Hi everyone... I'm Amanda and turned 18 about
a month ago. I've had fibro for a little less than 4 years now. And it just keeps getting worse. New symptoms just keep appearing (which I noticed they are the same as the fibro symptom list, I have all but a couple of the symptoms on the list), and they've become impossible to control. It's made it impossible to live a normal life. I can't handle the 8 hour school days so I have to be taught after school. The only other time I'm out of the house is doctor appointments. I've lost all of my friends because they believe I've gone mental, and so does everybody else at my school. So I pretty much live the life of a loner.
I've been through the woodwork as far as doctors... first with a neurologist, headache specialist, three endocrinologists, an osteopath, rheumatologist, and an ob-gyn. Each one of them has found something new that's wrong with me, minus two of the endocrinologists and the neurologist... headaches/migraines, hashimoto's, fibro, cfs, recurring back pain, raynaud's, depression, and most recently, vaginismus. My osteopath has been the most helpful doctor of them all, even if the effects of what he does only lasts a couple of days. I can't remember all of the medicines I've been on, I've been on so many. Right now I'm on savella, tramadol, allegra (for asthma I've had since I was born), levothyroxine, vitamin d, and a multivitamin.
I currently do daily yoga and have completely changed around my diet. I've cut out all of my favorite foods, nothing greasy, nothing chocolaty, nothing high glycemic, basically anything tasty I've eliminated. While that has helped me lose a couple of pounds, I've become really backed up and gotten a sensitive stomach. Now I can't eat anything that's not bland.
I've really upped my fiber intake and take miralax to at least soften me up, but it hasn't helped. I blame being put on lyrica, I haven't been the same since I took that for a month...
Sorry my explanation is so lengthy. I haven't really been happy in a long time so I'm just venting.
Fibromyalgia, Chronic Fatigue Syndrome, Hashimoto's Thyroiditis, Raynaud's Phenomenon, Asthma, Migraines.
Just a small town girl, livin' in a lonely world...