Questions about Neurontin

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Irish Babe
Veteran Member

Date Joined May 2007
Total Posts : 1380
   Posted 3/27/2010 2:51 PM (GMT -7)   
I have been having an even worse time w/ my back that I usually do. To add to my fun, my left leg is acting up, too! I have been going crazy w/ the burning and numbness in my back and leg. I don't sleep well and sometimes they come 'alive' when I finally get to sleep. The burn wakes me up and the pain is just horrible. I can feel the soreness of the nerve path all day and night.
I went to my pcp the other day and when I explained what was happening, she gave me a rx for Neurontin and told to see a neurologist. My dose is 100mg, 1 cap 3x a day. I waited till bedtime, as it said drowsiness was a possiblity. WOW! I wasn't able to get up (tho awake) and function for better than 10 hrs. To make it even worse, my throat was sore on one side and it felt like it was congested only on that side. Like I had to cough something up, but there was nothing to cough up. I had this all day and night. I thought I had slept w/ my mouth open, but I tried it again the next night and had the same reaction. I didn't take it the 3rd night an didn't have either the extreme sleepiness or the throat problem. It didn't seem to make any difference w/ my back or leg, still burning and numb. I also feel more irritable w/ others, I don't like this at all.
Has anyone had any of these reactions? I know I have problems w/ so many meds, I just keep hoping that something will help w/ this back and leg issue, it is relentless.
Thank you for any info you can share w/ me.
God bless.  Alice.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41838
   Posted 3/27/2010 3:04 PM (GMT -7)   
I didn't have that problem with it Alice, but it made me stammer. I couldn't talk right. I could not get words out. So I quit taking it.

This might be a side effect that will go away in time. Usually it takes about two weeks. I hope that the medication starts helping you. It didn't help me much with pain.

I hope that you are having a great day.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 3/27/2010 5:12 PM (GMT -7)   
Hi Alice, I'm sorry to hear you are experiancing more pain with your back and now your
leg. Could it be sciatica? For years I have had trouble on and off with it. I have taken
vicodin, and flexeril for it but never neurontin. In the past I have done the chiropractic
route, physical therapy and in the end did back surgery to find relief. Be persistant in
finding good treatment to avoid permanent nerve damage. I waited too long and my right
leg is weaker. Oh, I forgot I also took meloxicam to help with the inflamation. Just be
aware that some meds will help with the pain but don't solve the problem.

Hoping you find relief soon, Alice.

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Irish Babe
Veteran Member

Date Joined May 2007
Total Posts : 1380
   Posted 3/28/2010 7:48 AM (GMT -7)   
Thank you so much for your responses.
Karen, I find I have a problem w/ speaking sometimes, but this was a problem before the med. That was one of the reasons I had to give up teaching. One of the things I forgot were the really weird and vivid dreams I've been having since this med. I do hope they stop.
Robin, I have had sciatica since I fell off the balance beam in HS. They took Xrays and looked, but nothing, 'You're fine'. I would walk and my left leg would give out on me and I would hit the ground. Guess I wasn't fine. Finally, my parents took me to a dr in NYC who did a very simple test on me. He had me stand in front of him, my back to him, bend over and he pressed his thumb on this spot on my lower back. I started to fall, he grabbed me and said, 'It's Sciatica'. I've had it hit many times in the past 40 yrs, not one dr has ever made much of it, aspirin, advil, heating pad, Icey Hot. I have never had the feeling in my leg like I have now. My back has been 'on fire' for so many yrs w/o relief and not one dr has been of help. This dr wants me to be checked for poss Spinal Stenosis. She sees so much OA in my body, I just feel it.
I just don't like the way this neurontin makes me feel on any level. I'm going to call my dr and see what she has to say.
Thanks again for your input, you ladies always come thru for me.  Hope you have a wonderful day.
God bless.  Alice.

