescription medication...if would be wonderful, not having to worry about constipation, having meds keep me up at not, it would be great. But until then, it is what it is.
Oh, I think someone asked about the dosage my break-thru pain meds is percecet and it is 10/325. When I first took them I had to be at home cause I would be out of it. But after a while, many months I am able to work and function when I need to take them.
Also, I had my massage yesterday, and it was for an hour, I fell asleep before 15 min went by, I was so exhausted from crying, stress and all the emotions. But thank you GOD, I am feeling so much better today!!!
Taking it one day at a time.... 

Veteran Member

Date Joined May 2008
Total Posts : 1081
   Posted 3/19/2010 12:04 PM (GMT -7)   
I have been battling the medication thing since being hit by a truck in 02. Prior to that, yes, I was dx'd as having Fibro, amongst other things, but was managing w. 75mgs. Elavil at bedtime and OTC pain relievers, by day. Since the accident, more damage was done to my soft tissues and I have needed narcotic pain relievers to function, minimally. I have been through an awful ordeal w. various doctors whom seem to look at me as an addict, instead of doing tests, making referrals, or whatever else might be available. I am now, permanently disabled and barely survive on Social Security. However, a good day is one in which I don't have to try to make appointments or go out for anything unless I desire an outing. Recently, as I waited the last two days before my next allotment of the short acting medication was to become available, the pharmacist (Lady) took it upon herself to call my doc and suggest he revisit my pain medication situation as she sensed I wasn't on the right meds. and the mild pain relievers I was on, wereinsufficient. I will make an appointment with him, (the reluctant doctor) 1 more time to see if any of the message got through. If he maintains his "just suck it up" attitude, he's gone. I have investigated another doc, and may investigate one more the Drug store lady suggested. It is awful feeling like a criminal on top of all the other symptoms we deal with, like Costochondritis (I was absolutely positive I was having a heart attack yesterday morning). Dead to rights, I was scared and paralyzed. So, all I can say is I have been fighting the good fight for 8 years and am getting tired of it all. I want nothing more than to be able to complete a task, I've started in the same week I begin it. I do not want to feel anxious as month's end approaches, and meds are getting low. I don't ever want to go through "withdrawl" as it relates to not being able to get my meds when I need them. I am going to fix this and then I will shout from the mountain tops; "people with fibro hurt!" We deserve better treatment. "Get it together you politicians playing doctor and putting people's lives in peril." "Get it together pharmacists!" who think and sometimes act out fantasies of "catching another addict" and setting them on a straight path. No more persecution of people in pain! Period. Thank-you all for listening to me.
Hypothyroidism, Fibromyalgia, Facet Joint Syndrome, High Blood Pressure, menopause, Migraines, Chest Pain, Anxiety and Depression/BiPolar II
Synthyroid .075mg., estradiol.5 mgs., Amyltriptilene, 100mgs, bedtime, Tylenol 3 PRN (six-eight, daily), Valium 7.5mgs. daily prn. Flexeril, prn (not so helpful), Zoloft,150mgs., Zomig approx. 12 per month, prn., Meds for High Blood Pressure, vary.

New Member

Date Joined Dec 2009
Total Posts : 1
   Posted 3/20/2010 10:13 PM (GMT -7)   
I'm new to the forums, so I don't have much credibility here yet, but I wanted to let you know that I've sat where you were sitting.  You're pain dr. sounds just like my pain dr 14 months ago.  I was on Vicodin 10/660 mg, 4x a day and it was not doing the job.  I was in so much pain I would pace the floors at night and curl up into a ball during the day.  He said the same thing that your dr. said. He believed the pain medicine was exacerbating my pain levels and that I needed to lower my dosage.  Like you I was in despair, but I live in a rural area and drove almost 2 hours to see him.  I live in SE Texas where a lot of pain clinics had just been closed due to a law enforcement narcotics bust.  Pain doctors here are paranoid and I did not want to come across as a pain doctor "shopper" so I stayed.  He lowered my dose to 7.5/750 mg. 3x a day.  Wow, I thought I was in pain before........
Well, my body eventually adjusted, and I cant say things got better than before I saw him, but the pain leveled out and sure enough, the new dose was sufficient to keep me at the same levels as when I first saw him.  In the meantime we tried several other things to lower my pain.  I was always very careful to follow directions and never use more Rx than prescribed.  Finally, after 11 months he said to me "We've done all that we can do for your pain and the only other alternative we have is to go with a very strong narcotic."  He proceeded to put me on the fentanyl patch and gave me vicodin for breakthrough pain.  Why?  I believe I gained his trust and he saw for himself that I was "for real."  The patch is doing wonders for me (along with umpteen other drugs that I take), this is the best I've felt in 5 years.  Now when I go to my monthly appt. they practically throw my prescriptions at me, I have more narcotics than I know what to do with.
I tell you this story so that you will not be in despair.  If you can find a doctor who is more sympathetic and will give you the narcotic you believe you need, then go for it!  But, if you can wait, maybe, just maybe, this doctor is "feeling" you out and trying to see what kind of patient you are and if you will be cooperative.  Its amazing to me that doctors are soooo willing to put us on anti-depressants that have horrible side effects and must be stopped very slowly or we risk serious health problems,  yet they are reluctant to prescribe us the pain meds that are proven to help with our pain, have less side effects, and are actually easier to halt (recent studies have proven that if you take narcotics for serious pain you do not become addicted only physically dependent, and even less so than originally thought).
Good luck, keep us posted about your attempts at adequate care, and my thoughts are with you!

New Member

Date Joined Mar 2010
Total Posts : 8
   Posted 3/21/2010 10:50 PM (GMT -7)   
Hi my name is Jan. I know how you feel!!! For ten years they told me I was crazy, there was no pain. My family thought I was trying to get sympathy, like I had nothing better to do. Nanners is right!!! Keep looking for a good doctor that understands what you are dealing with. Find one that listens to you. You know your body better than anyone.

Try heat, it works for a lot of us. If you have to get an electric blanket, that is what I did. Also swimming is good and a hot tub. Keep coming here it makes you feel not so alone. Everyone here understands.

Welcome to our group. Hang in there. Remember you are not alone. Jan, (cutechick)
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