Just a quick update "BUSY"

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Regular Member

Date Joined May 2009
Total Posts : 447
   Posted 4/11/2010 1:59 PM (GMT -7)   
I wrote a few weeks ago on being busy and how my pain was coping.
Well the last week has been super busy, I am involved with a volunteer tourism group in our local Woodworks Museum and the group with two others has put on a Steam Fest, today Monday is the last day. So for the last week my days have started at 6am and finished at about 8pm this is when I have gotten home done the days washing, cooked a meal and made it too bed.
Pain well I am coping each day I wake up and think ok today I will give into the pain and stay home. But after I get up and move around take some pain killers then think "Why let the pain have control" so I then get ready and go and have another wonderful day.
What do I do well i have been doing the meet and greet that means walking the visitors to the ticket office and then back the 50 yards back to our tent and start again there are 4 off us doing this. Today it will be a very slack day as I am not on roster but when I said I was taking the day off my husband who had been very concered I was doing too much asked if I was going to do the free train ride this afternoon as it is too far to come and pick me up to take me "What is one more day?"
So I will be going again today as soon as I drag myself to get ready. Why is my husband going?  Well he is not only one off the oganisers but also he is doing two deminstrations there, for us it is a family thing as my DD works there and SIL is also doing a bit of everything as he is on holidays.
Doing this has meant I have made a lot of great friends, meet others with FMS who I hve been able to send to this forum as they are not coping well with the fibro. Earnt a little money which all healps out [$140] and had some stimulation of the mind. Once I would off sat at home and watched everyone go. And resented them for being able to go with the pain being my master. Yes it hurts and at times I want to cry from thr pain but was it worth it? You bet the laughter, the silliness of my friends who know I am suffering. But respect me for what I am doing. The concern of my closest friends who last night when talking to others who have given into their illness and stay at home and envey me. As I told one friend last night it is just a case off puting one foot in front off the other and giving it a go. If it is too much then step back and just do a little and try again next time, I sat at home for 15 years and gave up on too much and lost a big part off myself. I am a people person I olve too be out doing things with the public. Now I hve found that part off myself again and I am not going to lose it. Different things make us happy take the time too find that and take it in small steps and give it a chance. I am glad I did.
Kathy from the land down under where we are going into winter but the days are hotter then we had in summer.
FMS, CFS, IBS,Migraine

Veteran Member

Date Joined Mar 2009
Total Posts : 900
   Posted 4/12/2010 1:26 AM (GMT -7)   

OMG! You had me crying through your post. What you are doing is exactly what I am doing to but not dealing with the public too much. I am volunteering at the Toy Rescue Mission in the town where I live. It's so hard doing the first 4 hours and then getting up the next 2 days and doing 3 hours. I had to do something as my depression was getting to me because I worked P/T for 8 years and 4 months at my dad's medical clinic. I still cry about that at times, but I'm getting better. I just feel really sorry for my dad because he is now at that age (Medicare) that he can apply for retirement benifits also. OK I have to go before I can not see because I am crying about that again. I'm just glad to be doing something to lift some of my depression. I can't wait until my SSI comes through. I only have to wait until April 28th. It's coming soon.

Thanks for the posting.


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