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Regular Member

Date Joined Dec 2008
Total Posts : 139
   Posted 4/6/2010 9:10 PM (GMT -7)   
I haven't been on here in a while, but recently a new and frustrating symptom has emerged, I am itchy all the time! Sometimes raised itchy bumps will come up for about 5 minutes, then just go away other times there will be no bumps at all. I get itchy everywhere, it isn't any specific area. I end up scratching my skin until it's raw and I worry that people around me will think I'm diseased because my skin is always red and blotchy.

Has anyone else ever encountered this?
Fibromyalgia: 2008

Effexor 150 mg, Flexril 5 mg, Gabapentin 600 mg

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 4/6/2010 10:34 PM (GMT -7)   
Hi Orlo!

Good to see you again but I'm sorry you're having problems. The reason I'm replying is because I had something similar several years ago. My PCP tried several things and the itching just got worse and worse. It's insanity you can't describe! I was sent to a dermatologist who identified mine quickly and got it to stop. Mine is a rare form of dermatitis called Dermatitis Herpetiforums. Even though the name sounds strange it's not associated with herpes in any way. But there are some younger dermatologists who don't recognize it even. He treated me with a week worth of prednesone and also a very old and cheap prescription medicine called Dapsone. But this combination made the itching stop right away. I have to tell you that I was so miserable! Couldn't sleep, scratched my skin raw while asleep, it just took over my mind and my life until we found out what it was.

It most often starts around the 'bendy' parts of your legs and arms...the outside of the elbows and behind the knees. Mine was over most of my body before they found out what it was. It was like being dipped in honey, rolled in fire ants and then rolled up in a scratch wool blanket and left there. There's no telling why you get DH but it often is in combination with celiac disease (gluten intolerance). In my case it's not, thank goodness! may not have this but I wanted to share it with you just in case. You need to at least get to a dermatologist and find out what's going on. It could be anything from laundry soap, shampoo, foods, medicine or even what I have but whatever it is you need a doctor's help. In the mean time keep hot water off of your skin, take cool showers and not too often. Hot water makes the itching worse. I was sleeping with cold packs on my legs and arms it was so bad. You might try some cortisone cream from the drug store. That might help until you can get in to a doc. But don't let them push you off...explain the misery you are in.

Here's a link to a DH site in case you want to read up on it.

Hope you find out soon and get some help,
Gravitation is not responsible for people falling in love.
Albert Einstein

(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41840
   Posted 4/7/2010 9:07 AM (GMT -7)   
My norco makes me itch now and then. I have always had that with pain medications. Just a thought.

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Feb 2010
Total Posts : 138
   Posted 4/7/2010 3:20 PM (GMT -7)   
I have a problem with the same thing behind my legs an knees only and only about once a week. Good think I have fake nails or I would be bleeding. It's mostly while I sleep. I usualy get up and take a benadril. My legs are always beat! red the next day.

Regular Member

Date Joined Mar 2010
Total Posts : 22
   Posted 4/7/2010 3:26 PM (GMT -7)   
I also itch and I am pretty sure that it is from hives,I get them on my chest and my back..have no idea why??

Forum Moderator

Date Joined Nov 2008
Total Posts : 5948
   Posted 4/7/2010 4:21 PM (GMT -7)   
Sometimes I have tiny red dots that itch, mostly on my legs, less often larger ones around my middle, and sometimes there's itch with no visible sign. No idea why, either. My dermatologist says it's a "nonspecific dermatitis." But it's not the insane kind of itch. I never scratch my itches because I don't want to turn them into that!
Diagnosed: Fibromyalgia, Meniere's, mild liver damage, keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine,
Meds: Nortriptyline, Clonazepam,  Effexor, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, calcium + vit. D, vit. C
Chiropractic adjustments

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