Fibro questions

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Regular Member

Date Joined Apr 2010
Total Posts : 382
   Posted 4/7/2010 6:58 AM (GMT -7)   
Hi, I am a homeschooling mother of 4 children, age 38 (Yikes, cool )
I have been having issues for several months....yes, been to several doctors.  First, I was found to have microscopic blood in my's decreasing so the doctors aren't worried about it.
Secondly, after all the blood test it showed I had a very low vit D.  Doctor put me on 50,000 units a week.  The sed rate and esr all was normal.
Thirdly, doctor said I was depressed and put me on lexapro.....I refused to take it.  I am not depressed, I laugh, cut jokes and just an all around goofy person.  I like to have fun in life and enjoy my family.   I do get frustrated because my body isn't the same as it use to be.
August of last year my normal periods began to become intense, painfully.
I started to loose weight, got that undercontrol now.  I got sick in Dec. with diarrah, I was knocked on my butt tired all the time, sleeping alot and that is when the muscle pain started. The pain isn't chronic just in different locations. 
Right now I do get tried at times but then in a few hours I am back to normal. Not everyday though I have some really good days.  I no longer nap in the day but am tired at night.
I do have muscle cramps, tingling/pins in fingers and leg, just odd aches.  Anywhere below my neck is fair game.  The twinges of pain may last a few seconds and it's gone.  The cramps last a bit longer. 
Also a times my my jeans may give me a weird sensation in one location on my skin.  Just for a few seconds it's gone. 
I do have hot flashes now, devil  on top of everything.
I can tell you the pain isn't chronic just annoying.  I can't pinpoint the pain because its not one location.  The pain doesn't wake me up at night so I know it isn't serious.
I do have stomach pain off and on to, different locations.
I also noticed stress, weather and my periods is when there is more aches.
I do have daily issues with aches, yesterday was not a good day.  My legs ached like having the flu,  my hands off and on.  I did get my period today so I can link that together.
I was wondering with Fibro, how does it began?
Can it came up later in life?
What is is like to have it.......
I can live with this no thoughts if it gets worse I'll tell the doctor but really not wanting to because I am tired of seeking medical advice and paying bills.  Plus when I saw my doctor this week I busted up laughing after telling him the same thing again,,, I said, ok I realize this sounds like depression but that isn't the case here.
My dh, I love him tells me I'm getting older this is normal.....not buying it.
I am sorry this is so long but I'm frustrated, I don't think this is normal.

Regular Member

Date Joined Apr 2010
Total Posts : 382
   Posted 4/7/2010 6:59 AM (GMT -7)   
Oh thank you in advance and God bless......
I have looked at the symptoms of fibro..........I was wanting to know how it starts out, is it chronic pain?  Basically the beginning signs.  thank you.:-)

Veteran Member

Date Joined Nov 2008
Total Posts : 2858
   Posted 4/7/2010 7:20 AM (GMT -7)   

Hi Kellie and welcome!  It's hard for me to pinpoint when my fibro 'started' but I am sure I have probably had it since I was a teenager...I am now 64.  I had horrific menstration problems that included heavy bleeding, intense pain plus the cycle would last about ten days to two weeks and I became very anemic.  After one D&C after another I finally had a hysterectomy at 23 years old because of bleeding ovarian cysts.  I think that was the beginning of future fibro symptoms...some tingling and numbness sensations in my legs led the way to further testing and then the pain started.  I was tested for all the obvious...MS, Lupus RA and other autoimmune disorders.  But I guess to answer your question, after the hysterectomy the pain subsided, other strange skin sensations took over....burning, tingling, pulling tight, and feeling uncomfortable wearing certain fabrics, and of course bouts of fatigue.  I was not offically dx'd with fibro until the mid ninties as the disease hadn't been clearly defined until then.  I was always just treated for chronic pain.

I was prescribed Lexapro by my Rhuemy three years ago and took it for two did nothing but make me a unemotional drone and I went off it...which was a nightmare and still is.  Withdrawal from SSRI's are nasty and lingering and I wish I had never gone on it.  My doctor's response was that these drugs are a 'lifetime committment' and I should have not gone off it.  I know they have helped many people but it was not for me.

This is a wonderful, supportive, informative forum and I know others will give you their advice!









fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 41915
   Posted 4/7/2010 9:03 AM (GMT -7)   
Hi Kellie,

Welcome to the fibromyalgia forum. I am so happy that you have joined us. If you get a chance, check out the thread called fibro101. It is the second thread on the forum. I am sure that you will discover a lot there. There are lists of symptoms and also exercises and stretching that you can do sitting in a chair if you have to.

Fibro can flare. It can come back with a vengance. Not trying to scare you, just letting you know. My pain is chronic. It never leaves. But I can live with that. I can keep it down to a 3 or a 4 on a painscale of 1 to 10. Like I say, I can live with that. The fatigue is what gets to me. I don't like it at all. I spent two years in bed when I first got it and I can never get those two years back. Thanks to good doctors and medications, I have it pretty much under control.

