What is your pain like?

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Regular Member

Date Joined Feb 2010
Total Posts : 138
   Posted 4/14/2010 10:05 AM (GMT -7)   
woow it's interesting reading all your posts. I am still not convinced that I have fibro. At first they thought I had lupus because I had a high posative ANA. 2nd time high again. 3rd time negative. All the symptoms fit. So now because I started having muscle pain he tried me on cymbalta. I was pain free for two weeks now I have pain everyday from various joints and my back but I don't get the muscle pain till night time. Every night between 9 and 11:30 it hits me like a ton of bricks. every mucsle in my body sometimes. Sometimes just my shoulders,arms,back and chest. And ofcourse I feel completely lethargic, Can you guys explain to me what your pain feels like?

Veteran Member

Date Joined May 2008
Total Posts : 704
   Posted 4/14/2010 11:01 AM (GMT -7)   
Hi Louise,
It is hard because fibro is ever changing. Sometimes it is bad ache in my legs, sometimes it is pain in my back (sometimes upper, sometimes lower) sometimes my arms, sometimes my pinky fingers and feet, sometimes all of the above, and most times neck pain is almost always with any of the above combo
It can be a burn, it can be stabbing pain...it really is a dice throw. Usually if I walk too much my neck is throbbing and I have a headache. My hair has been known to hurt (I guess scalp)
When it hurts bad...I don't want to be touched...even a gental hug from my husband (God Bless him...he just wants to help) can be like I am being sweezed to death!
Taking it one day at a time.... 

Forum Moderator

Date Joined Nov 2008
Total Posts : 5951
   Posted 4/14/2010 12:10 PM (GMT -7)   
I'd have to agree with hopegirl, the pain is always changing.  I have my areas that are always sore, but it can migrate from there, get worse, come roaring back.  I usually know right away when I've done something "bad," nono like lifting a few ounces too many or driving over a dip in the road too fast: all my "fault lines," all on the left side of my body, start throbbing and it feels just like there's a seam running down that whole side, from my toes to the top of my head, that's pulled too tight.  Then I "kick" myself!!  On some of these nights, it grows into the kind of pain I can't ignore.  devil  At this point, random muscles in my back, butt, and neck like to join in for whatever reason.  (This can also happen out of the blue.)  That's when I turn to Darvocet.  I very rarely have to take it before evening.  Sometimes I'll take 6 a week, sometimes none, but I probably average 3 or 4. 
I think lethargy can be a product of fighting pain.  I have more energy, move more, and get more accomplished when I DO take the meds than when I wait too long and resist it.  But that's just me.  I hope you figure out what's going on and what works for you soon, because it's so hard when your imagination is being held captive by pain! 
  Diagnosed: Fibromyalgia, Meniere's, mild liver damage (why?), keloid scar tissue (from burn) on back, arthritis, scoliosis, lumbar disc damage, IBS, migraine
  Meds: Nortriptyline, Clonazepam, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
  Chiropractic adjustments

Forum Moderator

Date Joined Apr 2005
Total Posts : 17528
   Posted 4/14/2010 12:50 PM (GMT -7)   
Louise, my back, shoulders and neck hurt all of the time.  Then I have pain in other areas but those travel.  Many times it feels like the pain is in  your joints but it is most likely the tendons and ligaments that move the joint. 
If I sit or lay too long, that's when my muscles stiffen up and hurt more.  That might be why this is hitting you in the evening.  I usually get up several times in the middle of the night and I have to use a cane because I am so stiff and in such pain.  But, once I'm up and about, the pain usually fades some and I can get on with my goals for the day.  If I didn't move because it hurt, I would hurt worse all day long.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Regular Member

Date Joined Feb 2010
Total Posts : 138
   Posted 4/14/2010 11:43 PM (GMT -7)   
Wow well some of that really sounds like my pain an some doesn't. Maybe I am just getting started. The muscle pain didn't start till Jan this year but other stuff a lot sooner. I had a whole body bone scan and I do have arthritis in all my joints. When I get pain in my neck it feels like it's under my collar bone shakehead  Tonight it's my legs really bad. They feel like they are 100 pounds a piece. Most nights it's my upper body. who knows. The only pain med's I get prescribed is tramadol. On real bad nights I have no problem taking one of my hubby's. he gets lot's and don't take many. I am just taking one day at a time and doing the most I can. I am a very active person. Lately I have been falling asleep while I have my 18 month old Grandson. Good thing he doesn't let me. he'll just smack me with a toy or something and wake me up or hubby is here to help. Last night I went to bed at 9:00, woke up at 7:00 and still couldn't stay awake. Most nights I am up till midnight. what a schedule huh? I'm so glad I have you guys to talk to though and ask questions. Thank you
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