Hi everyone. This is my first time posting and honestly I don't know if it's even Fibro that I have...they've mentioned Fibro, lupus, MS, and I'm getting tested for Lyme next week among a multitude of other things. I should mention I'm 26 and have Interstitial Cystitis, IBS, PFD, Vulvodynia and a bunch of other stuff.
Anyway, this year I've just gone down hill "quickly spiraling out of control" is actually how my urologist put it to my new pain management doc....and I have an appointment with a Rheumy (not until July, but the nurse said she'd get me in next week hopefully). In any case, I just figured I know how long it took me to get my IC diagnosed, living years with the symptoms and from what I understand it's the same with Fibro - and most of the other autoimmune diseases. I got really sick with a "sinus infection" in January, then a "UTI" in February (all in quotes because I'm not sure if that's what they really were at all), and then about a month ago just crashed in all over intense pain...my WBC spiked with a fever, vomiting, just a ton of symtpoms that fit every autoimmune (but hopefully not neurologic) disease in the book. I see a physical therapist for my Pelvic floor dysfunction but couldn't have her work internally last time due to some injections I had so she did manual therapy on my back, neck, hips, upper legs and glutes (where I'm having the most muscle pain as well as my joints). afterwards she said just about every area on my body lit up like a christmas tree indicating inflammation everywhere.
I have some ok days, mostly just exhausted all the time, constant headaches...but some days I have so much muscle pain it feels like I did an 8 hour work day the previous day and even my muscle relaxers, and valium and pain medicine and heat/stretching doesn't do ANYTHING.
I know I'm just really scared so that's got my stress level up which isn't helping...but could anyone give me some insight as to whether this is what you go through in a Fibro flare? or if you have any of the other diseases if it sounds more like one of those?
I should mention I've had 3 abdominal surgeries (adrenalectomy, appendectomy and gallbladder removal ( the last 2 just last year) so I have a lot of abdominal pain but near my right kidney which I don't know if that's even related...I really just have too many symptoms to name - just about every single symptom on the info packet to fill out for the rheumy is checked off...
I know no one can give me solid answers, but personal experience always seems to help me get through it...and I really appreciate any feedback. Thank you all in advance :)