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 3/28/2010 8:16 AM (GMT -7)   
Alice, I'm glad that they are going to be thorough in their investigation and hoping
you find relief very soon! Sending a gentle hug and prayers!
Hugs, Robin

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 3/28/2010 12:19 PM (GMT -7)   
Alice how is everything else going dear???
I tried neurontin for about as long as you did and didn't like the way it made me feel but if I have any side effect I'm done with a med. On the other hand my sister has been taking it for many years for diabetic neuropathy and she wouldn't give it up if her life depended on it. After listening to a half hour speech from youngest son about sharing meds with other people I had him take what I had to her when he delivered her Girl Scout cookies to her. I do not share meds with other people but she has to pay for the same exact thing I would have thrown away.
The one thing we do not have incommon with fibro is how we react to meds. I hope you do find something that helps you it sounds really painful.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
Vit D/calcium

Veteran Member

Date Joined Oct 2009
Total Posts : 4907
   Posted 3/28/2010 1:57 PM (GMT -7)   
I take 200mg Neurontin about 8PM to go to bed about 10 - 10:30. It takes a couple of hours to act and I want to wake up at 7:30. If I wake up in the night I often don't really feel like actually getting out of bed and soon fall back to sleep. Taking the pill at bedtime absolutely does make me too sleepy in the morning.

For my morning 100 mg, I take it along with tramadol, which counteracts the sleepiness and relieves fibro pain quite well. I never take tramadol in the late afternoon or evening because it causes insomnia and wakefulness half the night.

I tried going without the Neurontin because it's not really a pain reliever. Ooops! Bad idea for me. I was in pain all day.

So if you get relief, just figure out when to take your drugs. Look up "duration of action" for each and keep a journal of when you take your meds and the effects at different times.

Irish Babe
Veteran Member

Date Joined May 2007
Total Posts : 1380
   Posted 3/30/2010 8:13 AM (GMT -7)   
Good morning, Ladies. I spoke w/ my dr yesterday, told her of my reactions and she said to stop the med, so that is over.
Alcie, I am glad that the Neurontin works for you, so glad you get some relief! I didn't even find some relief w/ the stuff. I also can't take Ultram, like so many meds - I have a reaction to that. Good suggestions re: 'duration' and the journal. Thank you. Hope you are having a good day.
Marlee, I don't seem to have much luck w/ any meds for pain and such. I could never understand why I had so many prob w/ meds, it bothered me and ALL of my drs yrs ago. Now I have an answer to that, but I still can't find something that works. At least my HBP meds work, most importantly!
You asked 'How is everything else going?' It's going! Thankfully, my DH had a successful 2nd stent put in an artery. It wasn't exactly where they hoped it would go, but it is in a 'good' location. He seems to be better, more energy and strength - but he hasn't gone back to work yet. That will be the test, I guess. I am just so grateful he came out of the procedure alive and in good spirits. My DM is still in the rehab, has to be there for 6 wks for the medicine she needs. Medicare will NOT give it to her at home, will pay for it in the hosp and/or NH. She is such a trooper! To qualify for NH, she MUST go to PT 6 days a wk. She doesn't have much energy, but she goes everyday. The staff there loves her, she has so much determination. Yes, she does! God bless her.
Robin, thank you for your good thoughts, your gentle hug and especially, your prayers. They are always welcomed and appreciate. I know you have a lot of struggles going on right now, pls know my thoughts and prayers are w/ you.
Hope you all have a peaceful and pain free day.
God bless.  Alice.

Regular Member

Date Joined Sep 2009
Total Posts : 122
   Posted 3/30/2010 1:32 PM (GMT -7)   
You know...I'm reading these posts and the one thing we all seem to have in common is a sensitivity to meds. My Dr. tried to put me back on an antidepressant I took for years and I was so wacked out it was unreal. Now I'm having a hard time getting on any meds. It doesn't matter what type of med it is anymore. This seems to be yet another symptom of Fibro. Has anyone else noticed that? I thought it was just me but now I know it's not.

This is no Social Crisis... Just another Tricky Day (The Who)


New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, November 22, 2017 7:59 AM (GMT -7)
There are a total of 2,896,735 posts in 317,931 threads.
View Active Threads

Who's Online
This forum has 157521 registered members. Please welcome our newest member, Steven Hazlett.
371 Guest(s), 12 Registered Member(s) are currently online.  Details
Cigafred, PeppermintTea, mikeb2308, Matt_eire89, Michael_T, Turboz, OuterLimits, Saipan Paradise, Union98, three 5's and a jack, straydog, Lanie G

About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow on Facebook Follow on Twitter Follow on Pinterest
©1996-2017 LLC  All Rights Reserved.