Not sure if it is FMS or not

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New Member

Date Joined Mar 2010
Total Posts : 1
   Posted 3/28/2010 1:38 PM (GMT -7)   
I had Mono a bad case in 1986 that took 8 months to recover from I was 22 then.  Over the years I had unexplain episodes of pain in my shoulder and neck that would come and go under stressful conditions.  Now in my 40's I have been having a lot of weird symptoms.  I lost my job of 5 years in Feb 2009 it's been a struggle to fine suitable work. I have a degree and years of experience, but that means nothing in this economy. 
Anyway, I started experiencing burning pain in my lower back when I was in bed on my stomach sleeping. It go away if I turn over to my back.  I noticed burning pain in my thumb joint and my neck acted up again with severe pain.  Now it seems my hips are involved and I am having pain in them depending the way I sit or sleep.  I had a CT scan done in October 2009 and nothing showed up.  After the CT scan my pain in my back left and I got heartburn severe enough to take many medicines. It was so bad I got it at night and woke with pain at the end of my esophagus and stomach pain. Had EKG no heart issues, and this went on for a month or so. It burned now in my gut.  I would have thought if it was cancer the CT would have seen something, but nothing.  Now the stomach burning pain is gone and the back pain is back with hip involvement.  Never diagnose with this Fibromyalgia although now I suspect this could be the case.  I've also had visual disturbances which I do not even know how to describe.  My hand get to aching for minutes at a time. I am a mess and I am scared.
Anyone else know if this sounds like it may be linked to FMS?

Irish Babe
Veteran Member

Date Joined May 2007
Total Posts : 1380
   Posted 3/28/2010 4:43 PM (GMT -7)   
Hi Dalpnc! It is nice to meet you and welcome to the family.
My back is my most consistantly painful area, always burning. I am so sorry you're having such a hard time w/ all the pain and burning. I would suggest you check out the post up top on the page 1 called 'Fibro 101'. There are many really good posts in there on so many topics near and dear to the Fibromites heart. One in particular is a list of symptoms. Look them over, print it out and mark all the symptoms that apply to you, then bring it to your dr. You have had some of the tests they give to rule out any other problems, but there are more. Yeah!
Your dr might want to send you to a gastroenterologist, you don't want it to get any worse than it already is. I have an Hiatal Hernia, but I rarely have a prob w/ heartburn. My former dr insisted I take Protonix everyday, I couldn't see the point. If I find a food bothers me, it is gone from my menu.
Many of us have a prob w/ the visual disturbances, it makes life far too interesting. I hope you get some answers to your ???? from your drs.
In the mean time, come here and ask ??? and share, or vent. There are a lot of very nice ppl here that will welcome you to the family.
Hope you have a good evening.
God bless.  Alice.

Forum Moderator

Date Joined Nov 2008
Total Posts : 5948
   Posted 3/28/2010 5:34 PM (GMT -7)   
All that burning pain moving from back to stomach sure sounds familiar to me. Fibro could be at least part of the problem. Also, I had "atypical" symptoms with both my appendix and gallbladder when it was to time for them to go - we get LOTS of atypical symptoms! - have they considered them? Knock on wood, I don't get that particular kind of pain anymore. I'm sorry you're having such an awful time. This is a good place to vent, as Alice said. Try not to stress out or worry too much, hard to do on the bad days, I know.

I started a thread here on visual disturbances yesterday that you might find interesting. Thought I might be the only one - definitely not!
Diagnosed: Fibromyalgia, Meniere's, mild liver damage, keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine, herpes
Meds: Nortriptyline, Clonazepam,  Effexor, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, calcium + vit. D, vit. C
Chiropractic adjustments

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 3/28/2010 9:42 PM (GMT -7)   
Hi and Welcome to our Fibro Family!

Even if you don't have a diagnosis and you may not have one, you are more than welcome to come on in and join the gang. It's the best way to learn what's going on and how you can find out what you have. Obviously we're not doctors and can't diagnose anyone but we can give you our experience and most important our understanding when it comes to pain.

I would also suggest you ask for a referral to a rheumatologist who treats fibromyalgia. Once in a while you will find a rheumy who is in the dark ages when it comes to fibro but most are well educated. My PCP is the one who diagnosed me but sent me to a rheumy to confirm it.

The last and most important thing I would share is...please don't be frightened. Fibro isn't life threatening...but it is lifelong. That may not sound encouraging but year by year they are finding out more about what fibro is and how to treat the symptoms. Once the get that far they just might come up with a cure. That's what I'm praying for. But in the mean time you need to find a great doctor who is willing to work with you on pain management that YOU want. Some people want no pills or other pain medications, others want pain medications and no bio--feedback, some want counseling and medication and some just want to know what it is and then handle it themselves which is fine.....there are lots of options. But critical is finding a doctor that suites you and your needs. I personally take some pain medications otherwise I don't have a life. My doctor is cautious but he also believes in quality of life. We get along wonderfully. But as you will or have read, some people try for years on end to find a good doctor and still haven't found someone who will help with their pain. We have to advocate for ourselves most of the time so stick with us and we'll be more than happy to walk with you.

Take care and keep in touch...OK?
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

Regular Member

Date Joined Jan 2010
Total Posts : 52
   Posted 3/29/2010 1:17 AM (GMT -7)   
Welcome Dalpnc,

So glad you join us because their are alot of wonderfull people here that will help you any way they can.

For me personally I started having pain in my back first about 5 years ago, then I started having hip pain while sleeping, then it went to shoulder and neck pain, then pain in my legs and knees, and one by one i kept having more symptoms. With some people the symptoms come on quickly and others (like me) come on gradually. You can do what I did, I kept a journal of any new problems i was having, then I started searching for a doctor until i finally got one that would listen to me. I was diagnosed on the first visit with my Rheumy. The journal really helped alot in my diagnosis. I wrote down the day the problem started, how severe the pain was, or how it felt, how long it lasted. I Hope this helps you too.

 Diagnosed with -FM, Degenerative disc disease, spinal stenosis, arthritis, Lupus., undifferentiated connective tissue disease. 
Medications- Plaquanil, 800 Ibuprofen, Lortab, Cymbalta 

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