Help, I don't know what this is.

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New Member

Date Joined Nov 2006
Total Posts : 10
   Posted 4/5/2010 5:32 PM (GMT -7)   
I have been having problems for a very long time, at least 5 years.
I am sensitive to touch in my lower back on the sides from just below the waist down to my knees on both sides.  It is much worse on my left.  I get weaker Extreme fatigue) when I exercise
The neurologist mentioned something about myopathy and ran the following tests:

pyruvic acid

I have multiple symptoms but I also have hypothyroidism. My thyroid tests are now and have been great for the past 2 years.  I was recently tested and they are still good. 

Major Symptoms:

muscle aches, muscle twitching, Fatigue, weakness worsened by exercise, clumsy, hard to pick up small things.  (Like coins on a table or separating papers) I slur my words at times.  A lot of these symptoms come and go but he exercise causing weakness and fatigue see to always be there.

I am also going to have an EMG, muscle mapping and he some other stuff but he was a bit hard to understand with his accent that I didn't quite catch the other tests.

Can anyone help me out with what he is looking for?  I have not been diagnosed with anything. I have been on this forum before with my symptoms but this is my first neurologist I have seen.  My symptoms have been going on for at least 5 years.

He also did a test where he held his finger up high and made me stare at it. It was SO HARD to keep my eyes up there.  I just wanted to cry.  What is that test for?

any ideas would be greatly appreciated.

Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 4/5/2010 7:43 PM (GMT -7)   
Hi willywee, welcome back to the forum. Your doctor seems to be doing a thorough job
of trying to rule out certain conditions. There are many disorders with many of the
same symptoms. Be sure to check out Fibro 101 at the top of page one. It contains plenty
of wonderful info for us. Make sure to read.. What else could it be?
Getting a diagnosis takes time. Your doctor is checking neurological and muscular
symptoms to be able to get a definative DX.  I know the waiting can be difficult, but in
the end you want  a correct Dx and it seems like your doc is giving you a good checkup.
Wishing you the best. Please keep us posted.
Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 4/5/2010 9:09 PM (GMT -7)   
Hi Weewilly!

And Welcome! I agree with Robin...the only way your doctor can see what you DO have is to keep testing for things that have your symptoms in common. If all of the tests come back negative then he may lean toward fibromyalgia or something similar but the only way to diagnose something like fibro is to 1) eliminate other possible disorders and 2) check for 'tender points' and other symptoms in line with fibro. Next time you see him just ask...ask what he's trying to find out; ask what he's trying to eliminate; ask if there is something specific he's looking for. You are paying him good money and you deserve answers and a chance to talk with him. If you can't understand him because of a thick accent then explain that to him and ask him to write it down. I had one specialist from India who was wonderful but on the phone I had no idea what he was

I think right now the best thing you could do for yourself is to try and relax. If he is looking for fibro the one thing about it is it's not life threatening. You have what you have and the name you get isn't as important as how it's affecting you and how you "let" it affect you. Try to keep your muscles and joints warm and keep moving. You don't have to run a marathon but taking to bed or sitting for long periods will only make the pain and stiffness worse. Don't do more than your body is telling you to do.

We are always here to chat with and help answer your questions if we can. Hold on and we'll get through the diagnosis portion with you whether it's fibro or not.

Gravitation is not responsible for people falling in love.
Albert Einstein

(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

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