I hope that you stay with us. This is a really good forum. I think that you will like it here. Take care, let us know how you are doing. Get that diagnosis, then you know what you are dealing with.
My vitamin D was low too, I take 1000 iu a day now that I got it back up.  That is something fibromites usually have to take.  They are often low on D.

Hugs, Karen

  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Dec 2009
Total Posts : 387
   Posted 4/7/2010 9:26 AM (GMT -7)   

Hi Kellie,

I am 39 and my husband says the same thing...age+weight.  I am not buying it also.  He doesn't believe there is something wrong with me.  Just stress and taking care of the three kids.  I do have pain and it moves around.  I am also in the process of being diagnosed.  I like it here and I think you will too!


Forum Moderator

Date Joined Apr 2005
Total Posts : 17526
   Posted 4/7/2010 11:32 AM (GMT -7)   
Hi, KellieJo, and welcome!  We have had threads about how our fibro started.  Some have had it since childhood, some after an illness or accident, some after an emotional trauma, and some, like me, for no reason.  I was watching television when it hit me right between the eyes.  Mine started with pain and affected all of my joint areas.  It was the muscles, tendons, and ligaments that were causing the pain..not an inflamatory joint.
Your symptoms are definitely suspicious of fibro...the fact that weather affects you.  We are walking barometers around here!  Who needs the weatherman?  We can tell if there is a front coming through or if it's going to rain within the next 12 hours!  It's amazing. 
Many with fibro are deficient in vitamin D.  I was taking 3,500 IU of D3 and my latest vitamin D blood work came back and I was still only at 34.  I am now taking between 4,500-5,500 IU a day.  But, I get my vitamin D levels checked frequently.
I do hope you see a doctor and find out for sure what is going on with you.  Fibro symptoms are similar to symptoms of other illnesses, too.  Be sure to check out Fibro 101...the second thread on the forum.  There are links to good info about fibro, including a link to symptoms and also one to What Else Could It Be.  Doctors usually run tests to rule out the other illnesses before a diagnosis of fibro is given.
I'm so glad you found us and joined in.  Please let us know what you find out because we really do care.  Don't hesitate to ask questions, either, because we are here to help you.  I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Apr 2010
Total Posts : 382
   Posted 4/7/2010 12:09 PM (GMT -7)   
Thanks for the warm welcome....everyone

I just want to know what is going on, I'm not one accept it's age or depression, lol. Right now if it's fibro I would call it mild....

Funny you should say that about the weather because now that I'm thinking of it about 3 years ago I got a serious sinus infection. Ever since then before bad weather hits my ear hurts, its red and cannot be touched, rofl. I am not telling the doctor about that.

I'm really not wanting to see anymore doctors, I sound like a broken record, hee hee. I know they are human and try the best they can, which I do appreciate, I'm just tried of being labled as depression.

I tried asking my doctor why my vit d levels drop........she told me to get outside more. Now, I help my husband with his landscaping business, snow removal and I homeschool my kids. Trust me I'm outside.
Ok I looked at fibro 101 I have more than I realized.  I'm not crazy,  things kept happening and I was wondering if I was going through pre-menopause.........
Oh being a woman isn't easy......turn

Post Edited (KellieJo) : 4/7/2010 1:16:11 PM (GMT-6)

Regular Member

Date Joined Apr 2010
Total Posts : 382
   Posted 4/7/2010 1:20 PM (GMT -7)   
So if I ask questions, I wont' drive you all crazy?

Looking at fibro 101, I'm starting to make a connection......

In the last few days I started to be lightheaded and ringing off and on in the ears.......thought it was allegeries.

So many things are happening, last night my right hand had tremors. Just for a short time though.

Now question my aches/pains etc only last for a few seconds and then it's gone? Unless it's a muscle cramp then that does last longer.

Does aches and pains come that quick?

I beginning to think this started back in Aug. when my periods got bad....

Forum Moderator

Date Joined Nov 2008
Total Posts : 5951
   Posted 4/7/2010 2:14 PM (GMT -7)   
Hi KellieJo,
No, you won't drive us crazy!  You know how misery loves company?  (Or at least someone to make us realize WE aren't crazy!)  Sometimes it seems like every random symptom I've had in the last 20 years (and there are a LOT of them) can be attributed to fibromyalgia, my most faithful of friends...the one who is always there for me turn  Welcome! 
Diagnosed: Fibromyalgia, Meniere's, mild liver damage, keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine,
Meds: Nortriptyline, Clonazepam,  Effexor, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, calcium + vit. D, vit. C
Chiropractic adjustments

Regular Member

Date Joined Apr 2010
Total Posts : 382
   Posted 4/7/2010 6:08 PM (GMT -7)   
Lol, I know I'm not crazy, now when I tell the doctor what is going on that is when I feel crazy, hee.

When this all started the doctor suggested Crohn's disease but has backed off that. Problem being my family history or lack of it makes it hard. I do know many siblings and mother has issues nothing diagnosed though.
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